First reported 7 May 2021•Latest report 7 Jan 2026
Definition
What this concern includes
Includes failures of controls specifically dedicated to recognising and supporting people affected by ARFID, including professional awareness, clinical approach, referral to appropriately experienced dieticians or other specialists, and availability or coordination of required long-term specialist support.
Not included
Excludes generic autism, eating-disorder, feeding, mental-health or social-care deficiencies unless they are explicitly tied to recognising or supporting ARFID.
Excludes generic professional training, communication or referral failures that do not concern the ARFID pathway.
Excludes failures in treatment or support for other conditions where ARFID is not materially part of the reported unsafe condition.
Excludes neutral descriptions of ARFID prevalence or service activity without an identified recognition or specialist-support deficiency.
Reports
3
Distinct published reports
Individual concerns
5
A report can raise multiple concerns
Date range
2021–2026
First to latest report issue date
Stated actions
18
Described in published responses
Reports over time
Reports over time
Reports about this concern issued each year.
* 2026 is projected from reports observed to 7 Sep 2026.
Most frequent recipients
Most frequent recipients
Reports about this concern sent to each recipient.
Department for Education1
Department of Health and Social Care1
Health Centre1
National Institute for Health and Care Excellence1
NHS England1
NHS Greater Manchester Integrated Care Board1
NHS Nottingham and Nottinghamshire Integrated Care Board1
Walsall Borough Council1
Walsall Healthcare NHS Trust1
Executive non-departmental public body2
Integrated care board2
English metropolitan district council1
Ministerial department1
Multi-service care provider1
NHS trust1
Concerns and responses across reports
Only concerns grouped under this recurring concern are included. Select any concern, action or position to view the source wording.
Black Country
Concerns raised1
Failure to provide onward referral to dieticians experienced in autism and ARFID
This report raised 3 other concerns. They are not shown here because they do not form part of this recurring concern.
Responses linked to these concerns
Each statement is shown once, even when linked to more than one concern.
Actions described in response An action is something a respondent says it has done, is doing, or plans to do in response to the concern raised.1
Action
Publish guidance for commissioners and providers on children’s eating disorder services, including ARFID care and reasonable adaptations for additional needs.
Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 20 January 2026.
Manchester South
Concerns raised2
Failure to establish effective cross-sector strategies for identifying and managing ARFID
Lack of professional awareness of ARFID and how to approach it
This report raised 6 other concerns. They are not shown here because they do not form part of this recurring concern.
Responses linked to these concerns
Each statement is shown once, even when linked to more than one concern.
Actions described in response An action is something a respondent says it has done, is doing, or plans to do in response to the concern raised.9
Action
Refresh children’s and young people’s eating-disorder guidance to strengthen ARFID identification, intervention, tailored care and cross-service integration.
Stated by Department for Education and Department of Health and Social CareStated in progressThe respondent said that this action was in progress when they made their response on 22 February 2024.
Action
Refer the report to NICE’s surveillance team for consideration of ARFID inclusion in future eating-disorders guideline surveillance.
Stated by National Institute for Health and Care ExcellenceStated plannedThe respondent said that this action was planned when they made their response on 22 February 2024.
Action
Deliver ARFID awareness and training sessions to health, education, social care and school nursing staff.
Stated by NHS Greater Manchester Integrated Care BoardStated in progressThe respondent said that this action was in progress when they made their response on 22 February 2024.
Action
Map current ARFID-related provision across Health, Education and Social Care.
Stated by NHS Greater Manchester Integrated Care BoardStated plannedThe respondent said that this action was planned when they made their response on 22 February 2024.
Action
Roll out a restricted-eating dietetic referral pathway with parental support tools, professional training and screening through food diaries.
Stated by NHS Greater Manchester Integrated Care BoardStated in progressThe respondent said that this action was in progress when they made their response on 22 February 2024.
Action
Develop and make a seven-minute ARFID briefing available across all Partnership agencies.
Stated by NHS Greater Manchester Integrated Care BoardStated plannedThe respondent said that this action was planned when they made their response on 22 February 2024.
Action
Complete a dedicated ARFID away day for Stockport school nurses to develop nutritional assessment skills and introduce the new dietetic pathway.
Stated by NHS Greater Manchester Integrated Care BoardStated in progressThe respondent said that this action was in progress when they made their response on 22 February 2024.
Action
Make Royal College of Child Psychiatrists ARFID guidance available to all Stockport paediatricians.
Stated by NHS Greater Manchester Integrated Care BoardStated completedThe respondent said that this action was complete when they made their response on 22 February 2024.
Action
Share learning from Alfie’s death across NHS Greater Manchester professional networks and relevant services.
Stated by NHS Greater Manchester Integrated Care BoardStated completedThe respondent said that this action was complete when they made their response on 22 February 2024.
Respondent positions A position is what a respondent says about the concern when they do not describe a specific action.1
Position
Insufficient evidence means NICE cannot yet develop reliable, valuable guidance on ARFID and medical emergencies in eating disorders.
Stated by National Institute for Health and Care ExcellenceUnable to actThe respondent said that a constraint prevented them from taking the relevant action.
Nottinghamshire
Concerns raised2
Failure of existing service eligibility pathways to provide support for ASD-related diet concerns
Lack of commissioned specialist long-term dietetic support for ASD patients with ARFID symptoms
Responses linked to these concerns
Each statement is shown once, even when linked to more than one concern.
Actions described in response An action is something a respondent says it has done, is doing, or plans to do in response to the concern raised.8
Action
Review clinical cases to identify current ARFID provision and service gaps.
Stated by NHS Nottingham and Nottinghamshire Integrated Care BoardStated completedThe respondent said that this action was complete when they made their response on 22 November 2021.
Action
Review current ARFID service provision.
Stated by NHS Nottingham and Nottinghamshire Integrated Care BoardStated plannedThe respondent said that this action was planned when they made their response on 22 November 2021.
Action
Develop a preferred all-ages ARFID pathway with service-delivery recommendations.
Stated by NHS Nottingham and Nottinghamshire Integrated Care BoardStated plannedThe respondent said that this action was planned when they made their response on 22 November 2021.
Action
Obtain approval for the preferred ARFID pathway and required resources.
Stated by NHS Nottingham and Nottinghamshire Integrated Care BoardStated plannedThe respondent said that this action was planned when they made their response on 22 November 2021.
Action
Implement the agreed all-ages ARFID pathway.
Stated by NHS Nottingham and Nottinghamshire Integrated Care BoardStated plannedThe respondent said that this action was planned when they made their response on 22 November 2021.
Action
Explore development of expanded ARFID-related roles within primary care.
Stated by NHS Nottingham and Nottinghamshire Integrated Care BoardStated plannedThe respondent said that this action was planned when they made their response on 22 November 2021.
Action
Undertake a skills audit and training-needs analysis across specialist and non-specialist services.
Stated by NHS Nottingham and Nottinghamshire Integrated Care BoardStated plannedThe respondent said that this action was planned when they made their response on 22 November 2021.
Action
Explore workforce competencies around ARFID with Health Education England.
Stated by NHS Nottingham and Nottinghamshire Integrated Care BoardStated plannedThe respondent said that this action was planned when they made their response on 22 November 2021.
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Includes failures of controls specifically dedicated to recognising and supporting people affected by ARFID, including professional awareness, clinical approach, referral to appropriately experienced dieticians or other specialists, and availability or coordination of required long-term specialist support.
