Recurring concern

Unclear accountability for allergy services and provision

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First reported 27 Jan 2020•Latest report 6 Apr 2023

Definition

What this concern includes

Includes failures to assign, document or maintain clear accountability for allergy services and provision at national or system level, including the absence of named responsibility within NHS England or the Department of Health.

Not included

  • Excludes generic governance, leadership or accountability deficiencies that are not specifically tied to allergy services and provision.
  • Excludes failures in allergy diagnosis, treatment, referral, communication or clinical guidance where accountability for allergy services is not the unsafe condition.
  • Excludes local accountability for an individual patient's allergy care unless the assertion explicitly concerns the same system-level accountability for allergy services and provision.
  • Excludes neutral descriptions of allergy services or organisational structure without an identified absence or unreliability of accountable ownership.
Reports
2

Distinct published reports

Individual concerns
3

A report can raise multiple concerns

Date range
2020–2023

First to latest report issue date

Stated actions
1

Described in published responses

Reports over time

Reports over time

Reports about this concern issued each year.

* 2026 is projected from reports observed to 7 Sep 2026.

Most frequent recipients

Most frequent recipients

Reports about this concern sent to each recipient.

Department of Health and Social Care2
Medicines and Healthcare products Regulatory Agency2
Advanced Health And Care Limited1
Association of Ambulance Chief Executives1
Bausch & Lomb U.K. Limited1
London Ambulance Service NHS Trust1
London Central & West Unscheduled Care Collaborative Limited1
National Institute for Health and Care Excellence1
NHS Enfield Clinical Commissioning Group1
NHS England1
NHS West and North London Integrated Care Board1
UK Fatal Anaphylaxis Registry1
Winchmore Surgery1

Concerns and responses across reports

Only concerns grouped under this recurring concern are included. Select any concern, action or position to view the source wording.

  1. Berkshire

    AI-generated summary

    Alexandra Briess · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Alexandra Briess underwent tonsillectomy, later required surgery for post-operative bleeding, and suffered sudden deterioration and cardiac arrest during anaesthesia on 30 May 2021. She died on 31 May 2021, with the most likely cause identified as an anaphylactic reaction to Rocuronium; there were no concerns about her clinical management. The principal concerns were the lack of national leadership and funding for anaphylaxis work, mandatory reporting of fatal anaphylaxis, and improved national data gathering, research and information sharing.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Lack of named accountability for allergy services and provision

    Wider context from the report

    ““The issues within this Prevention of Future Deaths report are predominantly national issues, but I heard at inquest that there is no person with named accountability for allergy services and allergy provision at NHS England, or the Department of Health as a whole.” ”

    Source location

    Alexandra Briess · Prevention of Future Deaths report
    Page 2 · concerns

    Open source report

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Lack of national leadership for anaphylaxis work

    Wider context from the report

    “It seems clear to all coroners in these cases, and those involved in this area of medical expertise, that the only way to improve understanding and prevent or reduce future deaths is to gather information nationally and fund appropriate research. Appropriate organisations already exist, and there is a lot of goodwill towards improving understanding in this area. It does however require national leadership and “joining up” of these organisations. 1. I have tried to make my list of issues clear and succinct. Paragraph 2 below sets out the crux of this ongoing risk. 2. There is significant goodwill and desire to improve amongst numerous organisations involved in anaphylaxis work. What is lacking is national leadership and funding. In my view, consideration should be given to creating a leadership role and responsibility within NHS England to coordinate a national approach. 3. As considered by other coroners before me, it should be mandatory to refer fatal anaphylaxis cases. UKFAR has indicated that they would be prepared to take on the role of receiving these reports (to avoid duplication for reporting clinicians), with the responsibility to forward the relevant information to other organisations such as the MHRA, where appropriate. Whilst my focus is on fatal anaphylaxis, inclusion of non-fatal cases would be a matter for the lead role to consider. 4. Gathering data and using this to research and reduce the risk of future deaths requires funding, and this should be reviewed. ”

    Source location

    Alexandra Briess · Prevention of Future Deaths report
    Page 4 · concerns

    Open source report

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Establish and jointly chair an Expert Advisory Group for Allergy to identify priority policy areas and advise on improving outcomes.

    Verbatim wording from the response

    “An Expert Advisory Group for Allergy (EAGA) has recently been established, which brings together key stakeholders with the aim improving the quality-of-life of people with allergies. Chaired jointly by the Department of Health and Social Care and the National Allergy Strategy Group, the EAGA identifies priority areas for the Department, NHSE and other government department and agencies relating to allergy that require policy change or development and advises on how to best achieve improved outcomes.”

    Source location

    Response from Department of Health and Social Care
    Page 2 · response
    Published 14 April 2023

    Open published response

    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    NHS England is responsible for national clinical policy and strategy for allergy services in England, rather than the Department.

    Verbatim wording from the response

    “In relation to national accountability for allergy services, following the reforms initiated by the Health and Social Care Act 2012, NHS England (NHSE) is responsible for clinical policy and strategy in the NHS in England (including for allergies) and is held to account through the annual NHS mandate.”

    Source location

    Response from Department of Health and Social Care
    Page 2 · response
    Published 14 April 2023

    Open published response

    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Existing NHS England allergy advisory structures and its process for reviewing National Clinical Director posts address national leadership without requiring an allergy director now.

    Verbatim wording from the response

    “While there is indeed currently no National Clinical Director (or ‘Tsar’) for allergy in England, NHSE has a clinical reference group (CRG) for Specialised Immunology and Allergy Services that provides advice on specialised services and commissioning policies and quality standards. The CRG is chaired by NHSE’s National Specialty Advisor (NSA) for clinical immunology and allergy, Dr Claire Bethune, a clinical immunologist, and allergy clinical immunology expert clinicians are among the membership.”

    Source location

    Response from Department of Health and Social Care
    Page 2 · response
    Published 14 April 2023

    Open published response
  2. Inner North London

    AI-generated summary

    Shanté Andrée Marie TURAY-THOMAS · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Shanté Andrée Marie Turay-Thomas ate hazelnuts on 18 September 2018 and died soon afterwards from acute anaphylaxis. The report identifies concerns about inadequate allergy care, advice and training concerning adrenaline auto-injectors, prescribing and clinical communication, and errors in the NHS 111 response and ambulance categorisation.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Lack of named accountability for allergy services and provision

    Wider context from the report

    “20. The issues within this prevention of future deaths report are predominantly national issues, but I heard at inquest that there is no person with named accountability for allergy services and allergy provision at NHS England or the Department of Health as a whole. ”

    Source location

    Shanté Andrée Marie TURAY-THOMAS · Prevention of Future Deaths report
    Page 7 · concerns

    Open source report

    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Matters of concern 1–14 and 20 do not concern NHS Pathways and fall outside its remit.

    Verbatim wording from the response

    “HM Coroner raised matters of concern numbered 1 - 20 in the PFD report. Matters of concern 1 – 14 and 20 are not applicable to NHS Pathways. We set out below our response to matters of concern 15 to 19.”

    Source location

    2020-0124-Response-from-NHS-Digital_Redacted-1.pdf
    Page 1 · response
    Published 13 August 2020

    Open published response

    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Commissioning and management of general allergy services is a local responsibility rather than a national departmental responsibility.

    Verbatim wording from the response

    “The commissioning and management of general allergy services is a local matter. For most patients (around 95 per cent) allergic diseases can be managed by primary or other non-specialist allergy services with routine therapy. Approximately five per cent of patients with allergies require treatment in a secondary service, and of those, around”

    Source location

    2020-0124-Response-from-Department-of-Health-and-Social-Care_Redacted.pdf
    Page 2 · response
    Published 13 August 2020

    Open published response

    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    NHSEI is responsible for clinical policy and strategy for allergies in the NHS in England, including specialised allergy services.

    Verbatim wording from the response

    “20,000 (0.1 per cent) require referral to a specialist centre. These specialist services are commissioned at a national level by NHSEI to an agreed delivery specification.”

    Source location

    2020-0124-Response-from-Department-of-Health-and-Social-Care_Redacted.pdf
    Page 3 · response
    Published 13 August 2020

    Open published response
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Data last updated 7 September 2026