PFD report

Louis Robert SAUNDERS · Prevention of Future Deaths report

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Issued 27 Feb 2026•East Sussex

Report record

Published report and response evidence

This page connects the concerns raised in this report with statements found in recipients’ published responses. A link shows a clear evidence connection; it does not assign responsibility.

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Concerns
1

Raised in this report

Recipients
1

Named on the report

Responses found
1

Of 1 recipient

Stated actions
6

Described in responses

Recipients and published responses

Source document

Full report text

This is the full text from the original published report.

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Concerns and recipient responses

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Report evidence summary

Concerns raised1

  1. Failure to coordinate ADHD prescribing between private providers and NHS GPs
    Part of recurring concern: Unreliable doctor-to-doctor coordination of prescribingPart of recurring concern: Unsafe coordination of shared care
Responses linked to these concerns

Each statement is shown once, even when linked to more than one concern.

Actions described in response An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.2

  1. Action

    Highlight duplicate-prescription, medication-confusion, continuity-of-care and treatment-change communication risks to ADHD specialists and primary-care prescribers through ongoing programme work.

    Stated by NHS EnglandStated plannedThe respondent said that this action was planned when they made their response on 10 March 2026.
  2. Action

    Publish non-mandatory ADHD assessment and treatment guide prices and commissioning guidance setting expectations for assessment, data quality, governance, shared care and follow-up.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 10 March 2026.

Respondent positions A position is what a recipient says about a concern when it does not describe a specific action.1

  1. Position

    The private ADHD provider considered its existing systems sufficient to ensure continuity of care and safer prescribing, requiring no process changes.

    Stated by NHS EnglandExisting arrangements considered sufficientThe respondent said that existing arrangements were sufficient, so no further action was needed.

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to coordinate ADHD prescribing between private providers and NHS GPs

Wider context from the report

“Whilst it is understood that Louis had stopped taking his medication due to a perceived increase in suicidal ideation, and no medication was found in his system following his death, the evidence identified that he was being prescribed ADHD medication by both his NHS GP and the private ADHD clinic. Neither organisation was aware of the other’s ongoing prescribing until the time of the inquest. After Louis’ ADHD treatment was transferred to his GP, the plan was for the surgery to continue issuing his medication. Accordingly, on 6 November 2023, the surgery issued a prescription for lisdexamfetamine ([REDACTED]). However, Louis had attended an appointment at the ADHD clinic the previous day, on 5 November 2023, and the clinic’s notes record that he was to continue on Dexamphetamine ([REDACTED]). Although the medications have similar names, they are distinct drugs with different dosing requirements. Effective management and titration are understood to be essential to ensure therapeutic benefit and limit adverse effects. The concern that has arisen relates to continuity of care between private providers and the NHS once a patient has been diagnosed with ADHD, commenced on medication, and subsequently transferred to GP care. In Louis’ case, communication between the private sector and the NHS was insufficiently clear, and the situation became more complex when he continued to be seen by both the ADHD clinic and his GP. This created opportunities for key information to be missed. Although medication was not directly implicated in Louis’ death, there remains a risk that a patient may inadvertently obtain duplicate prescriptions or become confused about which medication to take. Such scenarios may pose a risk of future deaths. As increasing numbers of patients are receiving ADHD diagnoses and commencing treatment in the private sector due to long NHS waiting times, I am concerned about the robustness of current processes to ensure safe and continuous care following transfer to a GP. ”

Is this part of a recurring concern?

Yes — Unreliable doctor-to-doctor coordination of prescribing; Unsafe coordination of shared care.

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Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Highlight duplicate-prescription, medication-confusion, continuity-of-care and treatment-change communication risks to ADHD specialists and primary-care prescribers through ongoing programme work.

Verbatim wording from the response

“I have fed your concerns back to NHS England’s National ADHD Programme and Primary Care Teams, who will ensure that the risks you have raised of duplicate prescriptions and confusion between current and previous medication regimes, and actions you have identified, including the need for continuity of care and timely and effective communication of treatment changes, are highlighted to both specialist providers and primary care prescribers wherever possible in their ongoing work.”

Source location

2026-0130 - Response from NHS England
Page 2 · response
Published 10 March 2026

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Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Publish non-mandatory ADHD assessment and treatment guide prices and commissioning guidance setting expectations for assessment, data quality, governance, shared care and follow-up.

Verbatim wording from the response

“NHS England is committed to working with system partners, including commissioners and providers of ADHD support, to improve health-related experience and outcomes for those with ADHD. We recently published non-mandatory guide prices for ADHD assessments and treatment pathways, alongside detailed commissioning guidance, that will set clear expectations for assessment standards, data quality, clinical governance, shared care and follow-up.”

Source location

2026-0130 - Response from NHS England
Page 2 · response
Published 10 March 2026

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Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

The private ADHD provider considered its existing systems sufficient to ensure continuity of care and safer prescribing, requiring no process changes.

Verbatim wording from the response

“The Region have liaised with the private ADHD clinic who have advised that they have held a formal preventing future deaths review meeting for this case. The result of the review was that they did not identify any deficiencies in their processes, nor any changes required to their current clinical practice. They highlighted their current systems ensure continuity of care and safer prescribing which included that following every clinical interaction, including titration, medication reviews, and shared care reviews, detailed written correspondence is issued to the patient’s GP to ensure continuity, transparency, and clarity of care. They clarified that they do not initiate medication without first obtaining a Summary Care Record or equivalent clinical information from the patient’s GP.”

Source location

2026-0130 - Response from NHS England
Page 3 · response
Published 10 March 2026

Open published response

Other statements in published responses

These actions and other statements could not be clearly connected to one concern in this report.

Recipient-stated actions An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.4

  1. 1

    Explore improvements to access, productivity and quality with experts and use the findings to develop future service proposals for mental health, autism and ADHD.

    Stated by NHS EnglandStated plannedThe respondent said that this action was planned when they made their response on 10 March 2026.
  2. 2

    Share the NHS GP practice and private provider responses with each other to improve mutual awareness of their findings.

    Stated by NHS EnglandStated plannedThe respondent said that this action was planned when they made their response on 10 March 2026.
  3. 3

    Conduct an internal exercise examining NHS clinical practice and spending across mental health, autism and ADHD services to identify unwarranted variation.

    Stated by NHS EnglandStated in progressThe respondent said that this action was in progress when they made their response on 10 March 2026.
  4. 4

    Discuss Regulation 28 reports through the national working group and share learning and insights across NHS national and regional services.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 10 March 2026.

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Explore improvements to access, productivity and quality with experts and use the findings to develop future service proposals for mental health, autism and ADHD.

Verbatim wording from the response

“conducting an internal exercise to understand current NHS clinical and operational practice and spend on mental health, autism and ADHD services. In addition to identifying unwarranted variation in service models, we will explore how we can improve access, productivity and quality of NHS services with a range of experts. To inform local commissioning and provision of care, we will use our findings to set out clear proposals for the future of mental health, autism and ADHD services.”

Source location

2026-0130 - Response from NHS England
Page 3 · response
Published 10 March 2026

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Share the NHS GP practice and private provider responses with each other to improve mutual awareness of their findings.

Verbatim wording from the response

“The Region will be sharing the responses from the NHS GP with the private provider and the private providers response with the NHS GP so they are aware of each other’s response. If you have any further questions we would advise you address those to the private provider directly.”

Source location

2026-0130 - Response from NHS England
Page 3 · response
Published 10 March 2026

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Conduct an internal exercise examining NHS clinical practice and spending across mental health, autism and ADHD services to identify unwarranted variation.

Verbatim wording from the response

“More fundamentally, the government has commissioned an Independent review into mental health conditions, ADHD and autism to look at the issues relating to assessment and diagnosis you have raised. In parallel to the Review, we are also”

Source location

2026-0130 - Response from NHS England
Page 2 · response
Published 10 March 2026

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Discuss Regulation 28 reports through the national working group and share learning and insights across NHS national and regional services.

Verbatim wording from the response

“I would also like to provide further assurances on the national NHS England work taking place around the Reports to Prevent Future Deaths. All reports received are”

Source location

2026-0130 - Response from NHS England
Page 3 · response
Published 10 March 2026

Open published response
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Information checked against the published report and official responses · Data reviewed 7 Sep 2026 · About data quality and limitations

Official responses located
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Data last updated 7 September 2026