Select SUDEP or Non-SUDEP to filter concerns and reports. 3 reports could not be assigned and remain in All only. Counts are PFD reports, not deaths.
About this dataset
We searched all 6,433 reports in the published corpus using a fixed text-search method, then assessed 317 candidates against source-based inclusion criteria. Ninety reports were included. Epilepsy had to be materially relevant to the death or a substantive coroner’s concern; incidental mentions were excluded.
Eligibility and SUDEP assignment were assessed with GPT-5.6 Sol and checked for valid source quotations. Assignment uses a balance-of-probabilities threshold: SUDEP or non-SUDEP must be more likely than not on the report’s evidence. The exact term SUDEP need not appear. Genuinely unclear eligible reports remain in All only. These are model-assisted documentary assessments, not independently validated clinical diagnoses.
The search can miss reports with sparse terminology or incomplete source text. This dataset does not represent all epilepsy deaths. Recurring concerns and responses are taken from the existing published evidence. Published corpus snapshot: 7 September 2026. Cohort selection updated 5 November 2026. The title shows the first and last included reports’ publication dates.
Reports over time
Matching reports published each year within the selected date range.
* 2026 is projected from reports observed to 7 Sep 2026.
Only concerns related to the selected recurring concern and their linked actions and positions are shown. Other concerns are counted within each report.
Actions and positions describe what recipients stated in published responses. Select a statement to read its source wording.
Inner North London
Concerns raised2
Lack of ongoing first aid training for prison officers
Low first aid understanding among prison officers
This report raised 3 other concerns. They are not shown here because they do not form part of this recurring concern.
Responses linked to these concerns
Each statement is shown once, even when linked to more than one concern.
Actions described in response An action is something a respondent says it has done, is doing, or plans to do in response to the concern raised.3
Action
Publish, introduce and circulate the national First Aid and Emergency Aid Manual to prison staff at HMP Pentonville.
Stated by HM Prison and Probation ServiceStated completedThe respondent said that this action was complete when they made their response on 22 September 2023.
Action
Distribute emergency response pocket cards to prisons and staff as reminders of how to respond to medical emergencies.
Stated by HM Prison and Probation ServiceStated completedThe respondent said that this action was complete when they made their response on 22 September 2023.
Action
Issue emergency response guides to all prisons, covering required actions and circumstances for calling a medical emergency response code.
Stated by HM Prison and Probation ServiceStated completedThe respondent said that this action was complete when they made their response on 22 September 2023.
Respondent positions A position is what a respondent says about the concern when they do not describe a specific action.1
Position
Prison authorities, rather than healthcare, are responsible for addressing staff training and prisoner guidance on managing seizures and first aid.
Stated by Practice Plus GroupRedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.
Surrey
Concerns raised2
Lack of requirements for contracted pupil-transport bus companies to ensure driver Basic Life Support training
Lack of a Basic Life Support qualification requirement for pupil-transport drivers
This report raised 4 other concerns. They are not shown here because they do not form part of this recurring concern.
Responses linked to these concerns
Each statement is shown once, even when linked to more than one concern.
Actions described in response An action is something a respondent says it has done, is doing, or plans to do in response to the concern raised.2
Action
Consult on a revised version of the guidance on school transport.
Stated by Department for EducationStated plannedThe respondent said that this action was planned when they made their response on 25 May 2016.
Action
Consider clarifying training expectations for school bus drivers and escorts, including basic life support and emergency healthcare protocols.
Stated by Department for EducationStated plannedThe respondent said that this action was planned when they made their response on 25 May 2016.
Respondent positions A position is what a respondent says about the concern when they do not describe a specific action.2
Position
Responsibility for requiring bus companies to provide drivers with basic life support training rests with the Department for Transport.
Stated by Department for EducationRedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.
Position
Mandatory basic life-support training for bus drivers is not proposed because existing guidance and flexible Driver CPC arrangements are considered sufficient.
Stated by Department for TransportExisting arrangements considered sufficientThe respondent said that existing arrangements were sufficient, so no further action was needed.
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