PFD report

Pamela SINGH · Prevention of Future Deaths report

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Issued 18 Sep 2025•South Wales Central

Report record

Published report and response evidence

This page connects the concerns raised in this report with statements found in recipients’ published responses. A link shows a clear evidence connection; it does not assign responsibility.

View original report
Concerns
7

Raised in this report

Recipients
1

Named on the report

Responses found
1

Of 1 recipient

Stated actions
8

Described in responses

Recipients and published responses

Source document

Full report text

This is the full text from the original published report.

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Concerns and recipient responses

Select any concern, action or position to view the source wording.

Report evidence summary

Concerns raised7

  1. Delays in recognising acute deterioration in people with learning disabilities
    Part of recurring concern: Failure to reliably recognise and respond to acute clinical deterioration
  2. Delays in responding to acute deterioration in people with learning disabilities
    Part of recurring concern: Failure to reliably recognise and respond to acute clinical deterioration
  3. Pneumonia as the most common cause of avoidable deaths among people with learning disabilities
Responses linked to these concerns

Each statement is shown once, even when linked to more than one concern.

Actions described in response An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.3

  1. Action

    Incorporate annual learning disability health checks into the GP Wales core contract for eligible adult patients.

    Stated by Cabinet Secretary for Health and Social CareStated completedThe respondent said that this action was complete when they made their response on 25 September 2025.
  2. Action

    Provide additional funding to health boards to embed annual learning disability health checks and support GP practices.

    Stated by Cabinet Secretary for Health and Social CareStated in progressThe respondent said that this action was in progress when they made their response on 25 September 2025.
  3. Action

    Support enhancements with NHS Performance and Improvement to ensure high-quality annual learning disability health checks.

    Stated by Cabinet Secretary for Health and Social CareStated in progressThe respondent said that this action was in progress when they made their response on 25 September 2025.

Respondent positions A position is what a recipient says about a concern when it does not describe a specific action.1

  1. Position

    Local authorities or commissioning bodies are responsible for ensuring care workers receive relevant training through individual care plans.

    Stated by Cabinet Secretary for Health and Social CareRedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Delays in recognising acute deterioration in people with learning disabilities

Wider context from the report

“(4) Delays in recognising, escalating and responding to an acute deterioration is a significant factor in avoidable deaths of people with a Learning Disabilities; ”

Is this part of a recurring concern?

Yes — Failure to reliably recognise and respond to acute clinical deterioration.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Delays in responding to acute deterioration in people with learning disabilities

Wider context from the report

“(4) Delays in recognising, escalating and responding to an acute deterioration is a significant factor in avoidable deaths of people with a Learning Disabilities; ”

Is this part of a recurring concern?

Yes — Failure to reliably recognise and respond to acute clinical deterioration.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Pneumonia as the most common cause of avoidable deaths among people with learning disabilities

Wider context from the report

“(3) The most common cause of avoidable deaths in people with a Learning Disability is pneumonia; ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Delays in escalating acute deterioration in people with learning disabilities

Wider context from the report

“(4) Delays in recognising, escalating and responding to an acute deterioration is a significant factor in avoidable deaths of people with a Learning Disabilities; ”

Is this part of a recurring concern?

Yes — Failure to reliably recognise and respond to acute clinical deterioration.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of familiarity with the use of an acute deterioration recognition tool in Wales

Wider context from the report

“(6) Neither the GP, Social Worker, or commissioned care provider were familiar with any such tool being used in Wales notwithstanding a recommendation in The Learning Disabilities Mortality Review (LeDeR) Programme Annual Report 2019 to "Adapt (and then adopt) the National Early Warning Score 2 regionally, such as the Restore2TM in Wessex, to ensure it captures baseline and soft signs of acute deterioration in physical health for people with learning disabilities" ”

Is this part of a recurring concern?

Yes — Failure to reliably recognise and respond to acute clinical deterioration.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Increased mortality risk among people with learning disabilities

Wider context from the report

“(2) The evidence heard from a Learning Disability Psychiatrist and expert in Critical Care was that people with a Learning Disability generally have a significantly increased mortality risk; ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of a specific practice tool for recognising, escalating and responding to potential acute deterioration in people with learning disabilities

Wider context from the report

“(5) Family and professional care staff did not have any specific practice tool to help them recognise, escalate and ensure a response to concerns about signs of a potential acute deterioration; ”

Is this part of a recurring concern?

Yes — Failure to reliably recognise and respond to acute clinical deterioration.

Open source report

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Incorporate annual learning disability health checks into the GP Wales core contract for eligible adult patients.

Verbatim wording from the response

“From 1 April 2025, learning disability annual health checks have been incorporated into the GP Wales core contract. Previously, these checks were only offered by some GP practices. Now, all adult patients with a learning disability who are registered with a GP practice are entitled to receive a learning disability check every year. The purpose of these checks is to aid early identification, diagnosis and treatment of health issues, helping to prevent and manage health concerns while also providing education and healthcare advice to individuals.”

Source location

Response from the Department for Health and Social Care (Wales)
Page 2 · response
Published 25 September 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Provide additional funding to health boards to embed annual learning disability health checks and support GP practices.

Verbatim wording from the response

“Health boards are responsible for ensuring every adult with a learning disability is offered an annual health check. The Welsh Government is providing health boards with additional funding this year to embed the change and support GP practices. We are also improving data reporting by requesting GP registers of learning disability patients are up to date, eligible individuals are offered a health check, and the number of people taking up this offer is recorded. Working with NHS Performance and Improvement, we are supporting enhancements to ensure high-quality checks are undertaken. This year is likely to be a transitional year while the new process beds in and staff are trained. We will be closely monitoring uptake and impact to ensure the needs of people with learning disabilities are being met.”

Source location

Response from the Department for Health and Social Care (Wales)
Page 2 · response
Published 25 September 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Support enhancements with NHS Performance and Improvement to ensure high-quality annual learning disability health checks.

Verbatim wording from the response

“Health boards are responsible for ensuring every adult with a learning disability is offered an annual health check. The Welsh Government is providing health boards with additional funding this year to embed the change and support GP practices. We are also improving data reporting by requesting GP registers of learning disability patients are up to date, eligible individuals are offered a health check, and the number of people taking up this offer is recorded. Working with NHS Performance and Improvement, we are supporting enhancements to ensure high-quality checks are undertaken. This year is likely to be a transitional year while the new process beds in and staff are trained. We will be closely monitoring uptake and impact to ensure the needs of people with learning disabilities are being met.”

Source location

Response from the Department for Health and Social Care (Wales)
Page 2 · response
Published 25 September 2025

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Local authorities or commissioning bodies are responsible for ensuring care workers receive relevant training through individual care plans.

Verbatim wording from the response

“It is the responsibility of the local authority or commissioning body, when setting care plans, to ensure appropriate and relevant training, such as RESTORE2, is in place for care workers to support individual’s needs.”

Source location

Response from the Department for Health and Social Care (Wales)
Page 1 · response
Published 25 September 2025

Open published response

Other statements in published responses

These actions and other statements could not be clearly connected to one concern in this report.

Recipient-stated actions An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.5

  1. 1

    Improve reporting of learning disability health checks by requesting accurate patient registers, offer records and uptake data.

    Stated by Cabinet Secretary for Health and Social CareStated in progressThe respondent said that this action was in progress when they made their response on 25 September 2025.
  2. 2

    Monitor annual learning disability health-check uptake and impact to assess whether people’s needs are being met.

    Stated by Cabinet Secretary for Health and Social CareStated plannedThe respondent said that this action was planned when they made their response on 25 September 2025.
  3. 3

    Adapt and roll out learning disability awareness training to the social care workforce and wider public sector.

    Stated by Cabinet Secretary for Health and Social CareStated in progressThe respondent said that this action was in progress when they made their response on 25 September 2025.
  4. 4

    Develop enhanced and advanced learning disability training for health and social care professionals working regularly or intensively with people with learning disabilities.

    Stated by Cabinet Secretary for Health and Social CareStated in progressThe respondent said that this action was in progress when they made their response on 25 September 2025.
  5. 5

    Mandate learning disability awareness training for public-facing NHS Wales staff and make it available through NHS Wales learning platforms.

    Stated by Cabinet Secretary for Health and Social CareStated completedThe respondent said that this action was complete when they made their response on 25 September 2025.

Recipient positions A position is what a recipient says about a concern when they do not describe a specific action.1

  1. 1

    Health boards are responsible for ensuring every adult with a learning disability is offered an annual health check.

    Stated by Cabinet Secretary for Health and Social CareRedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Improve reporting of learning disability health checks by requesting accurate patient registers, offer records and uptake data.

Verbatim wording from the response

“Health boards are responsible for ensuring every adult with a learning disability is offered an annual health check. The Welsh Government is providing health boards with additional funding this year to embed the change and support GP practices. We are also improving data reporting by requesting GP registers of learning disability patients are up to date, eligible individuals are offered a health check, and the number of people taking up this offer is recorded. Working with NHS Performance and Improvement, we are supporting enhancements to ensure high-quality checks are undertaken. This year is likely to be a transitional year while the new process beds in and staff are trained. We will be closely monitoring uptake and impact to ensure the needs of people with learning disabilities are being met.”

Source location

Response from the Department for Health and Social Care (Wales)
Page 2 · response
Published 25 September 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Monitor annual learning disability health-check uptake and impact to assess whether people’s needs are being met.

Verbatim wording from the response

“Health boards are responsible for ensuring every adult with a learning disability is offered an annual health check. The Welsh Government is providing health boards with additional funding this year to embed the change and support GP practices. We are also improving data reporting by requesting GP registers of learning disability patients are up to date, eligible individuals are offered a health check, and the number of people taking up this offer is recorded. Working with NHS Performance and Improvement, we are supporting enhancements to ensure high-quality checks are undertaken. This year is likely to be a transitional year while the new process beds in and staff are trained. We will be closely monitoring uptake and impact to ensure the needs of people with learning disabilities are being met.”

Source location

Response from the Department for Health and Social Care (Wales)
Page 2 · response
Published 25 September 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Adapt and roll out learning disability awareness training to the social care workforce and wider public sector.

Verbatim wording from the response

“The Welsh Government is working with NHS Performance and Improvement, Social Care Wales and Health Education Improvement Wales (HEIW) to adapt the Paul Ridd to roll it out to the social care workforce and to the wider public sector. In addition, we are working closely with HEIW to develop tier 2 (enhanced) and tier 3 (advanced) training for health and social care professionals who work more regularly or intensely with people with learning disabilities.”

Source location

Response from the Department for Health and Social Care (Wales)
Page 2 · response
Published 25 September 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Develop enhanced and advanced learning disability training for health and social care professionals working regularly or intensively with people with learning disabilities.

Verbatim wording from the response

“The Welsh Government is working with NHS Performance and Improvement, Social Care Wales and Health Education Improvement Wales (HEIW) to adapt the Paul Ridd to roll it out to the social care workforce and to the wider public sector. In addition, we are working closely with HEIW to develop tier 2 (enhanced) and tier 3 (advanced) training for health and social care professionals who work more regularly or intensely with people with learning disabilities.”

Source location

Response from the Department for Health and Social Care (Wales)
Page 2 · response
Published 25 September 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Mandate learning disability awareness training for public-facing NHS Wales staff and make it available through NHS Wales learning platforms.

Verbatim wording from the response

“In April 2022, the Welsh Government launched the foundation phase of the Paul Ridd Learning Disability Awareness Training Programme for NHS staff. This was created in memory of Paul Ridd, a man with a learning disability who died in 2009 due to avoidable failures in hospital care in Wales. His family campaigned for better training for healthcare staff, which led to this programme becoming mandatory for all public-facing NHS Wales staff. To date, more than 80,000 NHS staff from across Wales have completed the training. The training is available through NHS Wales platforms, like the Electronic Staff Record (ESR) and Learning@Wales and is supported by the Paul Ridd Foundation.”

Source location

Response from the Department for Health and Social Care (Wales)
Page 2 · response
Published 25 September 2025

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Health boards are responsible for ensuring every adult with a learning disability is offered an annual health check.

Verbatim wording from the response

“Health boards are responsible for ensuring every adult with a learning disability is offered an annual health check. The Welsh Government is providing health boards with additional funding this year to embed the change and support GP practices. We are also improving data reporting by requesting GP registers of learning disability patients are up to date, eligible individuals are offered a health check, and the number of people taking up this offer is recorded. Working with NHS Performance and Improvement, we are supporting enhancements to ensure high-quality checks are undertaken. This year is likely to be a transitional year while the new process beds in and staff are trained. We will be closely monitoring uptake and impact to ensure the needs of people with learning disabilities are being met.”

Source location

Response from the Department for Health and Social Care (Wales)
Page 2 · response
Published 25 September 2025

Open published response
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Information checked against the published report and official responses · Data reviewed 7 Sep 2026 · About data quality and limitations

Official responses located
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Data last updated 7 September 2026