Oliver James WINSON · Prevention of Future Deaths report

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Issued 20 Dec 2024•Norfolk

Published report and response evidence

This report’s concerns and statements found in recipients’ published responses. Statements are included even where no link to an individual concern is recorded. A link shows an evidence connection; it does not assign responsibility.

View original report
Concerns
4

Raised in this report

Recipients
1

Named on the report

Responses found
2

Of 1 recipient

Stated actions
14

Described in responses

Recipients and published responses

Full report text

This is the full text from the original published report.

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Concerns and recipient responses

Select any concern, action or position to view the source wording.

Report evidence summary

Concerns raised4

  1. Failure to provide treatment to at-risk patients awaiting adult ADHD services
    Part of recurring concern: Failure to provide timely adult ADHD assessment and treatment
  2. Failure to monitor the condition of at-risk patients awaiting adult ADHD services
    Part of recurring concern: Failure to provide timely adult ADHD assessment and treatment
  3. Shortage of medication for patients diagnosed with ADHD

Stated actions An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.14

  1. NHS England

    Develop and share guidance supporting systems to respond to ADHD medication shortages.

  2. NHS England

    Explore opportunities with partners to revise ADHD information for patients, families and carers on nhs.uk.

  3. NHS England

    Facilitate sharing of ADHD service information, innovation and good practice.

  4. NHS England

    Discuss Regulation 28 reports through the national Working Group and share relevant learning across NHS national and regional services.

  5. NHS England

    Explore opportunities with partners to standardise ADHD pathways for greater consistency and transparency.

  6. NHS England

    Improve national data on ADHD services and waiting lists.

  7. NHS England

    Develop resources to help commissioners improve ADHD service quality and consistency nationally.

  8. NHS England

    Explore opportunities with partners to expand ADHD pathways with pre-diagnostic or waiting-well support.

  9. NHS England

    Explore opportunities with partners to adopt a needs-based approach, including support outside health services where appropriate.

  10. NHS England

    Operate the independent ADHD Taskforce to develop cross-sector understanding and improve joined-up access to early support.

  11. Royal Pharmaceutical Society

    Consider how to continue raising awareness of medicines-shortage safety issues through future communications and engagement with the wider pharmacy sector.

  12. Royal Pharmaceutical Society

    Publish a report examining medicines shortages and identifying solutions to support continuity of medicines supply.

  13. Royal Pharmaceutical Society

    Present the medicines shortages report and its recommendations to UK Government bodies.

  14. Royal Pharmaceutical Society

    Raise medicines-shortage safety issues with professional and representative pharmacy bodies.

Respondent positions A position is what a recipient says about a concern when it does not describe a specific action.2

  1. NHS England

    Local Integrated Care Boards commission ADHD services, including decisions on local pathways and provision.

    Redirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.
  2. NHS England

    The Department of Health and Social Care is responsible for ADHD medication supplies in England.

    Redirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to provide treatment to at-risk patients awaiting adult ADHD services

Wider context from the report

“Evidence received from the mental health Trust confirms that proactive steps have been taken by them to try and improve access and mitigate delays as far as possible and they provide details of some additional funding received from the local integrated care board in November 2021. Based on the evidence heard at inquest we know that this action in 2021 did not significantly reduce the waiting time, as at the time of his death Mr Winson had been waiting for four years. I also heard evidence that despite local and national efforts, the scale of demand for adult ADHD services is a system wide issue across the country. It is of concern that patients who have been identified specifically of being at risk as a result of undiagnosed and/or untreated ADHD (and it was also noted in the evidence that there is a shortage of medication for those patients who have been diagnosed) remain on significantly lengthy waiting lists during which time they are not receiving treatment, their condition is not monitored and there is a risk as with Mr Winson, that their condition may deteriorate or lead to risk or harmful behaviour and death. ”

Is this part of a recurring concern?

Yes — Failure to provide timely adult ADHD assessment and treatment.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to monitor the condition of at-risk patients awaiting adult ADHD services

Wider context from the report

“Evidence received from the mental health Trust confirms that proactive steps have been taken by them to try and improve access and mitigate delays as far as possible and they provide details of some additional funding received from the local integrated care board in November 2021. Based on the evidence heard at inquest we know that this action in 2021 did not significantly reduce the waiting time, as at the time of his death Mr Winson had been waiting for four years. I also heard evidence that despite local and national efforts, the scale of demand for adult ADHD services is a system wide issue across the country. It is of concern that patients who have been identified specifically of being at risk as a result of undiagnosed and/or untreated ADHD (and it was also noted in the evidence that there is a shortage of medication for those patients who have been diagnosed) remain on significantly lengthy waiting lists during which time they are not receiving treatment, their condition is not monitored and there is a risk as with Mr Winson, that their condition may deteriorate or lead to risk or harmful behaviour and death. ”

Is this part of a recurring concern?

Yes — Failure to provide timely adult ADHD assessment and treatment.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Shortage of medication for patients diagnosed with ADHD

Wider context from the report

“Evidence received from the mental health Trust confirms that proactive steps have been taken by them to try and improve access and mitigate delays as far as possible and they provide details of some additional funding received from the local integrated care board in November 2021. Based on the evidence heard at inquest we know that this action in 2021 did not significantly reduce the waiting time, as at the time of his death Mr Winson had been waiting for four years. I also heard evidence that despite local and national efforts, the scale of demand for adult ADHD services is a system wide issue across the country. It is of concern that patients who have been identified specifically of being at risk as a result of undiagnosed and/or untreated ADHD (and it was also noted in the evidence that there is a shortage of medication for those patients who have been diagnosed) remain on significantly lengthy waiting lists during which time they are not receiving treatment, their condition is not monitored and there is a risk as with Mr Winson, that their condition may deteriorate or lead to risk or harmful behaviour and death. ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Delays in access to adult ADHD services for at-risk patients

Wider context from the report

“Evidence received from the mental health Trust confirms that proactive steps have been taken by them to try and improve access and mitigate delays as far as possible and they provide details of some additional funding received from the local integrated care board in November 2021. Based on the evidence heard at inquest we know that this action in 2021 did not significantly reduce the waiting time, as at the time of his death Mr Winson had been waiting for four years. I also heard evidence that despite local and national efforts, the scale of demand for adult ADHD services is a system wide issue across the country. It is of concern that patients who have been identified specifically of being at risk as a result of undiagnosed and/or untreated ADHD (and it was also noted in the evidence that there is a shortage of medication for those patients who have been diagnosed) remain on significantly lengthy waiting lists during which time they are not receiving treatment, their condition is not monitored and there is a risk as with Mr Winson, that their condition may deteriorate or lead to risk or harmful behaviour and death. ”

Is this part of a recurring concern?

Yes — Failure to provide timely adult ADHD assessment and treatment.

Open source report

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Develop and share guidance supporting systems to respond to ADHD medication shortages.

Verbatim wording from the response

“Your Report also referred to there being a shortage of medication for those patients who have been diagnosed with ADHD. NHS England works closely with the Department of Health and Social Care (DHSC), who are responsible for medication supplies in England. NHS England has developed specific guidance for systems, shared via the Specialist Pharmacy Service, to support the system response to the medication shortages. At this time, the availability of most medicines used to treat ADHD has been restored, though there remains some disruption to supplies of methylphenidate prolonged-release capsules and tablets².”

Source location

Response from NHS England
Page 2 · response
Published 27 December 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Explore opportunities with partners to revise ADHD information for patients, families and carers on nhs.uk.

Verbatim wording from the response

“NHS England is committed to working with system partners, including commissioners and providers of ADHD support, to improve health-related experience and outcomes for those with ADHD, including exploring opportunities to:”

Source location

Response from NHS England
Page 2 · response
Published 27 December 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Facilitate sharing of ADHD service information, innovation and good practice.

Verbatim wording from the response

“Considering the challenges being reported about ADHD services, NHS England undertook a rapid review in December 2023. This identified several key areas of work in relation to ADHD which are now underway, including improving available data, developing resources to support commissioners in improving the quality and consistency of ADHD services nationally, and facilitating the sharing of information, innovation and good practice. NHS England has also convened the independent ADHD Taskforce, which works cross-sector to better understand more about the issues impacting those with ADHD and their families, and how service provision can be better joined up to meet people’s needs, including access to early support. It is increasingly recognised that ADHD is not solely a health concern, and that a cross-sector approach is needed to effect change.”

Source location

Response from NHS England
Page 2 · response
Published 27 December 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Discuss Regulation 28 reports through the national Working Group and share relevant learning across NHS national and regional services.

Verbatim wording from the response

“I would also like to provide further assurances on the national NHS England work taking place around the Reports to Prevent Future Deaths. All reports received are”

Source location

Response from NHS England
Page 2 · response
Published 27 December 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Explore opportunities with partners to standardise ADHD pathways for greater consistency and transparency.

Verbatim wording from the response

“NHS England is committed to working with system partners, including commissioners and providers of ADHD support, to improve health-related experience and outcomes for those with ADHD, including exploring opportunities to:”

Source location

Response from NHS England
Page 2 · response
Published 27 December 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Improve national data on ADHD services and waiting lists.

Verbatim wording from the response

“Considering the challenges being reported about ADHD services, NHS England undertook a rapid review in December 2023. This identified several key areas of work in relation to ADHD which are now underway, including improving available data, developing resources to support commissioners in improving the quality and consistency of ADHD services nationally, and facilitating the sharing of information, innovation and good practice. NHS England has also convened the independent ADHD Taskforce, which works cross-sector to better understand more about the issues impacting those with ADHD and their families, and how service provision can be better joined up to meet people’s needs, including access to early support. It is increasingly recognised that ADHD is not solely a health concern, and that a cross-sector approach is needed to effect change.”

Source location

Response from NHS England
Page 2 · response
Published 27 December 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Develop resources to help commissioners improve ADHD service quality and consistency nationally.

Verbatim wording from the response

“Considering the challenges being reported about ADHD services, NHS England undertook a rapid review in December 2023. This identified several key areas of work in relation to ADHD which are now underway, including improving available data, developing resources to support commissioners in improving the quality and consistency of ADHD services nationally, and facilitating the sharing of information, innovation and good practice. NHS England has also convened the independent ADHD Taskforce, which works cross-sector to better understand more about the issues impacting those with ADHD and their families, and how service provision can be better joined up to meet people’s needs, including access to early support. It is increasingly recognised that ADHD is not solely a health concern, and that a cross-sector approach is needed to effect change.”

Source location

Response from NHS England
Page 2 · response
Published 27 December 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Explore opportunities with partners to expand ADHD pathways with pre-diagnostic or waiting-well support.

Verbatim wording from the response

“NHS England is committed to working with system partners, including commissioners and providers of ADHD support, to improve health-related experience and outcomes for those with ADHD, including exploring opportunities to:”

Source location

Response from NHS England
Page 2 · response
Published 27 December 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Explore opportunities with partners to adopt a needs-based approach, including support outside health services where appropriate.

Verbatim wording from the response

“NHS England is committed to working with system partners, including commissioners and providers of ADHD support, to improve health-related experience and outcomes for those with ADHD, including exploring opportunities to:”

Source location

Response from NHS England
Page 2 · response
Published 27 December 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Operate the independent ADHD Taskforce to develop cross-sector understanding and improve joined-up access to early support.

Verbatim wording from the response

“Considering the challenges being reported about ADHD services, NHS England undertook a rapid review in December 2023. This identified several key areas of work in relation to ADHD which are now underway, including improving available data, developing resources to support commissioners in improving the quality and consistency of ADHD services nationally, and facilitating the sharing of information, innovation and good practice. NHS England has also convened the independent ADHD Taskforce, which works cross-sector to better understand more about the issues impacting those with ADHD and their families, and how service provision can be better joined up to meet people’s needs, including access to early support. It is increasingly recognised that ADHD is not solely a health concern, and that a cross-sector approach is needed to effect change.”

Source location

Response from NHS England
Page 2 · response
Published 27 December 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Consider how to continue raising awareness of medicines-shortage safety issues through future communications and engagement with the wider pharmacy sector.

Verbatim wording from the response

“Thank you for highlighting your concerns in this prevention of future death report. We will consider how we can continue to raise awareness of these important issues through our future communications and engagement with the wider pharmacy sector. We will also raise these issues with our colleagues at the professional and representative bodies for pharmacy as they also play an important role in providing advice and support to the pharmacy professions.”

Source location

Response from Royal Pharmaceutical Society
Page 2 · response
Published 27 December 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Publish a report examining medicines shortages and identifying solutions to support continuity of medicines supply.

Verbatim wording from the response

“The RPS in November 2024 published a report entitled Medicines Shortages: Solutions for Empty Shelves, which articulates some of the concerns raised in your report (in relation to the national shortage of ADHD medicines), and through the”

Source location

Response from Royal Pharmaceutical Society
Page 1 · response
Published 27 December 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Present the medicines shortages report and its recommendations to UK Government bodies.

Verbatim wording from the response

“implementation of some of the recommendations for collaborative action, may help to address them. The Report is a culmination of extensive engagement and collaboration with patients, the pharmacy profession, wider healthcare professionals and the key local, regional and national stakeholders integral to ensure the continuity of medicines supply. The RPS Report and its recommendations have been presented to UK Government bodies during November and December 2024.”

Source location

Response from Royal Pharmaceutical Society
Page 2 · response
Published 27 December 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Raise medicines-shortage safety issues with professional and representative pharmacy bodies.

Verbatim wording from the response

“Thank you for highlighting your concerns in this prevention of future death report. We will consider how we can continue to raise awareness of these important issues through our future communications and engagement with the wider pharmacy sector. We will also raise these issues with our colleagues at the professional and representative bodies for pharmacy as they also play an important role in providing advice and support to the pharmacy professions.”

Source location

Response from Royal Pharmaceutical Society
Page 2 · response
Published 27 December 2024

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Local Integrated Care Boards commission ADHD services, including decisions on local pathways and provision.

Verbatim wording from the response

“ADHD services are a complex landscape. They are commissioned locally by Integrated Care Boards (ICBs) with significant national variation existing in pathways and provision, including independent sector providers operating under the Right to Choose framework.”

Source location

Response from NHS England
Page 2 · response
Published 27 December 2024

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

The Department of Health and Social Care is responsible for ADHD medication supplies in England.

Verbatim wording from the response

“Your Report also referred to there being a shortage of medication for those patients who have been diagnosed with ADHD. NHS England works closely with the Department of Health and Social Care (DHSC), who are responsible for medication supplies in England. NHS England has developed specific guidance for systems, shared via the Specialist Pharmacy Service, to support the system response to the medication shortages. At this time, the availability of most medicines used to treat ADHD has been restored, though there remains some disruption to supplies of methylphenidate prolonged-release capsules and tablets².”

Source location

Response from NHS England
Page 2 · response
Published 27 December 2024

Open published response
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Information checked against the published report and official responses · Data reviewed 7 Sep 2026 · About data quality and limitations

Official responses located
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Data last updated 7 September 2026