Mia Maisie Lucas · Prevention of Future Deaths report

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Issued 5 Feb 2026•South Yorkshire (Western)

Published report and response evidence

This report’s concerns and statements found in recipients’ published responses. Statements are included even where no link to an individual concern is recorded. A link shows an evidence connection; it does not assign responsibility.

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Concerns
2

Raised in this report

Recipients
1

Named on the report

Responses found
4

Of 1 recipient

Stated actions
4

Described in responses

Recipients and published responses

Full report text

This is the full text from the original published report.

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Concerns and recipient responses

Select any concern, action or position to view the source wording.

Report evidence summary

Concerns raised2

  1. Lack of national guidance for clinicians on how to diagnose Autoimmune Encephalitis
  2. Lack of national guidance for clinicians on when to consider Autoimmune Encephalitis

Stated actions An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.4

  1. NHS England

    Update national encephalitis guidelines with expanded guidance on managing Autoimmune Encephalitis.

  2. NHS England

    Discuss all Prevention of Future Deaths reports through the Regulation 28 Working Group and share key learning nationally and regionally.

  3. Royal College of Psychiatrists

    Complete national clinical guidance on autoimmune encephalitis and autoimmune psychosis through cross-specialty, expert and lived-experience collaboration.

  4. Royal College of Psychiatrists

    Formally release the national autoimmune encephalitis and autoimmune psychosis guidance within six months.

Respondent positions A position is what a recipient says about a concern when it does not describe a specific action.4

  1. British Paediatric Neurology Association

    Improving the turnaround of NMDA receptor antibody testing is assigned for support through the Department of Health.

    Redirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.
  2. British Paediatric Neurology Association

    Commissioning a NICE guideline on autoimmune encephalitis is assigned to the Secretary of State for Health and Social Care.

    Redirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.
  3. Department of Health and Social Care

    NHS England is responsible for directly addressing concerns about national guidance on considering and diagnosing autoimmune encephalitis.

    Redirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.
  4. NHS England

    National encephalitis guidelines already include guidance on autoimmune encephalitis, although they are currently being updated.

    Disputes the concernThe respondent disagreed with part of the concern or the basis for it.

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of national guidance for clinicians on how to diagnose Autoimmune Encephalitis

Wider context from the report

“The Court heard there is no national guidance for clinicians on when to consider, and how to diagnose, Autoimmune Encephalitis. Without this I am of the view there is a risk the condition will not be identified which gives rise to a risk that deaths will occur in the future. ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of national guidance for clinicians on when to consider Autoimmune Encephalitis

Wider context from the report

“The Court heard there is no national guidance for clinicians on when to consider, and how to diagnose, Autoimmune Encephalitis. Without this I am of the view there is a risk the condition will not be identified which gives rise to a risk that deaths will occur in the future. ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Update national encephalitis guidelines with expanded guidance on managing Autoimmune Encephalitis.

Verbatim wording from the response

“Your Report raised concern that there is no national guidance for clinicians on when to consider, and how to diagnose, Autoimmune Encephalitis.”

Source location

Response from NHS England
Page 1 · response
Published 12 February 2026

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Discuss all Prevention of Future Deaths reports through the Regulation 28 Working Group and share key learning nationally and regionally.

Verbatim wording from the response

“I would also like to provide further assurances on the national NHS England work taking place around the Reports to Prevent Future Deaths. All reports received are discussed by the Regulation 28 Working Group, comprising Regional Medical Directors, and other clinical and quality colleagues from across the regions. This ensures that key learnings and insights around events, such as the sad death of Mia,”

Source location

Response from NHS England
Page 1 · response
Published 12 February 2026

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Complete national clinical guidance on autoimmune encephalitis and autoimmune psychosis through cross-specialty, expert and lived-experience collaboration.

Verbatim wording from the response

“Independent of this particular tragic case, the College has undertaken the development of national clinical guidance on autoimmune encephalitis and autoimmune psychosis, it is in the final stages of drafting. This work has been undertaken as a priority in response to a recognised national need and is directly relevant to cases such as that of Miss Lucas, in which diagnostic uncertainty and service interface challenges have been shown to carry significant risk.”

Source location

Response from Royal College of Psychiatrists
Page 2 · response
Published 12 February 2026

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Formally release the national autoimmune encephalitis and autoimmune psychosis guidance within six months.

Verbatim wording from the response

“The forthcoming guidance is expected to provide:”

Source location

Response from Royal College of Psychiatrists
Page 3 · response
Published 12 February 2026

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Improving the turnaround of NMDA receptor antibody testing is assigned for support through the Department of Health.

Verbatim wording from the response

“One other issue that is worth commenting on is that there is inequality across the UK in testing for NMDA receptor antibodies. We asked Paediatric Neurology centres in the UK how long they were waiting for their antibody results and more than half of centres are waiting for more than 3 weeks with over a third waiting for at least 6 weeks. This delay in diagnosis means delayed treatment which is associated with significantly poorer outcomes. It would be important to work to a more rapid turnaround of NMDA receptor antibody tests across the UK in order to improve outcomes from this condition which would mean utilising laboratories who can provide results in less than one week. There are a number of bureaucratic hurdles to cross to facilitate this – again something that could be supported through Department of Health.”

Source location

Response from British Paediatric Neurology Association
Page 2 · response
Published 12 February 2026

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Commissioning a NICE guideline on autoimmune encephalitis is assigned to the Secretary of State for Health and Social Care.

Verbatim wording from the response

“However, it would be very valuable to have a NICE (National Institute for Health and Care Excellence) Guideline on Autoimmune Encephalitis to provide best-practice advice in diagnosing and managing Auto-immune encephalitis in the UK and standardising care across the UK for children and young people presenting with Autoimmune Encephalitis. I note that you copied your report to Wes Streeting (as I have in my reply) who would be in a position to”

Source location

Response from British Paediatric Neurology Association
Page 1 · response
Published 12 February 2026

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

NHS England is responsible for directly addressing concerns about national guidance on considering and diagnosing autoimmune encephalitis.

Verbatim wording from the response

“In considering your report, officials within the Department of Health and Social Care have made enquiries with NHS England and concluded that these concerns are more appropriately addressed by NHS England directly. I am advised that NHS England will therefore provide you with a full and comprehensive response on the concerns you have raised.”

Source location

Response from Department for Health and Social Care
Page 1 · response
Published 12 February 2026

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

National encephalitis guidelines already include guidance on autoimmune encephalitis, although they are currently being updated.

Verbatim wording from the response

“Your Report raised concern that there is no national guidance for clinicians on when to consider, and how to diagnose, Autoimmune Encephalitis.”

Source location

Response from NHS England
Page 1 · response
Published 12 February 2026

Open published response
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Information checked against the published report and official responses · Data reviewed 7 Sep 2026 · About data quality and limitations

Official responses located
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Data last updated 7 September 2026