Select SUDEP or Non-SUDEP to filter concerns and reports. Counts are PFD reports, not deaths.
About this dataset
We searched all 6,433 reports in the published corpus using a fixed text-search method, then assessed 317 candidates against source-based inclusion criteria. Ninety reports were included. Epilepsy had to be materially relevant to the death or a substantive coroner’s concern; incidental mentions were excluded.
Eligibility and SUDEP assignment were assessed with GPT-5.6 Sol and checked for valid source quotations. Assignment uses a balance-of-probabilities threshold: SUDEP or non-SUDEP must be more likely than not on the report’s evidence. The exact term SUDEP need not appear. Genuinely unclear eligible reports remain in All only. These are model-assisted documentary assessments, not independently validated clinical diagnoses.
The search can miss reports with sparse terminology or incomplete source text. This dataset does not represent all epilepsy deaths. Recurring concerns and responses are taken from the existing published evidence. Published corpus snapshot: 7 September 2026. Cohort selection updated 5 November 2026. The title shows the first and last included reports’ publication dates.
Reports over time
Matching reports published each year within the selected date range.
* 2026 is projected from reports observed to 7 Sep 2026.
Only concerns related to the selected recurring concern and their linked actions and positions are shown. Other concerns are counted within each report.
Actions and positions describe what recipients stated in published responses. Select a statement to read its source wording.
East London
Concerns raised3
Lack of guidance on contacting the secondary care team after recurrent seizures
Lack of discharge guidance on maintaining medication compliance despite prolonged seizure freedom
Lack of discharge guidance on notifying clinicians about recurrent seizures
This report raised 4 other concerns. They are not shown here because they do not form part of this recurring concern.
Responses linked to these concerns
Each statement is shown once, even when linked to more than one concern.
No linked response statements
No respondent-stated action or position is linked to these concerns in the published data.
East Sussex
Concerns raised3
Lack of prison staff training in managing long-term health conditions on the wings
Lack of individualized seizure care planning and monitoring
Deficit in national policy for managing and supporting prisoners with epilepsy and seizures
This report raised 3 other concerns. They are not shown here because they do not form part of this recurring concern.
Responses linked to these concerns
Each statement is shown once, even when linked to more than one concern.
Actions described in response An action is something a respondent says it has done, is doing, or plans to do in response to the concern raised.7
Action
Deliver First Aid at Work and Emergency First Aid training to identified prison staff, including responses to seizures.
Stated by HM Prison and Probation ServiceStatus unclearThe respondent did not make the status of this action clear when they made their response on 19 January 2024.
Action
Create and maintain a SystmOne care plan hub with epilepsy templates and review-template links.
Stated by Practice Plus Group Health And Rehabilitation Services LimitedStated completedThe respondent said that this action was complete when they made their response on 19 January 2024.
Action
Use SystmOne recalls to schedule, monitor and allocate long-term-condition reviews.
Stated by Practice Plus Group Health And Rehabilitation Services LimitedStated in progressThe respondent said that this action was in progress when they made their response on 19 January 2024.
Action
Review samples of epilepsy care plans for quality improvement and alignment with national guidelines.
Stated by Practice Plus Group Health And Rehabilitation Services LimitedStated in progressThe respondent said that this action was in progress when they made their response on 19 January 2024.
Action
Complete epilepsy reviews and agree individualized care plans with patients.
Stated by Practice Plus Group Health And Rehabilitation Services LimitedStated in progressThe respondent said that this action was in progress when they made their response on 19 January 2024.
Action
Audit and monitor long-term-condition care plans to maintain progress.
Stated by Practice Plus Group Health And Rehabilitation Services LimitedStated completedThe respondent said that this action was complete when they made their response on 19 January 2024.
Action
Train healthcare staff to use the care planning hub through workshops, updates and guidance.
Stated by Practice Plus Group Health And Rehabilitation Services LimitedStated completedThe respondent said that this action was complete when they made their response on 19 January 2024.
Respondent positions A position is what a respondent says about the concern when they do not describe a specific action.2
Position
Training prison staff to manage epilepsy and seizures is a matter for His Majesty’s Prison and Probation Service.
Stated by Practice Plus Group Health And Rehabilitation Services LimitedRedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.
Position
Healthcare provider PPG is responsible for seizure care plans, diaries and long-term health management; prison staff facilitate its instructions.
Stated by HM Prison and Probation ServiceRedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.
Inner North London
Concerns raised2
Lack of seizure-response training for prison staff
Unavailability of guidance for prisoners responding to a cellmate’s fit
This report raised 3 other concerns. They are not shown here because they do not form part of this recurring concern.
Responses linked to these concerns
Each statement is shown once, even when linked to more than one concern.
Actions described in response An action is something a respondent says it has done, is doing, or plans to do in response to the concern raised.1
Action
Schedule training for prison staff at HMP Pentonville on responding to fits.
Stated by HM Prison and Probation ServiceStated plannedThe respondent said that this action was planned when they made their response on 22 September 2023.
Respondent positions A position is what a respondent says about the concern when they do not describe a specific action.1
Position
Prison authorities, rather than healthcare, are responsible for addressing staff training and prisoner guidance on managing seizures and first aid.
Stated by Practice Plus GroupRedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.
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