Recurring concern

Unreliable dementia care and management

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First reported 17 Nov 2014•Latest report 6 Sep 2024

Definition

What this concern includes

Includes failures in explicitly dementia-specific care and management arrangements, including proactive assessment and review of changing needs and risks, care policies, therapeutic interventions, person-centred support, family involvement, competent multidisciplinary provision and implementation of dementia-care requirements.

Not included

  • Excludes generic care-quality, staffing, training, documentation or communication deficiencies unless they directly concern dementia care and management.
  • Excludes failures limited to recognising or diagnosing dementia where no deficiency in ongoing dementia care or management is identified.
  • Excludes condition-specific processes such as mouth care, nutrition, falls prevention or capacity assessment when dementia is incidental or the named process supplies the more specific supported concern.
  • Excludes care for people without a material dementia context.
Reports
6

Distinct published reports

Individual concerns
8

A report can raise multiple concerns

Date range
2014–2024

First to latest report issue date

Stated actions
11

Described in published responses

Reports over time

Reports over time

Reports about this concern issued each year.

* 2026 is projected from reports observed to 7 Sep 2026.

Most frequent recipients

Most frequent recipients

Reports about this concern sent to each recipient.

Department of Health and Social Care2
Care Quality Commission1
Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust1
Heron Court Care Home1
Leeds City Council1
Leeds Community Healthcare NHS Trust1
Mid and South Essex NHS Foundation Trust1
Moorfield House Surgery1
National Institute for Health and Care Excellence1
Recipient name withheld1
Rossendale Nursing Home1
Rushcliffe Care Limited1
St Armands Court1

Concerns and responses across reports

Only concerns grouped under this recurring concern are included. Select any concern, action or position to view the source wording.

  1. Manchester South

    AI-generated summary

    Emilia ALLSOPP · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Emilia Allsopp, who had dementia and significant cardiac conditions, suffered an accidental fall at her care home. A fracture was not initially diagnosed, but was identified after she returned to hospital the following day; she later developed a lower respiratory tract infection and died at Tameside General Hospital on 15 January 2024. The principal concern was the lack of suitable community-based support, which meant her family could no longer care for her at home and she moved to an unfamiliar care-home environment.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Lack of suitable community-based dementia support for family carers

    Wider context from the report

    “The inquest heard evidence that Mrs Allsopp had struggled at the care home due to it being an unfamiliar environment. Her family had wanted her to remain cared for by them in a familiar home environment. They felt that if they were properly supported, home would be a safer environment for Mrs Allsopp. However Mrs Allsopp moved to the care home due to a lack of suitable community based support meaning that her family could no longer continue to care for her in the community. The inquest was told by her family that it had proved impossible to get the level of support they needed for Mrs Allsopp in the community as her dementia progressed. This created a situation where she was unsafe in her own home and had to move to a new less familiar setting. Effective dementia support for the family would have meant that could have continued to look after her at home. ”

    Source location

    Emilia ALLSOPP · Prevention of Future Deaths report
    Page 2 · concerns

    Open source report

    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Local authorities are responsible for assessing and meeting eligible carers’ support needs under the Care Act 2014.

    Verbatim wording from the response

    “I am sorry to hear that Mrs Allsopp’s family did not receive the level of support they felt they required to continue caring for Mrs Allsopp in her home. The Care Act 2014 requires local authorities to deliver a wide range of sustainable, high-quality care and support services, including support for carers. Local Authorities have duties to support people caring for their family and friends. They are also required to undertake Carer’s Assessments to support people caring for their family and friends who appear to have a need for support and local authorities are required to meet their eligible needs on request from them. The Care Quality Commission is assessing how well local authorities are meeting their duties under Part 1 of the Care Act 2014, including those relating to carers.”

    Source location

    Response from DHSC
    Page 2 · response
    Published 9 September 2024

    Open published response
  2. Sunderland

    AI-generated summary

    Richard Burgess · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Richard Burgess died at Holy Cross Nursing and Residential Care Home, Sunderland, on 30 November 2018 after being punched three times in the head by another patient on 31 August 2018. The principal concerns related to dementia care, including multidisciplinary staffing, proactive assessment and risk management, family engagement, person-centred care, and converting policy into practice.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure to provide a social environment supporting psychological and physical needs

    Wider context from the report

    “I did not have a sufficient level of confidence about: • the provision of a multidisciplinary team of professionals with suitable skills, qualifications and competencies commensurate with their role and the specialty of dementia care; • a prevention model and approach for dementia care that proactively uses detailed assessment, intervention and evaluation of changing care, needs and risks of the individual in order to provide therapeutic interventions and reduce the need for medication; • the evidence of assessments or the application of assessments of the impact of a person’s difficulties, including cognitive and neurological difficulties, polypharmacy, psychological and personality, mental and physical health, social, environmental and care practices, emotions, belief and thoughts of the person; • a continuous engagement with the family in the “triangle of care”, including regular communication and updating life stories; • a focus on the person, asserting absolute value of the person, in an individualised approach, while understanding the world from the person’s perspective and provision of a social environment that supports psychological and physical needs; • converting policy into practice. The Trust had done a lot of work since the death of Mr Burgess, and I should also be pleased to hear from the Secretary of State about wider learning for other Trusts. ”

    Source location

    Richard Burgess · Prevention of Future Deaths report
    Page 2 · concerns

    Open source report

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure to use a proactive dementia care model based on detailed assessment, intervention and evaluation of changing needs and risks

    Wider context from the report

    “I did not have a sufficient level of confidence about: • the provision of a multidisciplinary team of professionals with suitable skills, qualifications and competencies commensurate with their role and the specialty of dementia care; • a prevention model and approach for dementia care that proactively uses detailed assessment, intervention and evaluation of changing care, needs and risks of the individual in order to provide therapeutic interventions and reduce the need for medication; • the evidence of assessments or the application of assessments of the impact of a person’s difficulties, including cognitive and neurological difficulties, polypharmacy, psychological and personality, mental and physical health, social, environmental and care practices, emotions, belief and thoughts of the person; • a continuous engagement with the family in the “triangle of care”, including regular communication and updating life stories; • a focus on the person, asserting absolute value of the person, in an individualised approach, while understanding the world from the person’s perspective and provision of a social environment that supports psychological and physical needs; • converting policy into practice. The Trust had done a lot of work since the death of Mr Burgess, and I should also be pleased to hear from the Secretary of State about wider learning for other Trusts. ”

    Source location

    Richard Burgess · Prevention of Future Deaths report
    Page 2 · concerns

    Open source report

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Lack of a multidisciplinary dementia care team with suitable skills, qualifications and competencies

    Wider context from the report

    “I did not have a sufficient level of confidence about: • the provision of a multidisciplinary team of professionals with suitable skills, qualifications and competencies commensurate with their role and the specialty of dementia care; • a prevention model and approach for dementia care that proactively uses detailed assessment, intervention and evaluation of changing care, needs and risks of the individual in order to provide therapeutic interventions and reduce the need for medication; • the evidence of assessments or the application of assessments of the impact of a person’s difficulties, including cognitive and neurological difficulties, polypharmacy, psychological and personality, mental and physical health, social, environmental and care practices, emotions, belief and thoughts of the person; • a continuous engagement with the family in the “triangle of care”, including regular communication and updating life stories; • a focus on the person, asserting absolute value of the person, in an individualised approach, while understanding the world from the person’s perspective and provision of a social environment that supports psychological and physical needs; • converting policy into practice. The Trust had done a lot of work since the death of Mr Burgess, and I should also be pleased to hear from the Secretary of State about wider learning for other Trusts. ”

    Source location

    Richard Burgess · Prevention of Future Deaths report
    Page 2 · concerns

    Open source report

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Review patient-care information regularly and adapt care plans using environmental, medication, health, engagement, incident, observation and risk data.

    Verbatim wording from the response

    “2.2. As presented at the inquest, changes have been made to the way in which reviews of patient care takes place, with an emphasis now on regularly reviewing all of the information available, which includes, but is not limited to, the environment, medication, physical health, engagement by staff, incidents, observation levels, risks, patterns in challenging behaviour and analysing how these are all impacting the patient so care plans can be adapted accordingly.”

    Source location

    2021-0163-Response-from-St-Nicholas-Hospital-Published
    Page 2 · response
    Published 24 May 2021

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Apply a preventative, person-centred dementia-care model using assessment tools, tailored activities and proactive behavioural support plans.

    Verbatim wording from the response

    “2.1. As presented at the inquest, the Trust does adopt a preventative approach to person centred care. Tools such as the Newcastle Model, life stories, dementia mapping etc., are used to help formulate care plans, which include activities linked to these assessments and ways to engage patients in therapeutic interventions that are tailored to their specific needs. Stage behaviour support plans also, by their very nature, set out proactive steps to try and prevent behaviour from escalating from one stage to another, with medication prescribed only if required.”

    Source location

    2021-0163-Response-from-St-Nicholas-Hospital-Published
    Page 2 · response
    Published 24 May 2021

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Conduct detailed multidisciplinary medication reviews with pharmacist input to assess use, effectiveness, prescriptions and changes.

    Verbatim wording from the response

    “2.3. As explained by ████████, due to the nature and degree of presentations with dementia that require admission and detention in hospital, patients sometimes require regular medication to assist with their behaviour. With the new review process there is more detailed analysis at MDT meetings, with the input of a Pharmacist, as to how often medication is being used, its effectiveness and whether a regular prescription is required, in addition to any changes in such medication. There are also safeguards within the Mental Health Act that monitor and review these treatments.”

    Source location

    2021-0163-Response-from-St-Nicholas-Hospital-Published
    Page 2 · response
    Published 24 May 2021

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Continue commissioning and funding training and programmes to recruit, develop and progress the social care workforce.

    Verbatim wording from the response

    “Ensuring that we have a workforce that has the right values, skills and knowledge, is essential to providing a high-quality service for all those who have need of care services, including those living with dementia. This is why the Department continues to commission and fund a range of training opportunities and other programmes to help recruit people into the sector and develop career pathways, and to support staff to progress to more senior management and leadership roles.”

    Source location

    2021-0163-Response-from-Department-of-Health-and-Social-Care_Published
    Page 1 · response
    Published 24 May 2021

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Implement the national Care Certificate training for newly appointed health and social care support workers.

    Verbatim wording from the response

    “Since 1 April 2015, newly appointed health care assistants and social care support workers, including those providing care to people with dementia and their carers, have been undergoing training as part of the national implementation of the Care Certificate.”

    Source location

    2021-0163-Response-from-Department-of-Health-and-Social-Care_Published
    Page 2 · response
    Published 24 May 2021

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Explore options to increase uptake of Tier 2 dementia training among staff who require it.

    Verbatim wording from the response

    “Good progress has been made to date in training the social care workforce, with around half of those estimated to require Tier 2 level training, having undertaken training to a level equivalent to it. The Department is currently exploring options for increasing uptake of Tier 2 training by everyone who needs it, and in March 2019, the Minister for Care co-signed a letter with the Chief Executive Officers of Skills for Care and Health Education England which was circulated to health and care organisations highlighting the importance of training.”

    Source location

    2021-0163-Response-from-Department-of-Health-and-Social-Care_Published
    Page 2 · response
    Published 24 May 2021

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Provide dementia care, care-planning formulation, observation and engagement training to relevant staff.

    Verbatim wording from the response

    “1.1. As presented at the inquest, all staff employed by the Trust have the relevant skills, qualifications and competencies for their role. All staff working with dementia patients have received appropriate dementia care training, with relevant staff receiving care planning formulation training, in addition to observation and engagement training.”

    Source location

    2021-0163-Response-from-St-Nicholas-Hospital-Published
    Page 1 · response
    Published 24 May 2021

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Train 10 staff members to provide dementia care mapping across relevant wards.

    Verbatim wording from the response

    “1.2. As part of the multi-disciplinary team (MDT), Mr Airey explained that the Trust employs specialist Psychiatrists who are trained to work with patients with dementia, in addition to Care of the Elderly nurses, who provide training and support to staff. The Trust also employs Activity Coordinators who are actively involved as part of the MDT process and has recently trained 10 members of staff to provide dementia care mapping training across the relevant wards.”

    Source location

    2021-0163-Response-from-St-Nicholas-Hospital-Published
    Page 2 · response
    Published 24 May 2021

    Open published response

    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Existing person-centred models, life stories and tailored activities are considered sufficient to address individuals’ psychological, physical and social needs.

    Verbatim wording from the response

    “5. A focus on the person, asserting absolute value of the person and individualised approach, whilst understanding the world from the person’s perspective and provision of a social environment that supports psychological and physical needs.”

    Source location

    2021-0163-Response-from-St-Nicholas-Hospital-Published
    Page 3 · response
    Published 24 May 2021

    Open published response

    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    The NHS Foundation Trust is responsible for reflecting on the investigation findings and taking appropriate action to improve services.

    Verbatim wording from the response

    “Finally, I expect the Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust to reflect on the findings of your investigation, and take appropriate action to strengthen and improve services. I am aware that the Trust has provided a response explaining the action it has taken following Mr Burgess’s death, particularly in relation to the way patient care is reviewed and monitored. I understand that the Trust’s strengthened review process now provides a more detailed analysis on each patient, which will assist multi-disciplinary teams to effectively plan care for dementia patients.”

    Source location

    2021-0163-Response-from-Department-of-Health-and-Social-Care_Published
    Page 4 · response
    Published 24 May 2021

    Open published response

    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Existing preventative, person-centred care processes, reviews and medication safeguards are considered sufficient to manage dementia-related needs, risks and medication use.

    Verbatim wording from the response

    “2. A prevention model and approach for dementia care that proactively uses detailed assessment, intervention and evaluation of changing care, needs and risks of the individual in order to provide therapeutic interventions and reduce the need of medication.”

    Source location

    2021-0163-Response-from-St-Nicholas-Hospital-Published
    Page 2 · response
    Published 24 May 2021

    Open published response

    Source evidence

    How this respondent position was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Existing staffing, specialist expertise and dementia training are considered sufficient to provide staff with appropriate skills and competencies.

    Verbatim wording from the response

    “1. The provision of a multi-disciplinary team and professionals with suitable skills, qualifications and competencies commensurate with their role and the speciality of dementia care.”

    Source location

    2021-0163-Response-from-St-Nicholas-Hospital-Published
    Page 1 · response
    Published 24 May 2021

    Open published response
  3. Blackpool and the Fylde

    AI-generated summary

    Dereck John CHAPMAN · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Dereck John Chapman, known to his family as John, died on 3 February 2020 from pneumonia and heart disease while recovering in hospital after surgical repair of a fractured neck of femur sustained in a fall at his nursing home. Concerns were raised about the nursing home’s insufficient response to his falls and dementia-related inability to reliably communicate symptoms, and about inaccurate, incomplete and unreliable record keeping, which were considered to pose risks of future deaths.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Insufficient staff response to patients with dementia who cannot reliably communicate symptoms

    Wider context from the report

    “(1) Response of staff at the nursing home: John had previously been diagnosed with dementia. He was at high risk of falling. His cognitive difficulties were such that he could not fully understand questions put to him, and nor could he reliably describe his symptoms. On 13th January 2020 he was seen to fall and as he did so his crown made contact with a wheelchair. The contact was felt to be minor. Some five hours later he was found face down on the floor by his bed. He was not felt to be in pain and was returned to his bed until approximately 8am on 14th January 2020 which resulted in a transfer to hospital later that day. Having considered all of the evidence I felt that the response from nursing home staff was insufficient and did not appear to have appropriately taken into account his dementia, that he may be experiencing symptoms but was unable to reliably communicate this to staff. As it transpired he did undergo a CT head scan which confirmed he had not suffered a significant head injury but this cannot have been obvious to staff at the relevant time. I did determine that the response from the nursing home staff did not contribute to the eventual outcome for John but this may not be the case in the future. I am concerned that such an insufficient response raises a risk of future deaths. ”

    Source location

    Dereck John CHAPMAN · Prevention of Future Deaths report
    Page 2 · concerns

    Open source report

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Implement electronic care documentation with handset updates, cloud storage, daily review, care-plan access and recorded night checks.

    Verbatim wording from the response

    “Rossendale Nursing Home has made improvements with documentation and staff to ensure accuracy and reliability.”

    Source location

    2020-0165-Response-from-Rossendale-Nursing-Home_Redacted.pdf
    Page 1 · response
    Published 26 October 2020

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Provide walk-around, written and verbal handovers at each shift change to share, organise and delegate care.

    Verbatim wording from the response

    “2. Walk around handover is given to staff at the start of each shift, written handover passed onto Nurse at the beginning of each shift with up to date information. Full handover is given verbally to team of staff so the team can discuss, organise and delegate care.”

    Source location

    2020-0165-Response-from-Rossendale-Nursing-Home_Redacted.pdf
    Page 2 · response
    Published 26 October 2020

    Open published response

    Source evidence

    How this respondent action was interpreted

    PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

    PFD Monitor interpretation

    Follow the post-fall protocol and complete post-fall observations and investigations after falls.

    Verbatim wording from the response

    “6. Post fall protocol Lancashire County Council being followed if a fall has occurred, post fall observations and investigation completed.”

    Source location

    2020-0165-Response-from-Rossendale-Nursing-Home_Redacted.pdf
    Page 2 · response
    Published 26 October 2020

    Open published response
  4. Derby and Derbyshire

    AI-generated summary

    Mr Kenneth Clarke · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Mr Kenneth Clarke, a 74-year-old resident of a nursing home with dementia and a high risk of choking, left his room on 23 July 2017, accessed bread that had been left out, choked and died. The inquest identified that the nursing home had no formal policies covering resident observation, food storage, kitchen and cupboard locks, dementia residents, or residents on a liquid food diet.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Lack of formal policies for residents with dementia

    Wider context from the report

    “1. Evidence emerged during the inquest that Normanton Village View Nursing Home had no formal policies covering how residents were to be observed, how foods were to be stored, locks on the kitchen and cupboards, dementia residents or residents on a liquid food diet. ”

    Source location

    Mr Kenneth Clarke · Prevention of Future Deaths report
    Page 2 · concerns

    Open source report
  5. Essex

    AI-generated summary

    Mr Roy Henry Oakley · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Mr Roy Henry Oakley was taken to Orsett Hospital for a routine blood test and, after being told to wait in the coffee shop without a settled collection arrangement, went to the ambulance bays and suffered an accident. He died on 12 June 2015. The report identified concerns that his dementia was not communicated to the transport and phlebotomy services, that no carer had been arranged to attend with him, and that information-sharing limitations may have played some part in his death.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Failure to arrange carer attendance for patients with dementia

    Wider context from the report

    “TAS had not been told that Mr Oakley suffered from Dementia and nobody had arranged for a Carer to attend with him. During the course of the inquest it emerged that the Phlebotomy Service who arranged the transport, were unaware that Mr Oakley had Dementia. The Phlebotomy Service is, commissioned out to a private company by Basildon Hospital and they do not have access to Basildon Hospitals Record Keeping System which flagged up Mr Oakley’s Dementia. Other commissioned out services are in a similar position. The failure to communicate and the lack of information sharing may have played some part in the death of Mr Oakley. ”

    Source location

    Mr Roy Henry Oakley · Prevention of Future Deaths report
    Page 2 · concerns

    Open source report
  6. West Yorkshire (East)

    AI-generated summary

    Mrs Gladys Smith · Prevention of Future Deaths report

    This summary was generated using AI from the published report. Please read the original report for the complete account.

    Report summary

    Mrs Gladys Smith died while resident at a care home; the supplied text does not provide further circumstances of her death. The concerns included failures in repositioning, bruise and wound monitoring, falls assessment, weight and nutrition monitoring, dementia care, and delays or gaps in district nursing wound documentation and referral. The report also identified a lack of comprehensive national guidance on wounds and ulcers caused by impact injuries.

    Read the report on judiciary.uk

    Source evidence

    How this individual concern was interpreted

    PFD Monitor created a concise, searchable interpretation from the report wording shown below.

    PFD Monitor interpretation

    Lack of Care Home staff knowledge of dementia care

    Wider context from the report

    “(g) Mrs Smith suffered from vascular dementia and had done so since the commencement of her residency at the Care Home. A number of other residents suffer from dementia. Care Assistants at the said Care Home have little or no knowledge of dementia and, consequently, how to care for residents suffering from such a condition. In the circumstances, all Care Home staff should undergo more indepth training in relation to dementia; ”

    Source location

    Mrs Gladys Smith · Prevention of Future Deaths report
    Page 1 · concerns

    Open source report
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Data last updated 7 September 2026