Recurring concern

Failure to reliably refer patients to required specialist services

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First reported 19 Jan 2014•Latest report 4 Feb 2026

Definition

What this concern includes

Includes failures in making, recording, tracking or completing clinically required referrals to specialist services, including physiotherapy, occupational therapy, dietetics and specialist nursing, where the referral is needed for assessment, rehabilitation, treatment or safe care.

Not included

  • Excludes referral delays or omissions involving a named pathway or service with a more specific established recurring concern, such as mental-health, social-care or district-nursing referrals.
  • Excludes failures in specialist assessment or treatment after a referral has been reliably completed and accepted.
  • Excludes generic communication, staffing, documentation or care-planning deficiencies unless they directly cause failure to complete a required specialist referral.
  • Excludes requests for general advice or informal consultation where no required referral to a specialist service is identified.
Reports
35

Distinct published reports

Individual concerns
38

A report can raise multiple concerns

Date range
2014–2026

First to latest report issue date

Stated actions
65

Described in published responses

Reports over time

Reports over time

Reports about this concern issued each year.

* 2026 is projected from reports observed to 7 Sep 2026.

Most frequent recipients

Most frequent recipients

Reports about this concern sent to each recipient.

NHS England4
Department of Health and Social Care3
Care Quality Commission2
Hc-One Limited2
Manchester University NHS Foundation Trust2
NHS Greater Manchester Integrated Care Board2
Adferiad Recovery1
Barts Health NHS Trust1
Bedfordshire Hospitals NHS Foundation Trust1
Belong Limited1
Betsi Cadwaladr University LHB1
Bristol NHS Foundation Trust1
Brunswick Ward at Lindridge1
Castlehill Specialist Care Centre1
Cornerstone Family Practice1

Concerns and responses across reports

Only concerns grouped under this recurring concern are included. Select any concern, action or position to view the source wording.

  1. Cumbria

    AI-generated summary

    Brenda SHIELDS · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Brenda Shields died at home in Carlisle on 8 December 2022 after taking her life by ligature suspension while under the influence of a very high blood alcohol level. The principal concerns were that she was discharged without planned follow-up, her family was not involved as expected, relevant notifications and referrals were delayed or not made, and insufficient weight was given to her alcohol problems and recent history when assessing risk.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure to make promised referrals to relevant specialist services

    Wider context from the report

    “(1) Brenda was discharged without any planned follow up. Her family were not involved in the discharge process despite assurances that they would be, her GP did not receive discharge notification from the Hadrian unit until 8 days after the event or from the Crisis team until 10 days after Brenda's death. Referrals promised from Hadrian unit to Drug/Alcohol services and Persistent Physical Symptoms Service were not made. ”

    Source location

    Brenda SHIELDS · Prevention of Future Deaths report
    Page 2 · concerns

    Open source report

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Review and discuss Hadrian Unit discharge processes with staff to improve communication of onward referrals.

    Verbatim wording from the response

    “Actions/Recommendations:”

    Source location

    Response from Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust
    Page 4 · response
    Published 13 June 2023

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Record onward referrals and receiving-team acceptance on the electronic MDT proforma, with monthly compliance audits.

    Verbatim wording from the response

    “"Discharge processes to be reviewed by Hadrian Ward to ensure onward referrals are communicated with receiving teams”

    Source location

    Response from Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust
    Page 4 · response
    Published 13 June 2023

    Open published response

    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    The discharge included planned follow-up, with ongoing support from the Cumbria East Crisis Team and planned referrals to other services.

    Verbatim wording from the response

    “In addition to the above, this concern also suggests that Brenda was discharged from the Hadrian Unit and the Crisis Team without any planned follow up. Again, by way of clarification and in accordance with the written evidence provided, immediately following discharge from the Hadrian Unit, Brenda was supported in the community by the Cumbria East Crisis Team, and she continued to be supported by this service until the date of her sad death (on which date she was also discharged from the service). The role of crisis services is to provide people with safe, effective, compassionate, high-quality care whilst they remain in mental health crisis. Where appropriate and as in this case, the crisis service offers home treatment intervention to allow people to be discharged from hospital earlier whilst still experiencing an acute phase of illness.”

    Source location

    Response from Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust
    Page 2 · response
    Published 13 June 2023

    Open published response
  2. Berkshire

    AI-generated summary

    Alexandra Briess · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Alexandra Briess underwent tonsillectomy, later required surgery for post-operative bleeding, and suffered sudden deterioration and cardiac arrest during anaesthesia on 30 May 2021. She died on 31 May 2021, with the most likely cause identified as an anaphylactic reaction to Rocuronium; there were no concerns about her clinical management. The principal concerns were the lack of national leadership and funding for anaphylaxis work, mandatory reporting of fatal anaphylaxis, and improved national data gathering, research and information sharing.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Lack of a clear UKFAR referral requirement after unsuccessful resuscitation

    Wider context from the report

    “6. Consideration of including contact details for the UKFAR in algorithms used by doctors attempting to resuscitate patients – so that there is a clear requirement for referral to UKFAR in the event of an unsuccessful resuscitation. This is currently being considered by the Resuscitation Council UK. ”

    Source location

    Alexandra Briess · Prevention of Future Deaths report
    Page 4 · concerns

    Open source report
  3. Surrey

    AI-generated summary

    Louis James Rogers · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Louis James Rogers died after being found unresponsive at home following a period of clinical illness and was pronounced dead on 18 June 2021 despite resuscitation attempts. Autopsy identified a viral infection, and genetic studies confirmed Dravet’s Syndrome. The report raised concerns about the management and investigation of febrile seizures, information provided to parents, paramedic and general practice guidance, and the lack of a coordinated febrile seizure pathway.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure to make timely referrals from general practice to secondary medical services for febrile seizures

    Wider context from the report

    “4. General Practice - At his mother’s request after the possibility of a further seizure, Louis was reviewed by his general practitioner on the 13th May 2021 following which Louis’s mother was reassured without a detailed history from Louis’s mother or a full neurological examination and in the absence of documentation in circumstances whereby it was acknowledged there was sufficient information at that time to refer Louis to secondary services for the management of children with febrile seizures. It would therefore be appropriate to consider providing robust national guidance and education to general practitioners to ensure appropriate history, examination, investigation are undertaken to allow timely referrals to secondary medical services to be undertaken. ”

    Source location

    Louis James Rogers · Prevention of Future Deaths report
    Page 5 · concerns

    Open source report

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Ask colleagues from seven NHS regions to share learning and available guidance with Integrated Care Boards for cascading to relevant healthcare professionals.

    Verbatim wording from the response

    “As a result of your Report, we will also be asking colleagues from each of the seven NHS regions to share the learnings from this matter and the guidance available with their Integrated Care Boards for cascading to relevant healthcare professionals.”

    Source location

    Response from NHS England
    Page 3 · response
    Published 31 March 2023

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Replace the epilepsy guideline with updated recommendations on referral and information and support after a first seizure.

    Verbatim wording from the response

    “We believe that our guideline on epilepsies: diagnosis and management [CG137], which was in place at the time of Louis’ death, is directly relevant to this case. The guideline covered diagnosing, treating and managing epilepsy and seizures in children, young people and adults in primary and secondary care and made recommendations on what should happen following a first seizure (section 1.4), diagnosis (section 1.5) and investigations (sections 1.6).”

    Source location

    Response from NICE
    Page 1 · response
    Published 31 March 2023

    Open published response

    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    NICE is responsible for producing clinical guidance on the diagnosis, treatment and management of febrile seizures.

    Verbatim wording from the response

    “The National Institute for Health and Care Excellence (NICE) are responsible for producing clinical guidance for health and care practitioners on the issue of febrile seizures. Their guidance on Epilepsies in children, young people and adults (NG127) covers the diagnosis, treatment and management, referral recommendations and information and support for the management of epilepsy and seizures in children:”

    Source location

    Response from NHS England
    Page 1 · response
    Published 31 March 2023

    Open published response

    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Existing national guidance is considered sufficient for managing febrile seizures.

    Verbatim wording from the response

    “NHS England has been sighted on the response to your Report from NICE, who have advised that there is sufficient national guidance regarding the management of febrile seizures.”

    Source location

    Response from NHS England
    Page 2 · response
    Published 31 March 2023

    Open published response

    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Existing national guidance and the Clinical Knowledge Summary are considered sufficient to support timely assessment, investigation and referral for febrile seizures.

    Verbatim wording from the response

    “We believe that our guideline on epilepsies: diagnosis and management [CG137], which was in place at the time of Louis’ death, is directly relevant to this case. The guideline covered diagnosing, treating and managing epilepsy and seizures in children, young people and adults in primary and secondary care and made recommendations on what should happen following a first seizure (section 1.4), diagnosis (section 1.5) and investigations (sections 1.6).”

    Source location

    Response from NICE
    Page 1 · response
    Published 31 March 2023

    Open published response

    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    RCEM will not lead development of further guidance because the project would be a significant undertaking, but can contribute with other organisations.

    Verbatim wording from the response

    “RCEM would be happy to work with NHS England / National Institute for Healthcare Excellence, Royal Colleges and other interested parties to help develop further evidence based or consensus guidance in this complex area of clinical practice. We are mindful that this would be a significant undertaking and that it would therefore not be appropriate for RCEM to take the lead on such a project.”

    Source location

    Response from Emergency Care Committee
    Page 1 · response
    Published 31 March 2023

    Open published response
  4. East London

    AI-generated summary

    Samantha Singh · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Samantha Singh developed a suspected nut allergy, was assessed as having a mixed nut allergy, and was prescribed an EpiPen. On 25 July 2020, she became unwell at home and suffered a cardiac arrest attributable to anaphylactic shock; she could not be resuscitated. The concerns included the miscategorisation of her test results, prescription of only one EpiPen, and lack of referral to an allergy clinic or follow-up appointment.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure to refer allergy patients to an allergy clinic

    Wider context from the report

    “(3) Following the appointment on 27 November 2019 Miss Singh was not referred to allergy clinic or offered a follow-up appointment to address issues arising from her allergy diagnosis. ”

    Source location

    Samantha Singh · Prevention of Future Deaths report
    Page 2 · concerns

    Open source report
  5. Black Country

    AI-generated summary

    Eric Harold Bird · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Eric Harold Bird, a 91-year-old man with dementia and assessed as being at high risk of falls, suffered seven falls during a four-week period in a specialist care centre. After a fall on 21/11/20, he sustained a subdural haematoma and died in hospital on 30/11/20. The principal concerns included failures to follow procedures after head injuries, delays in contacting emergency services and gaining ambulance access, and inadequate updating and review of his falls risk documentation and care plan.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure to complete required referral to the physiotherapy team

    Wider context from the report

    “1. After Mr Bird’s admission and initial falls risk assessment, there was a reference that Mr Bird needed to be referred to the physio team but no evidence this was actually done; ”

    Source location

    Eric Harold Bird · Prevention of Future Deaths report
    Page 2 · concerns

    Open source report

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Hold weekly ward rounds with the GP and senior nursing team to discuss information and multidisciplinary referrals and make appropriate referrals.

    Verbatim wording from the response

    “We have a weekly ward round with the GP are our Senior nursing team where all information including multi-disciplinary referrals are discussed and appropriate referrals are made by the GP.”

    Source location

    2021-0122-Response-from-Castlehill-Specialist-Care-Centre-Redacted
    Page 1 · response
    Published 4 May 2021

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Conduct management reviews and assess available evidence about the provider’s falls-management concerns.

    Verbatim wording from the response

    “The matters of concern which arose from the preventing future deaths report have prompted the CQC to take action. In direct response, we held a management review meeting on 17 February 2021. Following the management review meeting, we reviewed the evidence we held about Castlehill Specialist Care Centre, the information held following the specific incident review related to Mr Bird’s death and information following the inspection completed in January 2021.”

    Source location

    2021-0122-Response-from-Care-Quality-Commission-Redacted
    Page 2 · response
    Published 4 May 2021

    Open published response

    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    CQC will not progress a criminal investigation because the evidence does not meet the required threshold of proving avoidability beyond reasonable doubt.

    Verbatim wording from the response

    “• As a result of these findings, CQC held a management review meeting on 18 March 2021 to discuss the findings under our specific incident guidance. In order to open a formal criminal investigation, we have to be able to evidence a Registered Person (either a Registered Provider or Registered Manager) failed to provide safe care and treatment to Mr Bird in relation to this incident and can prove beyond reasonable doubt this incident was avoidable. We did not feel that this threshold was met and therefore will not progress the case.”

    Source location

    2021-0122-Response-from-Care-Quality-Commission-Redacted
    Page 3 · response
    Published 4 May 2021

    Open published response
  6. Manchester South

    AI-generated summary

    Brian Richard Murphy · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Brian Richard Murphy had congestive cardiac failure and significant coronary artery narrowing, deteriorated suddenly after being referred to cardiology, and died at Stepping Hill Hospital on 17 February 2020 following an acute myocardial infarction. The inquest heard that delays in the cardiology test referral system delayed tests and referrals to cardiology clinics.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Delays in patients being referred to the cardiology clinic

    Wider context from the report

    “The inquest heard that the system for referrals for cardiology tests meant that there were delays in tests being carried out which led to delays in patients being referred to the cardiology clinic to see a cardiologist. ”

    Source location

    Brian Richard Murphy · Prevention of Future Deaths report
    Page 1 · concerns

    Open source report

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Implement the changed NT-proBNP testing and referral pathway, including urgency thresholds for echocardiography and heart failure services.

    Verbatim wording from the response

    “The test has subsequently changed to a NT-proBNP for which the values are different:-”

    Source location

    2020-0193-Response-from-NHS-Stockport-CCG_Redacted.pdf
    Page 3 · response
    Published 26 November 2020

    Open published response

    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    There were no delays; investigations and referrals followed correct, timely processes and pathways, so the reported cardiology-timescale risk did not arise in this case.

    Verbatim wording from the response

    “Your report asks for an account of steps that we will be taking in relation to cardiology investigation timescales in order to reduce potentially avoidable deaths. I find myself in an unusual position in that whilst I am keen to respond appropriately to your request, my review identified that there were no delays in this case and that the correct processes and pathways were followed from the point of consultation with the GP through to the ordering of the echocardiogram and referral to specialist cardiology services.”

    Source location

    2020-0193-Response-from-NHS-Stockport-CCG_Redacted.pdf
    Page 3 · response
    Published 26 November 2020

    Open published response
  7. Bedfordshire and Luton

    AI-generated summary

    Sarah YOUNG · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Sarah YOUNG was admitted to Bedford Hospital on 9 April 2019 with headaches, confusion, immobility and fluctuating consciousness, and was later declared to have suffered brain-stem death on 12 April 2019 after an extensive cerebral sinus thrombosis. The principal concerns were delays in medical and neurological review, diagnosis and treatment, including difficulties with the referral system. The Inquest heard that earlier treatment may have increased her chances of survival, but could not be said to have contributed to her death.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure of the standard referral system to reliably transmit Bedford Neurologist referrals

    Wider context from the report

    “(3) The Inquest heard that referrals to the Bedford Neurologist (only available during Monday - Friday working hours) are not always picked up through the standard referral system and often require personal 1:1 contact between clinicians. ”

    Source location

    Sarah YOUNG · Prevention of Future Deaths report
    Page 2 · concerns

    Open source report
  8. Inner South London

    AI-generated summary

    Mr Adrian Ashford · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Mr Adrian Ashford died in Queen Elizabeth Hospital on 15 December 2018 after a massive upper gastrointestinal bleed, with the medical cause of death recorded as upper gastrointestinal bleeding due to chronic peptic ulcer. Concerns included the absence of a systematic process for recording weights and failures to identify or respond to risks of gastrointestinal bleeding, including consideration of gastroenterology referral.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure to consider gastroenterology referral after clinical deterioration

    Wider context from the report

    “2. The consultant in acute medicine, who was on call when Mr Ashford was admitted to A&E on 11th December 2018 by psychiatrists, concerned about the risk of GI bleeding, diagnosed constipation and returned him to a psychiatric bed. It appears he failed to identify the risks of GI bleed identified in A&E on 11th, nor the reasons for concern for urgent transfer (dehydration and drop in haemoglobin from 126 to 102g/l). On 14th he also failed to consider referral to a gastro-enterologist, after his blood pressure fell to 83/59 with a tachycardia of 112. He told the court “he was not thinking GI bleed”. Asked about learning from this death, he said that there was no change in his practice, other than increased awareness. ”

    Source location

    Mr Adrian Ashford · Prevention of Future Deaths report
    Page 1 · concerns

    Open source report

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Change the consultant’s clinical practice in response to learning from the case.

    Verbatim wording from the response

    “I have met with the consultant involved and we have discussed this case fully. The consultant has conducted a complete case review and reflection that he will use in his annual appraisal. He has changed his own clinical practice and has also made his colleagues aware through a grand round to share the learning. A new standard operating procedure for managing suspected upper GI bleeding has been produced and circulated.”

    Source location

    2020-0054-Response-from-Lewisham-and-Greenwich-NHS-Trust.-Redacted
    Page 2 · response
    Published 18 March 2020

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Share learning with colleagues through a grand round.

    Verbatim wording from the response

    “I have met with the consultant involved and we have discussed this case fully. The consultant has conducted a complete case review and reflection that he will use in his annual appraisal. He has changed his own clinical practice and has also made his colleagues aware through a grand round to share the learning. A new standard operating procedure for managing suspected upper GI bleeding has been produced and circulated.”

    Source location

    2020-0054-Response-from-Lewisham-and-Greenwich-NHS-Trust.-Redacted
    Page 2 · response
    Published 18 March 2020

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Produce and circulate a standard operating procedure for managing suspected upper gastrointestinal bleeding.

    Verbatim wording from the response

    “I have met with the consultant involved and we have discussed this case fully. The consultant has conducted a complete case review and reflection that he will use in his annual appraisal. He has changed his own clinical practice and has also made his colleagues aware through a grand round to share the learning. A new standard operating procedure for managing suspected upper GI bleeding has been produced and circulated.”

    Source location

    2020-0054-Response-from-Lewisham-and-Greenwich-NHS-Trust.-Redacted
    Page 2 · response
    Published 18 March 2020

    Open published response
  9. Manchester South

    AI-generated summary

    Arnold Fletcher Ward · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Arnold Fletcher Ward was a resident at Fernlea Nursing Home who developed a deteriorating grade 4 sacral pressure ulcer, later associated with osteomyelitis, and died in hospital on 21 January 2019 from a myocardial infarction. Concerns included inadequate monitoring and escalation of the pressure ulcer, failure to follow up a referral to the Tissue Viability Nursing Team, and the resulting lack of appropriate wound dressing.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Lack of a system to follow up unanswered specialist referrals

    Wider context from the report

    “The inquest heard that within the home the forms used did not capture the deterioration of the pressure ulcer or require detailed monitoring/use of photographs to track its progress. This meant that the significant and steep deterioration was not recognised and escalated at an early opportunity to the Tissue Viability Nursing team for expert wound management input. As a result the type of wound dressing he required were not utilised/available. It had been captured in the notes that there had been a referral to the Tissue Viability Nursing team in October. There was no system in the home to chase up the team after a number of weeks had elapsed and there had been no response. The inquest heard that even in non-urgent cases the Tissue Viability Nursing team would contact a home requesting support in at least 10 days and more quickly in an urgent case. ”

    Source location

    Arnold Fletcher Ward · Prevention of Future Deaths report
    Page 3 · concerns

    Open source report

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Route tissue-viability referrals by email or telephone, confirm them by summary email and next-day calls, and track follow-up using diary and audit-sheet prompts.

    Verbatim wording from the response

    “During the time of the incident with AFW, the TVNs were in the process of transferring referrals from fax to email. They have acknowledged that there was a number of issues around that time with referrals and follow ups. We have since changed our processes to ensure all referrals to the TVNs are via e-mail or telephone followed up by a summary e-mail. All referrals are followed up by a phone call the day after irrespective of urgency status and prompts are placed in the diary and on a referral audit sheet for the care management team to follow up.”

    Source location

    2019-0433-Response-from-Fernlea-Care-Home-Redacted.pdf
    Page 1 · response
    Published 31 December 2019

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Change Tissue Viability referrals from fax to email and add prompts to follow up referrals not actioned within two working days.

    Verbatim wording from the response

    “• Refresh of the requirements of the referral to Tissue Viability service process in response to the issues of the delay in escalation to the specialist Tissue Viability Nursing Team despite clear signs of deterioration, and No evidence of a robust system to track the status of a referral to the Tissue Viability Nursing Team”

    Source location

    2019-0433-Response-from-Stockport-NHS-Redacted
    Page 2 · response
    Published 31 December 2019

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Require Fernlea staff to obtain email read receipts, telephone the service the following day, and record confirmed visit dates.

    Verbatim wording from the response

    “It is now standard practice for Fernlea nursing home to ensure a read receipt is requested so that the referring home can check to ensure that the email has been accessed / read by the Tissue Viability Team. In addition a follow up telephone call is made to the service the following day, irrespective of the pressure ulcer urgency status; during this call the date for a visit from the team is confirmed and added to the nursing home diary.”

    Source location

    2019-0433-Response-from-Stockport-NHS-Redacted
    Page 3 · response
    Published 31 December 2019

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Complete the extended comprehensive inspection of Fernlea Care Home, examining pressure-ulcer management and management oversight.

    Verbatim wording from the response

    “The matters of concerns which arose from the preventing future deaths report were reviewed by CQC and a decision was made to undertake an unannounced, focused inspection of the Fernlea Care Home. This was because the concerns indicated that the registered provider may have been/may still be in breach of the following fundamental standards:”

    Source location

    2019-0433-Response-from-the-Care-Quality-Commission-Redacted
    Page 3 · response
    Published 31 December 2019

    Open published response
  10. Avon

    AI-generated summary

    Alice Marie Sloman · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Alice Marie Sloman died after a routine general anaesthetic for an MRI scan precipitated cardiac decompensation associated with an undiagnosed cardiomyopathy. The principal concern was that, despite multiple conditions and her parents’ requests, she was not referred for investigation of an underlying disorder, including a clinical geneticist’s opinion, and her serious cardiomyopathy therefore went undiagnosed.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure to refer patients with multiple developmental, sensory and physical conditions for investigation of an underlying disorder by a clinical geneticist

    Wider context from the report

    “The evidence demonstrated that Alice was under the care of a consultant community paediatrician, a consultant general paediatrician with an interest in endocrinology and a consultant paediatric endocrinologist presenting with a number of conditions (Growth hormone deficiency, Autistic Spectrum disorder, developmental delay, visual impairment, mobility impairment, poor coordination/dyspraxia and hypermobility) over a 4 year period but was not referred for investigation of an underlying disorder, specifically a clinical geneticist’s opinion, despite her parents requesting this on at least 2 separate occasions which are documented and despite such facility being readily available in Exeter. The evidence demonstrated that as a result her underlying condition, and specifically a serious cardiomyopathy, went undiagnosed resulting in her dying unexpectedly and prematurely as a result of a routine general anaesthetic. ”

    Source location

    Alice Marie Sloman · Prevention of Future Deaths report
    Page 2 · concerns

    Open source report

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Develop a patient information leaflet explaining lead clinician responsibility for patients attending regional clinics.

    Verbatim wording from the response

    “Extensive discussions have taken place between the two Trusts, at specialty and senior level, to finalise the Principles of Shared Care for Endocrine referred to at the Inquest. In addition, we have developed a patient information leaflet to ensure that patients and their families understand which lead clinician has overall responsibility for their care when they are treated at a regional clinic. This action is key to addressing your concern that Alice was under the care of a number of clinicians, yet a referral to a geneticist was not made.”

    Source location

    2019-0442-Response-from-Bristol-NHS-Foundation-Redacted-2
    Page 1 · response
    Published 3 January 2020

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Finalise and adopt Principles of Shared Care for Endocrine and a corresponding patient information leaflet by the end of March 2020.

    Verbatim wording from the response

    “Extensive discussions have taken place between the two Trusts, at specialty and senior level, to finalise the Principles of Shared Care for Endocrine referred to at the Inquest. In addition, we have developed a patient information leaflet to ensure that patients and their families understand which lead clinician has overall responsibility for their care when they are treated at a regional clinic. This action is key to addressing your concern that Alice was under the care of a number of clinicians, yet a referral to a geneticist was not made.”

    Source location

    2019-0442-Response-from-Bristol-NHS-Foundation-Redacted-2
    Page 1 · response
    Published 3 January 2020

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Formalise regional-clinic agreements through Service Level Agreements defining accountability and responsibility.

    Verbatim wording from the response

    “In respect of our wider obligations, the Divisional Director for the Women’s and Children’s Division at UHB met with our Medical Director for Specialist Commissioning (South West) of NHS England on 10 December 2019 to discuss the regional clinics hosted by UHB. It has been agreed that Service Level Agreements will formalise the agreements in place with clear lines of accountability and responsibility. As part of the ‘hub and spoke model’ detailed within the Principles, we support a number of specialties in the region. The review of the governance and operational management of the regional clinics is underway and it is envisaged that this will be completed within the next 12 months.”

    Source location

    2019-0442-Response-from-Bristol-NHS-Foundation-Redacted-2
    Page 2 · response
    Published 3 January 2020

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Review paediatric communication and care-coordination processes and recommend improvements to Trust governance groups.

    Verbatim wording from the response

    “Communication between teams within the Trust and with local partners in care. It has been agreed that the clinicians responsible for investigating and supporting Alice did not have access to all the relevant information about her day to day problems that would have prompted consideration of further investigation, including referral to the Clinical Genetics service. The leads of the Paediatric service at TSDFT have undertaken to review the processes in place”

    Source location

    2019-0442-Response-from-Torbay-and-South-Devon-NHS-Trust-Redacted
    Page 1 · response
    Published 3 January 2020

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Hold a paediatric meeting with the Regional Clinical Genetics Service to review referral guidance and disseminate it to the paediatric clinical teams.

    Verbatim wording from the response

    “Detailed discussion has taken place since the findings of the inquest between the clinical leads of the Paediatric service at TSDFT and the lead clinician of the Regional Clinical Genetics Service in Exeter. A plan has been agreed to ensure that there is good understanding across the specialty of Paediatrics at TSDFT of the place of genetic testing in reaching a diagnosis where there are complex features. Actions include:”

    Source location

    2019-0442-Response-from-Torbay-and-South-Devon-NHS-Trust-Redacted
    Page 2 · response
    Published 3 January 2020

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Provide twice-yearly educational contact from the Regional Clinical Genetics Service at established paediatric clinical education meetings.

    Verbatim wording from the response

    “Action 6. A twice yearly educational contact at established clinical educational meetings held by the senior TSDFT Paediatric team starting on the 26th February and then in September 2020. Lead – Clinical Service Lead for Paediatrics.”

    Source location

    2019-0442-Response-from-Torbay-and-South-Devon-NHS-Trust-Redacted
    Page 2 · response
    Published 3 January 2020

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Assess paediatric clinicians’ individual needs for genetic-care updates and support any additional training costs.

    Verbatim wording from the response

    “Action 7. Agreement that individual members of clinical teams consider their personal needs for update in relation to the genetic aspects of paediatric care. Any additional training and its cost will be supported by the Trust. Clinical Service Lead to assess completion by 1st May 2020.”

    Source location

    2019-0442-Response-from-Torbay-and-South-Devon-NHS-Trust-Redacted
    Page 2 · response
    Published 3 January 2020

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Establish a regular Regional Clinical Genetics advice point during or after monthly clinics.

    Verbatim wording from the response

    “Action 8. Establishment of a regular advice point during/after the monthly clinics undertaken by the Regional Clinical Genetics Service in TSDFT. Commencing May 2020. Lead Clinical Service Lead and Operational Manager for Paediatrics.”

    Source location

    2019-0442-Response-from-Torbay-and-South-Devon-NHS-Trust-Redacted
    Page 2 · response
    Published 3 January 2020

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Provide Genomics nurse attendance at a paediatric departmental meeting to explain the Regional Genetic Service.

    Verbatim wording from the response

    “Detailed discussion has taken place since the findings of the inquest between the clinical leads of the Paediatric service at TSDFT and the lead clinician of the Regional Clinical Genetics Service in Exeter. A plan has been agreed to ensure that there is good understanding across the specialty of Paediatrics at TSDFT of the place of genetic testing in reaching a diagnosis where there are complex features. Actions include:”

    Source location

    2019-0442-Response-from-Torbay-and-South-Devon-NHS-Trust-Redacted
    Page 2 · response
    Published 3 January 2020

    Open published response
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Data last updated 7 September 2026