Recurring concern

Failure to acknowledge and act on family and carer safety concerns in patient care

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First reported 6 Sep 2013•Latest report 24 Jun 2026

Definition

What this concern includes

Includes failures within patient-care processes to receive, acknowledge, recognise, record, investigate, escalate or act on safety concerns raised by parents, families, carers or next of kin, including concerns about a child's condition or care and concerns raised during hospital or community care.

Not included

  • Excludes generic communication, information-sharing or documentation deficiencies where no family or carer safety concern about patient care is involved.
  • Excludes routine dissatisfaction or complaints without a material patient-safety concern.
  • Excludes concerns raised by employees, clinicians or other professionals when the unsafe condition is not the handling of a family or carer concern.
  • Excludes failures confined to informing families or carers about care when they did not themselves raise a safety concern.
  • Excludes complaints-handling failures in non-healthcare settings or care-setting-specific processes where an existing narrower concern provides the more faithful boundary.
Reports
19

Distinct published reports

Individual concerns
22

A report can raise multiple concerns

Date range
2013–2026

First to latest report issue date

Stated actions
32

Described in published responses

Reports over time

Reports over time

Reports about this concern issued each year.

* 2026 is projected from reports observed to 7 Sep 2026.

Most frequent recipients

Most frequent recipients

Reports about this concern sent to each recipient.

Care Quality Commission3
Department of Health and Social Care3
Essex Partnership University NHS Foundation Trust3
Health and Safety Executive2
NHS England2
Betsi Cadwaladr University LHB1
Birmingham and Solihull Mental Health NHS Foundation Trust1
East London NHS Foundation Trust1
European Care & Lifestyles (UK) Limited1
Greater Manchester Integrated Care Partnership1
Greater Manchester Mental Health NHS Foundation Trust1
HCRG Care Coventry LLP1
Kent and Medway Mental Health NHS Trust1
NHS Birmingham and Solihull Integrated Care Board1
NHS Coventry and Warwickshire Integrated Care Board1

Concerns and responses across reports

Only concerns grouped under this recurring concern are included. Select any concern, action or position to view the source wording.

  1. Worcestershire

    AI-generated summary

    Jacqueline Frances O'BRIEN · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Jacqueline Frances O'Brien was treated for injuries from an accidental fall and later developed an intra-abdominal infection. She died in hospital on 4 November 2025 after deteriorating following transfer to a community hospital. The principal concerns were that staff failed to carry out checks or observations for about eight hours and failed to respond to family concerns about her worsening condition, resulting in a missed opportunity for earlier treatment.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure to follow up family concerns about a patient's condition

    Wider context from the report

    “It was agreed by the consultant who gave evidence at the inquest, and by the Trust's legal representative, that thereafter between 1230hrs and Mrs. O'Brien's departure for Pershore at 2025hrs that evening, there is no evidence of any further checks or observations being carried out. In fact, when Mrs. O'Brien was seen on the PDU by family members that same afternoon, it was clear to them that she was in a great deal of pain and distress. They raised their concerns with staff on the PDU, who assured them that she was alright. No member of staff appears to have acted on those concerns, and ensured that Mrs. O'Brien was checked. Those who transported Mrs. O'Brien to Pershore reported to staff there that she "had been in pain on transfer". On her arrival at Pershore at 2100hrs, it was clear to staff there and to an out of hours GP who was called to examine her, that she was in severe pain and very unwell, with a National Early Warning Score ( NEWS ) of 5. An ambulance was called to transfer her back to Worcester, and the paramedics recorded at 0111hrs that her NEWS score had risen to 10. I am therefore concerned at how staff on the PDU at Worcestershire Royal Hospital failed: (a) for some 8 hours to carry out any checks or observations on a patient who was clearly becoming very unwell; and (b) to follow up concerns raised by Mrs. O'Brien's family about her condition on the afternoon/evening of her discharge. ”

    Source location

    Jacqueline Frances O'BRIEN · Prevention of Future Deaths report
    Page 2 · concerns

    Open source report

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Complete the commissioned case review to identify system improvements and examine its findings for wider learning.

    Verbatim wording from the response

    “An initial review has been undertaken and discussed in our Patient Safety incident Review Group (PSiRG) on 6th July 2026 and we have commissioned a case review to explore in more detail the events that day and what systems could be improved to aid our staff to care for patients safely and ensure records are accurate in a future scenario similar to this.”

    Source location

    Response from Worcestershire Acute Hospitals NHS Trust
    Page 1 · response
    Published 3 September 2026

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    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Update the discharge lounge SOP on patient capacity, deteriorating-patient management, and exclusion criteria for unsuitable patients.

    Verbatim wording from the response

    “• We have identified and confirm that there were no documented observations in the discharge lounge, although the staff recall taking them but only on recording these on paper and not in the electronic patient record. We have reviewed the discharge lounge SOP as it lacked clarity around what we expect our staff and how often observations should be recorded whilst patients are in the discharge lounge.”

    Source location

    Response from Worcestershire Acute Hospitals NHS Trust
    Page 1 · response
    Published 3 September 2026

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Require the discharge lounge team to record full observations electronically and use SBAR escalation for deterioration or medical emergencies.

    Verbatim wording from the response

    “• in the event of a deterioration or medical emergency the patients consultant team will be contacted and arrangements made for the patient to be reviewed”

    Source location

    Response from Worcestershire Acute Hospitals NHS Trust
    Page 2 · response
    Published 3 September 2026

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Implement Martha’s Rule across the Trust as an alternative escalation pathway for patients, relatives, and staff concerned about a patient’s condition.

    Verbatim wording from the response

    “• We can confirm there was no documentation of the family concerns in the patient's notes. Since the time of the case, Martha's Rule has been implemented across the trust, providing an alternative escalation pathway for both families and staff if there are concerns about a patient's condition, while it may not have been used in this specific case, it is now available to all patients, relatives and staff.”

    Source location

    Response from Worcestershire Acute Hospitals NHS Trust
    Page 2 · response
    Published 3 September 2026

    Open published response

    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    The patient was in the discharge lounge before transfer, not the PDU.

    Verbatim wording from the response

    “In response to your specific concern listed above we would like firstly to clarify that Mrs O’Brien was on the discharge lounge prior to transfer to Pershore, we apologise for any misunderstanding that led you to believe it was PDU. Please find below the actions the trust have taken in relation to your concerns on her care before discharge:”

    Source location

    Response from Worcestershire Acute Hospitals NHS Trust
    Page 1 · response
    Published 3 September 2026

    Open published response
  2. Essex

    AI-generated summary

    Katharine Emma Corrigan · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Katharine Emma Corrigan, a patient detained under the Mental Health Act, died by suicide after failing to return from unescorted leave on 22 July 2023. The report identifies concerns about failures in the management and recording of Section 17 leave, inadequate risk assessments and care planning, staffing and oversight, and failures concerning access to recognised treatment for a pre-existing hormonal imbalance.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure to respond appropriately to family concerns and communicate the patient’s treatment wishes

    Wider context from the report

    “10. The Family had raised repeated concerns that Ms Corrigan was not receiving appropriate treatment on the ward and about the risks to herself, verbally and in writing. The Family correspondence contained communications evidencing their concerns emanating from Ms Corrigan herself in text messages to the responsible clinician and other staff. Ms Corrigan was encouraged to undergo intensive psychoanalytical psychotherapy even though she explained she did not feel ready and her family did not know or understand about how rare this form of therapy is and relied on her treating clinical team. They were encouraged to fund this and convey her to the therapy in the community without an understanding that Ms Corrigan did not wish for it. ”

    Source location

    Katharine Emma Corrigan · Prevention of Future Deaths report
    Page 5 · concerns

    Open source report
  3. Manchester West

    AI-generated summary

    Michaela FINCH · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Michaela FINCH died on 2 August 2025 following combined drug toxicity after a period of acute mental health deterioration, alcohol misuse and an earlier non-fatal overdose. The report raises concerns that possible co-occurring mental health and addiction needs were not fully recognised, that family concerns were not effectively communicated to the assessing clinician, and that risk assessment, diagnosis, discharge and follow-up may have been inadequate. It also identifies possible funding limitations affecting access to escalated community-based care.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure to communicate family concerns to assessing clinicians

    Wider context from the report

    “4. The evidence established that at least two family members had brought to the attention of a member of the Mental Health Team their profound concerns, their recent lived experiences with the deceased that underpinned these concerns, their views that the deceased was paranoid, at greater risk to herself - but none of these concerns were brought to the specific attention of the assessing clinician - the communication between the Mental Health Team and family members being sub-optimal. ”

    Source location

    Michaela FINCH · Prevention of Future Deaths report
    Page 2 · concerns

    Open source report

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Maintain the updated Mental Health Liaison Service procedure requiring carer involvement, communication, feedback and provision of a carers’ information leaflet.

    Verbatim wording from the response

    “The Trust Standard Operating Procedure (SOP) for Mental Health Liaison Service (MHLS) was updated in August 2025 and clearly outlines the expected standards of engagement with carers by the teams. The SOP includes communicating with carers during an assessment to obtain their views, either with the person being assessed or alone with the practitioner, keeping them up to date during their stay in the Emergency Department and feeding back the outcome of any assessment and plan.”

    Source location

    2026-0064 - Response from Greater Manchester Mental Health
    Page 2 · response
    Published 11 February 2026

    Open published response
  4. Kent and Medway

    AI-generated summary

    Stephen Taylor · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Stephen Taylor experienced worsening mental distress linked to work and financial concerns, with escalating risk indicators and repeated contact with health services. He died on 26 May 2025 after deliberately jumping from Louisa Bay Cliffs. The principal concerns were the lack of coordinated escalation and ownership of risk across services, reliance on his denial of immediate intent despite other risk indicators, routine rather than urgent referrals, and the absence of a same-day urgent face-to-face assessment despite family concerns.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure to act on family-provided information indicating heightened and escalating risk

    Wider context from the report

    “(4) Family-provided information indicating heightened and escalating risk did not result in same-day escalation or urgent face-to-face clinical assessment. ”

    Source location

    Stephen Taylor · Prevention of Future Deaths report
    Page 2 · concerns

    Open source report

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Deliver a two-day CRAM training event for Urgent Mental Health Helpline staff to improve risk recognition, risk curiosity and co-produced care and risk management planning.

    Verbatim wording from the response

    “With regard to improving risk recognition within the Kent & Medway Urgent Mental Health Helpline, the staff from this service are undergoing a 2-day Clinical Risk Assessment & Management (CRAM) training event to support improved risk recognition and risk curiosity, and to promote deeper questioning of patients who present with elevated risks and/or risk factors. This will include a focus on creation of a co-produced care and risk management plan.”

    Source location

    Response from Kent and Medway mental Health NHS Trust
    Page 2 · response
    Published 21 January 2026

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    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Introduce visual prompts at every call station and workstation directing staff to arrange Rapid Response assessment within four hours when risk is concerning.

    Verbatim wording from the response

    “As a result of this very sad death, the Urgent Mental Health Helpline, has generated visual prompts at each call station to support clear identification and pathways for call handlers/clinicians to direct, where risk is of concern, a referral for a rapid assessment within 4 hours by our Rapid Response service. It is expected that our staff will not rely on a risk prompt tool but will be equipped to identify risk accurately and utilise a curious approach to seeking further risk information, from the patient, their families and referrers.”

    Source location

    Response from Kent and Medway mental Health NHS Trust
    Page 2 · response
    Published 21 January 2026

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Update the Duty Standard Operating Procedure to require same-day routine referral action and careful consideration of family members’ information.

    Verbatim wording from the response

    “• The Duty Standard Operating Procedure was reviewed and updated in November 2025 and now includes (1) an explicit reference to the management of routine referrals, and states these should be actioned on the day that the referral decision is made and consent received, and (2) reference to the importance of the careful consideration of family members’ information within the clinical decision-making process.”

    Source location

    Response from Vita Health Group
    Page 4 · response
    Published 21 January 2026

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    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Deliver a reflective Duty Team session sharing case learning and the resulting Standard Operating Procedure changes.

    Verbatim wording from the response

    “• A reflective session with the Duty Team took place on 03/12/25 sharing the learning from this case and the changes that have made to the Duty Standard Operating Procedure as a result.”

    Source location

    Response from Vita Health Group
    Page 4 · response
    Published 21 January 2026

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    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    An urgent referral was not indicated because reported deterioration lacked evidence of dynamic risk, risky behaviour, suicide planning or intent.

    Verbatim wording from the response

    “Although Mr Taylor had not been reviewed directly by the clinical team, the Duty Team noted the concerns shared by his daughter, and agreed a plan with her, that a non-urgent referral was most appropriate and would be made to the Older Adult Mental Health Team. The rationale for this was that whilst Mr Taylor’s presentation had deteriorated and new risk factors had been reported, the absence of dynamic or immediate risk factors such as risky behaviour, or evidence of planning or intent towards a suicide attempt, meant that an urgent referral was not indicated and therefore unlikely to be accepted. However, due to an escalating presentation, additional support from the Older Adults Mental Health Team was still indicated.”

    Source location

    Response from Vita Health Group
    Page 3 · response
    Published 21 January 2026

    Open published response
  5. Surrey

    AI-generated summary

    Rose Annie Harfleet · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Rose Annie Harfleet, aged 12, died in hospital on 30 January 2024 after presenting with abdominal pain and vomiting, later identified as a caecal volvulus causing intestinal obstruction and bowel ischaemia. The report raised concerns about failures to recognise and respond to her deterioration, obtain and act on information from her mother, provide appropriate monitoring and surgical review, and offer learning disability liaison support. It also identified a lack of guidance for managing and consulting with children with profound disabilities in hospital settings.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure to recognise and act on parents’ ongoing concerns about children on hospital wards

    Wider context from the report

    “3. Nursing and Medical care on the ward In the absence of local and national guidelines, the importance of listening and responding to Rose’s mothers ongoing concerns about her daughter when she was transferred to the ward were not recognised by the nursing and medical staff and consequently not acted upon thereby contributing to Rose’s death. There appears to be a prevailing culture that in the absence of a patient being able to explain their symptoms themselves the voice of the parent or guardian is not given the significance it should be for the most vulnerable in a hospital setting. ”

    Source location

    Rose Annie Harfleet · Prevention of Future Deaths report
    Page 3 · concerns

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    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Maintain a Learning Disabilities and Autism policy with emergency admission guidance and requirements for carer involvement.

    Verbatim wording from the response

    “The Trust has a Learning Disabilities and/or Autism Policy to Support Children and Adults with Learning Disability and/or Autism. This has been developed in accordance with other national and local guidelines, including the Mental Capacity Act 2005, Learning from lives and deaths – People with a learning disability and autistic people (LeDeR) policy (2021), NICE NG93 mental capacity, reasonable adjustments and quiet areas, NG11 restraint, Autism Spectrum Disorder in Adults; Diagnosis and Management – Clinical Guide CG142 (NICE 2016), NHS LD&A Programme 2025 Digital flagging and hospital passports and the Equality Act (2010). Specifically the Trust policy includes an emergency admission flow chart and information about supporting carers and engaging with them in decision making including care and interventions.”

    Source location

    Response from Royal Surrey County Hospital NHS Foundation Trust
    Page 1 · response
    Published 20 May 2025

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    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Implement Martha’s Rule across adult and paediatric services, addressing its three delivery metrics for patient, family, carer and staff escalation.

    Verbatim wording from the response

    “The Trust is not however aware of any specific national guidance on consultation with the parents and carers of children with profound disabilities although the Trust recognises that this is an essential part of good clinical practice. Whilst not specifically related to children with profound disabilities, the Trust is aware of Martha’s Rule, and have been selected to be part of Phase 2 for implementing this. Work has commenced to address the three metrics for delivery for adults and children.”

    Source location

    Response from Royal Surrey County Hospital NHS Foundation Trust
    Page 3 · response
    Published 20 May 2025

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Continue rolling out Oliver McGowan Mandatory Training on Learning Disability and Autism to the health and adult social care workforce.

    Verbatim wording from the response

    “To improve awareness of learning disability and autism within the health and social care system, under the Health and Care Act 2022, from 1 July 2022 Care Quality Commission (CQC) registered providers are required to ensure their staff receive specific training on learning disability and autism appropriate to their role. This will help to ensure that staff have the right knowledge and skills to provide safe and informed care. To support providers to meet the statutory training requirement, we have been rolling out the Oliver McGowan Mandatory Training on Learning Disability and Autism to the health and adult social care workforce: this specifically highlights the difference that listening to parents can make.”

    Source location

    Response from DHSC
    Page 2 · response
    Published 20 May 2025

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    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Support rollout of Martha’s Rule and engage with NHS England as pilot data emerge.

    Verbatim wording from the response

    “RCPCH are actively supporting the role out of Martha’s Rule. Martha’s Rule is a patient safety initiative currently being piloted in England which aims to empower all staff, patients and their families to seek an independent medical review if they feel their concerns about a patient’s care are not being adequately addressed. The rule is designed to give families the ability to directly request an expert review by a senior clinician not within the immediate care team, potentially identifying critical issues before they result in harm.”

    Source location

    Response from Royal College of Paediatrics
    Page 2 · response
    Published 20 May 2025

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    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Collaborate with NHS England and the Royal College of Nursing to develop a single national Paediatric Early Warning System for England.

    Verbatim wording from the response

    “In addition, RCPCH are committed to the introduction, embedding and appropriate standardisation of Paediatric Early Warning Systems (PEWS) within the four nations. PEWS are designed to effectively recognise and respond to the deterioration of children or young people in a healthcare environment. A parental escalation process is essential to any effectively PEWS. We have been collaborating with NHS England and the Royal College of Nursing to develop a single national PEWS for England since 2018 and are supportive of equivalent processes across the UK.”

    Source location

    Response from Royal College of Paediatrics
    Page 2 · response
    Published 20 May 2025

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    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Publish interim guidance on mandatory learning disability and autism training for providers and CQC staff.

    Verbatim wording from the response

    “Speaking with and respecting patients’ families is a key aspect of the mandatory learning disability and autism training (aka the Oliver McGowan training) so all clinicians involved should be aware of this. A difficulty with regard to the implementation and regulation of providing this training has been the delay to the publication of the Code of Practice. This will give providers and CQC staff clearer guidance on the requirements of the training and for CQC to regulate. Interim guidance is available on our website.”

    Source location

    Response from Care Quality Commission
    Page 2 · response
    Published 20 May 2025

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    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Provision of nursing care and access to learning disability liaison nurses fall outside the respondent’s authority.

    Verbatim wording from the response

    “Good medical practice, produced by the General Medical Council, sets out the principles, values, and standards of professional behaviour expected of all doctors. This includes requirements that doctors must “treat all patients fairly and without discrimination, including those with disabilities” and that “doctors are required to consider and respond to the communication needs of all patients, including those with disabilities.” RCPCH has no authority over provision of nursing care on wards but notes that the Nursing and Midwifery Council states how nurses “must take account of individual differences, capabilities and needs” and “use a range of communication skills and technologies to support person-centred care and enhance quality and safety”.”

    Source location

    Response from Royal College of Paediatrics
    Page 2 · response
    Published 20 May 2025

    Open published response
  6. Inner West London

    AI-generated summary

    Raihana Oluwamidalo Awolaja · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Raihana Oluwamidalo Awolaja, who was tracheostomy-dependent and required one-to-one nursing care, was left unsupervised at her residential care home for approximately fifteen minutes. Secretions blocked her tracheostomy, causing respiratory compromise and cardiac arrest; she was later resuscitated but died of hypoxic ischaemic brain injury. The principal concerns included inadequate supervision and staffing, possible shortcomings in training and communication, and concerns about the care provider’s investigation and handling of concerns raised by next of kin.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure to listen to and sufficiently investigate concerns and complaints raised by next of kin

    Wider context from the report

    “6. That next of kin are not sufficiently listened to when they raise concerns, and their complaints are dismissed without sufficient investigation. ”

    Source location

    Raihana Oluwamidalo Awolaja · Prevention of Future Deaths report
    Page 4 · concerns

    Open source report

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Conduct quarterly anonymous Family Satisfaction Surveys and use their findings in governance-led service improvements.

    Verbatim wording from the response

    “• Family Satisfaction Surveys: We have introduced quarterly Family Satisfaction Surveys, which families can complete anonymously if they wish. Feedback from these surveys is carefully reviewed and acted upon. Outcomes are escalated through our governance structure to ensure they directly influence service improvements and decision-making.”

    Source location

    Response from The Children’s Trust
    Page 4 · response
    Published 19 May 2025

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    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Operate a monthly senior-leader Family Forum, document themes, and monitor agreed actions.

    Verbatim wording from the response

    “• Monthly Family Forum: A Monthly Family Forum has been established, attended by senior leaders including the Head Teacher and Chief Executive Officer. This forum provides a protected and supportive environment where parents, families, and carers can provide feedback, ask questions, and raise concerns. Discussions and themes from these meetings are formally documented, with agreed actions monitored and followed up at subsequent forums.”

    Source location

    Response from The Children’s Trust
    Page 4 · response
    Published 19 May 2025

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    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Create a Clinical Governance Department and a senior role championing children’s and families’ experiences.

    Verbatim wording from the response

    “• Increased Resource: To strengthen the organisation’s responsiveness, we have created a dedicated Clinical Governance Department. This department includes a senior role (Band 8a) specifically responsible for championing the experiences and perspectives of children, young people, and their families. This role ensures that their voices are embedded at every level of the organisation, with concerns and feedback escalated consistently and with appropriate oversight.”

    Source location

    Response from The Children’s Trust
    Page 4 · response
    Published 19 May 2025

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Revise the complaints policy and process to address gaps and align with national best practice.

    Verbatim wording from the response

    “• Revised Complaints Policy: We are currently revising our Complaints Policy and process. This work involves a thorough review across the organisation to identify and address any gaps, ensuring the process is robust and aligned with national best practice standards.”

    Source location

    Response from The Children’s Trust
    Page 4 · response
    Published 19 May 2025

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Introduce a modified escalation procedure enabling families to request a second opinion or further care review.

    Verbatim wording from the response

    “• Modified Martha’s Rule: We are introducing a modified escalation procedure, often referred to as “Martha’s Rule,” which will provide families with a clear and accessible route to request a second opinion or further review when they have concerns about the care provided.”

    Source location

    Response from The Children’s Trust
    Page 4 · response
    Published 19 May 2025

    Open published response
  7. North West Wales

    AI-generated summary

    Nesta Jones · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Nesta Jones died in hospital on 8 May 2017 after being admitted with suspected septic arthritis of a prosthetic left knee. The report describes concerns about delayed consideration and treatment of septic arthritis, junior doctors not being encouraged to challenge consultant opinions, inadequate handling of the family’s urgent complaint, and the lack of a full investigation into the death.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Inadequate systems and processes for responding to urgent complaints and concerns

    Wider context from the report

    “b. The family wrote a detailed urgently marked letter to the Chief Executive on 3 May 2017 whilst Nesta was still in hospital. This requested consideration by him of her care as ‘a matter of life or death urgency’. There was no response. The Health Board did not have adequate and appropriate systems and processes for dealing with such complaints and concerns. ”

    Source location

    Nesta Jones · Prevention of Future Deaths report
    Page 2 · concerns

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    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Operate the revised Complaints Procedure, including an escalation process.

    Verbatim wording from the response

    “In relation to the complaint process, I can confirm that since Mrs Jones' death the process in the Complaints Team has now changed. A new Complaints Procedure was introduced in March 2022. This procedure includes an escalation process. However, I acknowledge that further improvement is still needed and we are currently undertaking a full review of the complaint process alongside the review of the incident process detailed below. We will create a new, integrated framework that covers incidents, complaints and mortality. This work is underway at present with a view to completion in the next two months.”

    Source location

    Response from Betsi Cadwaladr University Health Board
    Page 2 · response
    Published 6 March 2024

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    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Review incident and complaint processes and create an integrated framework covering incidents, complaints and mortality.

    Verbatim wording from the response

    “In relation to the complaint process, I can confirm that since Mrs Jones' death the process in the Complaints Team has now changed. A new Complaints Procedure was introduced in March 2022. This procedure includes an escalation process. However, I acknowledge that further improvement is still needed and we are currently undertaking a full review of the complaint process alongside the review of the incident process detailed below. We will create a new, integrated framework that covers incidents, complaints and mortality. This work is underway at present with a view to completion in the next two months.”

    Source location

    Response from Betsi Cadwaladr University Health Board
    Page 2 · response
    Published 6 March 2024

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Roll out the Call 4 Concern service to general hospital sites, providing patients and families access to urgent clinical support.

    Verbatim wording from the response

    “In addition, as mentioned at the inquest, the Health Board has also launched a new service to allow patients or relatives to escalate their clinical concerns, called Call 4 Concern. The Call 4 Concern Service was launched in Ysbyty Gwynedd during 2022 and following a pilot is now being rolled out at our other general hospital sites this year.”

    Source location

    Response from Betsi Cadwaladr University Health Board
    Page 2 · response
    Published 6 March 2024

    Open published response
  8. Essex

    AI-generated summary

    Georgia Dehaney-Perkins · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Georgia Dehaney-Perkins was found deceased on 6 September 2022 on Latton Common, Harlow, after a history of mental health difficulties, self-harm and suicidal ideation. The medical cause of death was recorded as combined alcohol and drug toxicity. Concerns included the suitability and safety of her ward bathroom, incomplete risk assessment and incident recording, insufficient documentation and communication about medication and alcohol risks, and a lack of action after family raised concerns about her leaving home with medication.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure to act on family concerns about medication access after leaving home

    Wider context from the report

    “(4) The Home First Treatment Team attended a scheduled appointment on 4 September and Ms Dehaney-Perkins appeared stable and updated the risk assessment that the risk of self-harm remained significant when alcohol was consumed. No action was taken following a call raising some queries and concerns from family that evening that Ms Dehaney-Perkins had left her home with her medication. ”

    Source location

    Georgia Dehaney-Perkins · Prevention of Future Deaths report
    Page 2 · concerns

    Open source report

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Support patients and carers who raise risk concerns by contacting patients, exploring concerns, and managing them accordingly.

    Verbatim wording from the response

    “Response: The Home First Team will support patients and carers when they contact the team raising concerns around risk. The patient will be contacted by a member of the team who will explore the concern and manage it accordingly.”

    Source location

    Response from Essex Partnership University NHS Foundation Trust
    Page 3 · response
    Published 14 February 2024

    Open published response
  9. Black Country

    AI-generated summary

    Karmchand Gulzar · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Karmchand Gulzar was taken to Sandwell Hospital on 23 September 2022 with abdominal distension and pain and was diagnosed with acute intestinal obstruction. A CT scan and immediate surgical review were delayed; his condition deteriorated, urgent surgery took place during the evening and early morning, and he died during the operation in the early hours of 24 September 2022. Concerns included failure to follow the surgical registrar referral pathway, failure to undertake an urgent CT scan, and insufficient recognition of deterioration and concerns raised by carers and family about his condition.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure to give adequate weight to concerns from carers and family familiar with a patient's presentation

    Wider context from the report

    “(3) The deterioration in Karmchand’s condition was not recognised due to difficulties in communication of pain due to his mental health condition. Concerns raised by his carers and family who knew him best and his presentation were not given adequate weight. A previous SI was reported to have raised this issue, but no action point or plan was provided in the current report to set out how staff could improve the assessment of patients with communication difficulties, by using observations and relying on people who better knew their demeanour and presentation. ”

    Source location

    Karmchand Gulzar · Prevention of Future Deaths report
    Page 3 · concerns

    Open source report

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Trial a Carers Passport and supporting documentation prompting carers to describe patients’ individual needs and pain expressions.

    Verbatim wording from the response

    “In relation to the concerns regarding the recognition of deterioration not being recognised due to Mr Gulzar’s mental health condition and the concerns of his family/carers being ignored; there is considerable work being done by our Patient Experience team to support improvement in this area. Listening to and valuing the expertise that exists within carers and families is crucial to providing personalised care and treatment, and personalisation is a key-cornerstone of the Trust's Fundamentals of Care programme. Through this work a 'Carers Passport' with supporting patient documentation concentrating on the person, is being trialled in selected wards to understand the benefits this will reap for carers across the organisation. This trial will take place in April 2024, and we will then look to roll this out across the Trust.”

    Source location

    Response from Sandwell and West Birmingham NHS Trust
    Page 2 · response
    Published 3 January 2024

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Deliver patient experience and communication education emphasizing carers’ involvement, expertise, and contribution to care and outcomes.

    Verbatim wording from the response

    “Additionally, we have identified training and education in patient experience and communication as Trust priorities. Every session delivered in the last year stresses the value of carer involvement, their specific expertise and knowledge and the benefits in experience and outcomes that these bring.”

    Source location

    Response from Sandwell and West Birmingham NHS Trust
    Page 2 · response
    Published 3 January 2024

    Open published response
  10. Warwickshire

    AI-generated summary

    Owen Paul Garnett · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Owen Garnett, a 19-year-old student with severe learning difficulty, swallowing problems and Pica, died after choking on a significant amount of blue paper towel while unsupervised at school. The principal concerns were that carers’ repeated concerns were not acted on, that required supervision was not provided despite the risk assessment, and that the school’s subsequent action plan lacked clear guidance and oversight.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure to act on carers’ health and safety concerns

    Wider context from the report

    “1. The evidence showed that the concerns of Owen’s carers were not acted on. Evidence was given that had the school seen the photographs they would have been more likely to have reacted to the information, but less weight was placed on an oral report by carers. The new plan seems to recognise that carers’ concerns should be acted upon by recording as a near miss incident any health and safety concerns and these should be reviewed. It appears that the decision to regard any such concerns as relating to health and safety and then record the concerns can be made at class staff level. There is no guidance as to what should or should not be regarded as a health and safety concerns by staff. There is no guidance as to how carers will be assisted to participate in this process or what steps can be taken by carers who feel their concerns have been disregarded. ”

    Source location

    Owen Paul Garnett · Prevention of Future Deaths report
    Page 2 · concerns

    Open source report
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Data last updated 7 September 2026