First reported 24 Oct 2018•Latest report 10 Dec 2023
Definition
What this concern includes
Includes failures in implementing, commissioning or operationalising autism care and support arrangements, including delayed Autism Strategy work, inadequate services for autism management and related failures that leave people without appropriate autism-informed support.
Not included
Excludes delays or deficiencies in autism diagnosis and assessment when autism care and support provision is not the deficient condition.
Excludes generic mental-health, learning-disability or social-care service shortages unless they are explicitly tied to autism care and support arrangements.
Excludes isolated staff-training, communication or reasonable-adjustment failures where no wider autism care or support implementation deficiency is identified.
Excludes clinical treatment or placement failures after appropriate autism care and support services have been reliably established.
Reports
8
Distinct published reports
Individual concerns
8
A report can raise multiple concerns
Date range
2018–2023
First to latest report issue date
Stated actions
23
Described in published responses
Reports over time
Reports over time
Reports about this concern issued each year.
* 2026 is projected from reports observed to 7 Sep 2026.
Most frequent recipients
Most frequent recipients
Reports about this concern sent to each recipient.
NHS England4
Department of Health and Social Care2
Central and North West London NHS Foundation Trust1
East London NHS Foundation Trust1
HM Prison and Probation Service1
NHS Humber and North Yorkshire Integrated Care Board1
NHS Leicester, Leicestershire and Rutland Integrated Care Board1
NHS Nottingham and Nottinghamshire Integrated Care Board1
Nottinghamshire Healthcare NHS Foundation Trust1
Royal College of Psychiatrists1
Executive non-departmental public body4
Integrated care board3
NHS trust3
Ministerial department2
Executive agency1
Professional body1
Concerns and responses across reports
Only concerns grouped under this recurring concern are included. Select any concern, action or position to view the source wording.
West Sussex, Brighton and Hove
Concerns raised1
Inadequate community provision for the care and treatment of autistic people
Responses linked to these concerns
Each statement is shown once, even when linked to more than one concern.
Actions described in response An action is something a respondent says it has done, is doing, or plans to do in response to the concern raised.11
Action
Develop commissioning standards to set clear expectations for good social care commissioning.
Stated by Department of Health and Social CareStated plannedThe respondent said that this action was planned when they made their response on 19 December 2023.
Action
Invest in pilot training for senior local authority commissioners to improve care-market planning and data use.
Stated by Department of Health and Social CareStated in progressThe respondent said that this action was in progress when they made their response on 19 December 2023.
Action
Invest up to £700 million in workforce training, recognition and career progression to improve social care quality and outcomes.
Stated by Department of Health and Social CareStated in progressThe respondent said that this action was in progress when they made their response on 19 December 2023.
Action
Provide additional adult social care funding to increase workforce capacity and retention, reduce waiting times and support provider fee rates.
Stated by Department of Health and Social CareStated in progressThe respondent said that this action was in progress when they made their response on 19 December 2023.
Action
Run the next phase of the national Made with Care recruitment campaign.
Stated by Department of Health and Social CareStated completedThe respondent said that this action was complete when they made their response on 19 December 2023.
Action
Make care workers eligible for the Health and Care Worker Visa and add them to the Shortage Occupation List.
Stated by Department of Health and Social CareStated completedThe respondent said that this action was complete when they made their response on 19 December 2023.
Action
Provide £15 million to establish ethical international recruitment support and bolster the adult social care workforce.
Stated by Department of Health and Social CareStated completedThe respondent said that this action was complete when they made their response on 19 December 2023.
Action
Invest an additional £121 million to improve community support for autistic people and people with learning disabilities.
Stated by Department of Health and Social CareStated in progressThe respondent said that this action was in progress when they made their response on 19 December 2023.
Action
Monitor implementation of the Building the Right Support Action Plan through the cross-system Delivery Board.
Stated by Department of Health and Social CareStated in progressThe respondent said that this action was in progress when they made their response on 19 December 2023.
Action
Update Autism Act statutory guidance to improve outcomes and clarify local authority responsibilities for autistic adults’ social care.
Stated by Department of Health and Social CareStated in progressThe respondent said that this action was in progress when they made their response on 19 December 2023.
Action
Publish the updated draft Autism Act statutory guidance for public consultation.
Stated by Department of Health and Social CareStated plannedThe respondent said that this action was planned when they made their response on 19 December 2023.
Respondent positions A position is what a respondent says about the concern when they do not describe a specific action.1
Position
Local authorities are responsible for planning and shaping local care markets because they are best placed to understand local population needs.
Stated by Department of Health and Social CareRedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.
Buckinghamshire
Concerns raised1
Lack of appropriate resources for maintaining neurodiversity management work
This report raised 4 other concerns. They are not shown here because they do not form part of this recurring concern.
Responses linked to these concerns
Each statement is shown once, even when linked to more than one concern.
Actions described in response An action is something a respondent says it has done, is doing, or plans to do in response to the concern raised.1
Action
Appoint a Band 6 neurodiversity support manager to raise staff awareness and provide toolkit-based training.
Stated by HM Prison and Probation ServiceStated completedThe respondent said that this action was complete when they made their response on 22 September 2023.
Nottinghamshire
Concerns raised1
Delayed progress of the Autism Strategy work
This report raised 2 other concerns. They are not shown here because they do not form part of this recurring concern.
Responses linked to these concerns
Each statement is shown once, even when linked to more than one concern.
Actions described in response An action is something a respondent says it has done, is doing, or plans to do in response to the concern raised.1
Action
Produce an autism strategy action plan covering identification, reasonable adjustments, peer support, care planning and workforce measures.
Stated by Nottinghamshire Healthcare NHS Foundation TrustStated completedThe respondent said that this action was complete when they made their response on 14 April 2023.
North Yorkshire and York
Concerns raised1
Failure to provide autism treatment in North Yorkshire
This report raised 3 other concerns. They are not shown here because they do not form part of this recurring concern.
Responses linked to these concerns
Each statement is shown once, even when linked to more than one concern.
Actions described in response An action is something a respondent says it has done, is doing, or plans to do in response to the concern raised.1
Action
Invest in expanding and transforming integrated community mental health services, including intensive and community support for autistic people and people with learning disabilities.
Stated by NHS EnglandStated in progressThe respondent said that this action was in progress when they made their response on 27 September 2022.
Respondent positions A position is what a respondent says about the concern when they do not describe a specific action.2
Position
The Integrated Care Board is responsible for commissioning North Yorkshire mental health services, rather than this respondent.
Stated by NHS EnglandRedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.
Position
TEWV is responsible for delivering mental health services and making autism-related reasonable adjustments under its contract.
Stated by NHS EnglandRedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.
Bedfordshire and Luton
Concerns raised1
National gap in transition services for individuals with high functioning autism
This report raised 1 other concern. They are not shown here because they do not form part of this recurring concern.
Responses linked to these concerns
Each statement is shown once, even when linked to more than one concern.
Actions described in response An action is something a respondent says it has done, is doing, or plans to do in response to the concern raised.3
Action
Establish a comprehensive mental health support offer for people aged 0–25 in every area, without age-based thresholds and adapted to young adults’ needs.
Stated by NHS EnglandStated plannedThe respondent said that this action was planned when they made their response on 24 January 2022.
Action
Ensure NHS services make reasonable adjustments to better meet autistic people’s needs.
Stated by NHS EnglandStated plannedThe respondent said that this action was planned when they made their response on 24 January 2022.
Action
Prioritise transition within the Learning Disability and Autism Programme and work with partner agencies on an effective cross-system response to young people experiencing difficulty or crisis.
Stated by NHS EnglandStated in progressThe respondent said that this action was in progress when they made their response on 24 January 2022.
Leicester City and South Leicestershire
Concerns raised1
Lack of commissioned services for autism management
This report raised 1 other concern. They are not shown here because they do not form part of this recurring concern.
Responses linked to these concerns
Each statement is shown once, even when linked to more than one concern.
Actions described in response An action is something a respondent says it has done, is doing, or plans to do in response to the concern raised.4
Action
Invest in specialist community teams supporting children and young people with autism and their families.
Stated by NHS EnglandStated plannedThe respondent said that this action was planned when they made their response on 23 May 2019.
Action
Provide specialist mental-health speech and language therapy support to Bradgate Unit wards for patients with autism.
Stated by Leicestershire Partnership NHS TrustStated completedThe respondent said that this action was complete when they made their response on 23 May 2019.
Action
Refer all inpatients diagnosed with autism to speech and language therapy so care plans reflect bespoke, differentiated needs.
Stated by Leicestershire Partnership NHS TrustStated completedThe respondent said that this action was complete when they made their response on 23 May 2019.
Action
Develop a multidisciplinary decision-making flowchart to support ward staff caring for patients with autism.
Stated by Leicestershire Partnership NHS TrustStated in progressThe respondent said that this action was in progress when they made their response on 23 May 2019.
Cheshire
Concerns raised1
Lack of ASD support beyond diagnosis
This report raised 4 other concerns. They are not shown here because they do not form part of this recurring concern.
Responses linked to these concerns
Each statement is shown once, even when linked to more than one concern.
Actions described in response An action is something a respondent says it has done, is doing, or plans to do in response to the concern raised.1
Action
Provide keyworker support for autistic children and young people during and after diagnosis.
Stated by NHS EnglandStatus unclearThe respondent did not make the status of this action clear when they made their response on 11 June 2019.
Inner West London
Concerns raised1
NHS commissioning structure biased against services for chronic incurable conditions and ASD
This report raised 7 other concerns. They are not shown here because they do not form part of this recurring concern.
Responses linked to these concerns
Each statement is shown once, even when linked to more than one concern.
Actions described in response An action is something a respondent says it has done, is doing, or plans to do in response to the concern raised.1
Action
Make improved guidance and a best-practice toolkit available to commissioners for autism diagnosis and post-diagnosis services.
Stated by Department of Health and Social CareStated plannedThe respondent said that this action was planned when they made their response on 23 February 2019.
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Includes failures in implementing, commissioning or operationalising autism care and support arrangements, including delayed Autism Strategy work, inadequate services for autism management and related failures that leave people without appropriate autism-informed support.
