Report evidence summary
Responses linked to these concerns
Each statement is shown once, even when linked to more than one concern.
Actions described in response An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised. 49
Action
Support development and dissemination of defibrillator-related guidance with the Resuscitation Council UK.
Stated by Association of Ambulance Chief Executives Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Collaborate with partners to deliver and disseminate public communications about defibrillator use.
Stated by Association of Ambulance Chief Executives Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source
Action
Support national initiatives that increase cardiac-arrest recognition, CPR education and first-aid training.
Stated by Association of Ambulance Chief Executives Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source
Action
Encourage and support Community First Responders across the ambulance sector to provide early CPR and defibrillation.
Stated by Association of Ambulance Chief Executives Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source
Action
Support Restart a Heart and related public cardiac-arrest awareness and CPR-education initiatives.
Stated by Association of Ambulance Chief Executives Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source
Action
Presume cardiac arrest in NHS Pathways when a person collapses and becomes unconscious during exercise or sport, including when fitting is reported.
Stated by NHS England Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Revise the Clinical Genetics service specification.
Stated by NHS England Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source
Action
Work with MPDS and NHS Pathways coding sub-groups to consider further measures supporting recognition of agonal breathing or cardiac arrest.
Stated by NHS England Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source
Action
Consider how additional Clinical Genetics capacity and infrastructure could be achieved to reduce preventable morbidity and mortality.
Stated by NHS England Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source
Action
Use a breathing-rate threshold to support recognition of agonal breathing in NHS Pathways triage.
Stated by NHS England Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Continue working with health-system and community partners to support awareness, accessibility and appropriate use of defibrillators.
Stated by NHS England Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source
Action
Incorporate updated national guidance into training so CPR is commenced immediately when someone collapses during exercise and is unresponsive.
Stated by St John Ambulance Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source
Action
Introduce AEDs pre-programmed in up to three languages to support more accessible defibrillator use.
Stated by St John Ambulance Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Train CPR participants to recognise agonal breathing and commence CPR when a person is unresponsive and not breathing normally.
Stated by St John Ambulance Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Support dissemination of guidance on consent and confidentiality in genomic medicine.
Stated by British Society For Genetic Medicine Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source
Action
Raise awareness of the need to share genetic diagnoses and genomic test results within families.
Stated by British Society For Genetic Medicine Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source
Action
Provide cardiac screening to more than 35,000 young people annually.
Stated by Cardiac Risk in the Young Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Invest in machine learning and artificial intelligence to make screening more cost-effective, address specialist ECG interpreter shortages, and increase capacity.
Stated by Cardiac Risk in the Young Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source
Action
Continue campaigning for awareness of young sudden cardiac death, heart testing access, and further prevention research.
Stated by Cardiac Risk in the Young Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source
Action
Review another ambulance service’s video-assisted resuscitation guidance pilot to assess whether implementation would benefit local telephone triage.
Stated by South Central Ambulance Service NHS Foundation Trust Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source
Action
Replace the computer-aided dispatch system and use the pilot outcome to inform its pre-sieve question set.
Stated by South Central Ambulance Service NHS Foundation Trust Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source
Action
Deliver community basic life-support training covering automated external defibrillator benefits, appropriate use and operation.
Stated by South Central Ambulance Service NHS Foundation Trust Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Hold an initial meeting with a local football academy and agree initial progress actions for proposed joint training on collapsed-player 999 calls.
Stated by South Central Ambulance Service NHS Foundation Trust Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source
Action
Trial the Pre-Sieve Questions Project to reduce pre-sieve questioning and accelerate Nature of Call selection.
Stated by South Central Ambulance Service NHS Foundation Trust Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source
Action
Use the integrated national defibrillator network to prompt callers to retrieve nearby devices and provide verbal application guidance during cardiac-arrest calls.
Stated by South Central Ambulance Service NHS Foundation Trust Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Disseminate CPR and defibrillation education through social-media posts reaching community audiences.
Stated by South Central Ambulance Service NHS Foundation Trust Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Strengthen emergency call-taker training with audible agonal-breathing examples, listening-skills guidance and clinical-escalation emphasis.
Stated by South Central Ambulance Service NHS Foundation Trust Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Use a less-than-one-breath-per-ten-seconds threshold in NHS Pathways to support recognition of agonal breathing.
Stated by NHS England Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Presume collapse with unconsciousness during exercise or sport, including reported fitting, to be cardiac arrest regardless of apparent regular breathing.
Stated by NHS England Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Continue working with health-system and community partners to support defibrillator awareness, accessibility and appropriate use.
Stated by NHS England Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source
Action
Work with MPDS and NHS Pathways coding sub-groups to consider further measures helping the public recognise agonal breathing or cardiac arrest.
Stated by NHS England Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source
Action
Revise the Clinical Genetics service specification and consider ways to increase capacity and infrastructure for proactive family contact.
Stated by NHS England Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source
Action
Launch a dedicated referee learning-management system to track completion and communicate directly with referees.
Stated by The Football Association Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source
Action
Amend downloadable club and venue resources to improve AED location awareness, preparedness, maintenance and access.
Stated by The Football Association Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Undertake a feasibility study on phased requirements for SCA-trained coverage at football games and use its findings to inform long-term proposals.
Stated by The Football Association Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source
Action
Promote the SCA module through websites, social media, newsletters, referee communications and County Football Association asset packs.
Stated by The Football Association Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source
Action
Add the SCA module to Advanced Trauma Medical Management in Football training.
Stated by The Football Association Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Revise SCA, first-aid and defibrillator training content to incorporate current guidance, case learning and clearer emergency-response instructions.
Stated by The Football Association Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Increase football-match AED availability and provide free AED training covering use, storage, registration and checking.
Stated by The Football Association Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Require tutors to reinforce key SCA-response messages and show abnormal-breathing videos at every face-to-face course.
Stated by The Football Association Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Reintegrate the SCA module into EE Playmaker and notify affected learners that completion is required to retain certification.
Stated by The Football Association Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source
Action
Raise awareness of the need to share genetic diagnoses and genomic test results within families.
Stated by British Society For Genetic Medicine Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source
Action
Publish simplified guidance directing people to suspect cardiac arrest when an unresponsive person has abnormal breathing.
Stated by Resuscitation Council UK Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Work with NHS England through NHS Pathways to support standardised dispatch algorithms and telephone-assisted CPR instructions.
Stated by Resuscitation Council UK Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source
Action
Work with national partners to support public awareness, training and access to defibrillators, including collaboration with the British Heart Foundation on The Circuit.
Stated by Resuscitation Council UK Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source
Action
Campaign for basic life-support training to be included in national school curricula across the four nations.
Stated by Resuscitation Council UK Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Promote education and develop setting-specific resuscitation guidance for sport and community environments.
Stated by Resuscitation Council UK Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source
Action
Publish a national best-practice guide supporting early recognition of cardiac arrest and prompt CPR and defibrillation in community sport.
Stated by Resuscitation Council UK Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source
Action
Strengthen public education campaigns, including an annual Restart a Heart focus on recognising and raising awareness of agonal breathing.
Stated by Resuscitation Council UK Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source See 46 more actions
× Source evidence
How this individual concern was interpreted PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.
PFD Monitor interpretation Insufficient understanding of defibrillator use among lay persons and trained first aid persons
Wider context from the report “POINT C: That there is a need for better understanding of the use of defibrillators particularly by lay persons and trained first aid persons
” Is this part of a recurring concern? No recurring-concern membership is currently published.
Open source report × Source evidence
How this individual concern was interpreted PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.
PFD Monitor interpretation Insufficient dissemination and mandatory coverage of Sudden Cardiac Arrest training across football leagues, clubs, coaches and referees
Wider context from the report “POINT B: That the Football Association’s Sudden Cardiac Arrest training is not more widely disseminated or mandatory for all FA Accredited and Affiliated leagues and clubs and all grassroots football coaches and referees .
” Open source report × Source evidence
How this individual concern was interpreted PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.
PFD Monitor interpretation Difficulty among lay people and ambulance call handlers in recognising signs of agonal breathing or cardiac arrest
Wider context from the report “POINT A: That there is difficulty in lay people (trained or not) including ambulance call handlers in understanding the signs of agonal breathing or cardiac arrest
” Open source report × Source evidence
How this individual concern was interpreted PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.
PFD Monitor interpretation Unavailability of cardiac screening for all young people and football players aged 14 and upwards
Wider context from the report “POINT D: That cardiac screening in those aged 14 and upwards reduces the risk of sudden cardiac death and this is not available to all young people or your football players
” Open source report × Source evidence
How this individual concern was interpreted PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.
PFD Monitor interpretation Failure of cascade communication of genetic or hereditary diseases to reach family members who need to know
Wider context from the report “POINT E: That cascade communication of genetic or hereditary diseases is imperfect and does not reach more than half of those in families that need to know about it .
” Open source report
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Support development and dissemination of defibrillator-related guidance with the Resuscitation Council UK.
Verbatim wording from the response “AACE has also worked alongside RCUK to support the development and dissemination of related guidance, an example being RCUK’s current delivery of field of play guidance, specifically focused at grassroots sports.” Source location Response from Association of Ambulance Chief Executives
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Collaborate with partners to deliver and disseminate public communications about defibrillator use.
Verbatim wording from the response “AACE has supported a number of nationwide initiatives to improve access to defibrillators. We co-produced a consensus statement in 2024 recommending that all defibrillators are stored in unlocked boxes and available 24/7. In conjunction with ambulance services, AACE regularly collaborates with partners to deliver and disseminate public-facing communications about the use of defibrillators. There is ongoing work to improve the placement of defibrillators through strategic optimisation tools, to identify areas of highest risk, and lowest access to defibrillators.” Source location Response from Association of Ambulance Chief Executives
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Support national initiatives that increase cardiac-arrest recognition, CPR education and first-aid training.
Verbatim wording from the response “We fully support other national initiatives and there are a wealth of national programmes seeking to increase recognition of cardiac arrest, early CPR and defibrillation use. Ambulance services are active in delivering such training to the public. AACE’s out-of-hospital cardiac arrest programme is key in supporting such initiatives including mandating CPR training in schools and the introduction of first aid training for driving tests. We also support Restart a Heart (RSAH) and RSAH Live: annual initiatives led by Resuscitation Council UK (RCUK) and Save a Life Scotland which aim to increase the number of people surviving out-of-hospital cardiac arrests by improving cardiac arrest awareness and CPR education.” Source location Response from Association of Ambulance Chief Executives
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Encourage and support Community First Responders across the ambulance sector to provide early CPR and defibrillation.
Verbatim wording from the response “Bystander CPR rates across the English ambulance services continues to be high (>75%) and defibrillator use is improving with the highest recorded use to date in 2024 (2025 data not yet available). To support timely access to CPR and defibrillators, we encourage and support the use of Community First Responders (CFRs) across the ambulance sector. These volunteers are trained in CPR and carry with them defibrillators and respond to 999 calls including cardiac arrests. Often, they can be tasked and arrive before the ambulance and can help in the early recognition of cardiac arrest” Source location Response from Association of Ambulance Chief Executives
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Support Restart a Heart and related public cardiac-arrest awareness and CPR-education initiatives.
Verbatim wording from the response “We fully support other national initiatives and there are a wealth of national programmes seeking to increase recognition of cardiac arrest, early CPR and defibrillation use. Ambulance services are active in delivering such training to the public. AACE’s out-of-hospital cardiac arrest programme is key in supporting such initiatives including mandating CPR training in schools and the introduction of first aid training for driving tests. We also support Restart a Heart (RSAH) and RSAH Live: annual initiatives led by Resuscitation Council UK (RCUK) and Save a Life Scotland which aim to increase the number of people surviving out-of-hospital cardiac arrests by improving cardiac arrest awareness and CPR education.” Source location Response from Association of Ambulance Chief Executives
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Presume cardiac arrest in NHS Pathways when a person collapses and becomes unconscious during exercise or sport, including when fitting is reported.
Verbatim wording from the response “Additional measures have also been taken following learning from this case. In January 2025, NHS Pathways updated the triage so now anyone who collapses and becomes unconscious during exercise or sport, including those reported to be fitting,” Source location Response from NHS England 2
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Revise the Clinical Genetics service specification.
Verbatim wording from the response “Currently, there is insufficient capacity and infrastructure for Clinical Genetics and/or specialist clinical services (e.g. Cardiology/Inherited Cardiac Conditions services) to actively contact family members outside of situations where a particularly high risk has been identified (e.g. individual potentially displaying symptoms and/or athlete undertaking intensive sporting activities at risk of ARVC). The Clinical Genetics service specification is currently being revised, and this will be considered as part of this work. This is an aspect of the clinical service where additional capacity and infrastructure may have the potential to reduce preventable morbidity and mortality. The "Clinical Genetics Transformation Programme", who are the group working on the new service specification and its implementation, will consider the ways in which this may be achieved.” Source location Response from NHS England 2
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Work with MPDS and NHS Pathways coding sub-groups to consider further measures supporting recognition of agonal breathing or cardiac arrest.
Verbatim wording from the response “NHS England will work with the MPDS and NHS Pathways coding sub-groups to consider whether further measures should be taken to help members of the public recognise the signs of agonal breathing or cardiac arrest.” Source location Response from NHS England 2
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Consider how additional Clinical Genetics capacity and infrastructure could be achieved to reduce preventable morbidity and mortality.
Verbatim wording from the response “Currently, there is insufficient capacity and infrastructure for Clinical Genetics and/or specialist clinical services (e.g. Cardiology/Inherited Cardiac Conditions services) to actively contact family members outside of situations where a particularly high risk has been identified (e.g. individual potentially displaying symptoms and/or athlete undertaking intensive sporting activities at risk of ARVC). The Clinical Genetics service specification is currently being revised, and this will be considered as part of this work. This is an aspect of the clinical service where additional capacity and infrastructure may have the potential to reduce preventable morbidity and mortality. The "Clinical Genetics Transformation Programme", who are the group working on the new service specification and its implementation, will consider the ways in which this may be achieved.” Source location Response from NHS England 2
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Use a breathing-rate threshold to support recognition of agonal breathing in NHS Pathways triage.
Verbatim wording from the response “• A breathing rate of less than one breath every 10 seconds is used as a measure of inadequate breathing as this is a more identifiable and objective marker in remote telephony triage than clinical descriptions of agonal breathing for assessment between a non-clinical health advisor and a member of the public. NHS Pathways introduced this measure in 2020 to support the identification of agonal breathing which was agreed in conjunction with the Resuscitation Council UK.” Source location Response from NHS England 2
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Continue working with health-system and community partners to support awareness, accessibility and appropriate use of defibrillators.
Verbatim wording from the response “We will continue to work with partners across the health system and wider community to support awareness, accessibility and appropriate use of defibrillators.” Source location Response from NHS England 2
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Incorporate updated national guidance into training so CPR is commenced immediately when someone collapses during exercise and is unresponsive.
Verbatim wording from the response “Part of the training for all undertaking CPR is about agonal breathing. We train people to commence CPR if someone is unresponsive and not breathing normally. Recent changes to national guidance are being brought into training, which is the change that if someone collapses during exercise and is unresponsive CPR commenced immediately.” Source location Response from St John Ambulance
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Introduce AEDs pre-programmed in up to three languages to support more accessible defibrillator use.
Verbatim wording from the response “Everyone is trained in how to use an AED and training- AEDs are included in the training programmes. St John Ambulance has also introduced AEDs that can be pre-programmed in up to 3 languages which it is believed will help address some of the health inequalities that are evident in the data regarding out of hospital cardiac arrest.” Source location Response from St John Ambulance
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Train CPR participants to recognise agonal breathing and commence CPR when a person is unresponsive and not breathing normally.
Verbatim wording from the response “Part of the training for all undertaking CPR is about agonal breathing. We train people to commence CPR if someone is unresponsive and not breathing normally. Recent changes to national guidance are being brought into training, which is the change that if someone collapses during exercise and is unresponsive CPR commenced immediately.” Source location Response from St John Ambulance
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Support dissemination of guidance on consent and confidentiality in genomic medicine.
Verbatim wording from the response “The Joint Committee on Genomics in Medicine (JCGM) is a joint committee of BSGM, Royal College of Physicians, Royal College of Pathologists. In 2019, JCGM released the 3rd edition of the guidance document ‘Consent and confidentiality in genomic medicine’. This was written by ████████ who has given evidence in this inquest, and ████████. Many of the principles in practice within specialist clinical genetics and genomic practice are supported by the principles of this document. Genetic testing is now more embedded in clinical practice outside of the specialist genetics workforce. There are many educational activities underway to equip non genetics specialists to deliver their specific element of genetic medicine, for example by giving patients information about their genetic risk and by requesting genetic testing, giving the result and explaining the implications to the wider family.” Source location Response from British Society for Genetic Medicine
Open published response
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Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Raise awareness of the need to share genetic diagnoses and genomic test results within families.
Verbatim wording from the response “BSGM’s role in this situation is to raise awareness of the need to share important information about genetic diagnosis and the results of genomic tests. BSGM will also contribute to documents such as ‘Consent and confidentiality in genomic medicine’ and to help in its dissemination. BSGM through its members can also help to influence service development in both specialist genetic services and also in more mainstreamed genetic medicine. Work is currently ongoing by NHS England to review the service specification for the Clinical Genomics Services and the working group involved in this work includes many BSGM or its contributory groups (Clinical Genetics Society and Association of Genetic Nurses and Counsellors) officers.” Source location Response from British Society for Genetic Medicine
Open published response
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Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Provide cardiac screening to more than 35,000 young people annually.
Verbatim wording from the response “The ECG is the most effective tool available for the early identification of many cardiac conditions associated with young sudden cardiac death. Once a condition is identified, appropriate advice, treatment and clinical management can be provided to significantly reduce the risk of cardiac arrest. CRY currently screens more than 35,000 young people each year and one in every 300 young people screened will be identified with a potentially life-threatening cardiac condition. Demand for screening continues to exceed CRY's current capacity to provide it. To help address this challenge, CRY is investing in machine learning and AI to make screening more cost-effective, address the shortage of specialist ECG interpreters, and help meet current and future demand.” Source location Response from Cardiac Risk in the Young
Open published response
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Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Invest in machine learning and artificial intelligence to make screening more cost-effective, address specialist ECG interpreter shortages, and increase capacity.
Verbatim wording from the response “The ECG is the most effective tool available for the early identification of many cardiac conditions associated with young sudden cardiac death. Once a condition is identified, appropriate advice, treatment and clinical management can be provided to significantly reduce the risk of cardiac arrest. CRY currently screens more than 35,000 young people each year and one in every 300 young people screened will be identified with a potentially life-threatening cardiac condition. Demand for screening continues to exceed CRY's current capacity to provide it. To help address this challenge, CRY is investing in machine learning and AI to make screening more cost-effective, address the shortage of specialist ECG interpreters, and help meet current and future demand.” Source location Response from Cardiac Risk in the Young
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Continue campaigning for awareness of young sudden cardiac death, heart testing access, and further prevention research.
Verbatim wording from the response “CRY will continue to campaign to raise awareness of young sudden cardiac death, the devastating impact it has on families, and the need for every young person to have the opportunity to have their heart tested, as well as the importance of further research into the causes and prevention of young sudden cardiac death.” Source location Response from Cardiac Risk in the Young
Open published response
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Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Review another ambulance service’s video-assisted resuscitation guidance pilot to assess whether implementation would benefit local telephone triage.
Verbatim wording from the response “Telephone triage is a recognised challenge because the person completing the triage is unable to see the patient and / or the scene and it can be hard for a member of public to describe what they are seeing, particularly when they are inadvertently panicked by witnessing an emergency. A recent pilot of video assisted clinical guidance during resuscitation has been undertaken by another ambulance Trust within the UK. The results of this pilot have been shared with SCAS, and we are currently reviewing the results to consider whether implementing this system within SCAS would be of benefit, particularly when there is uncertainty surrounding a patient’s presentation, as there was in Adam’s case.” Source location Response from South Central Ambulance Service NHS Foundation Trust
Open published response
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Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Replace the computer-aided dispatch system and use the pilot outcome to inform its pre-sieve question set.
Verbatim wording from the response “The Trust is currently in the process of replacing its computer aided dispatch (CAD) system and the outcome of the above pilot will help to inform the population of pre sieve questions within the new CAD system. It is not possible to integrate them into the current system due to the limitations of its technology.” Source location Response from South Central Ambulance Service NHS Foundation Trust
Open published response
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Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Deliver community basic life-support training covering automated external defibrillator benefits, appropriate use and operation.
Verbatim wording from the response “To promote knowledge of life saving skills outside of an emergency, our Community Engagement Team regularly deliver basic life support training sessions within our local communities, which includes the benefits of using an automated external defibrillator (AED), when they should be used and emphasising that the devices will not deliver defibrillation to a patient unless they are in a shockable cardiac rhythm. Enclosed with this response is a document which includes links to publications of the training sessions we have provided as examples of the types of sessions that we provide.” Source location Response from South Central Ambulance Service NHS Foundation Trust
Open published response
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Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Hold an initial meeting with a local football academy and agree initial progress actions for proposed joint training on collapsed-player 999 calls.
Verbatim wording from the response “As an initial step, the Trust has contacted a local football academy to discuss this proposal, and they are keen to explore this further with us. The Trust has also contacted your office and obtained the contact details for the representative from the Football Association your officers used for Adam’s inquest so that this proposal can be discussed with them.” Source location Response from South Central Ambulance Service NHS Foundation Trust
Open published response
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Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Trial the Pre-Sieve Questions Project to reduce pre-sieve questioning and accelerate Nature of Call selection.
Verbatim wording from the response “The significance of using the ‘no, no, go’ approach is discussed throughout the training that we provide. This will be further supported by our ‘Pre-Sieve Questions Project’ which is being trialled in June 2026. This project will concentrate on reducing the number of pre-sieve questions asked by an ECT regarding a patient’s consciousness level and breathing rate before a Nature of Call (NOC) is selected. The aim of the project is to reduce the time that is taken to select a NOC to a maximum of 15 seconds after a 999 call is answered.” Source location Response from South Central Ambulance Service NHS Foundation Trust
Open published response
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Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Use the integrated national defibrillator network to prompt callers to retrieve nearby devices and provide verbal application guidance during cardiac-arrest calls.
Verbatim wording from the response “In real time emergency situations, the national defibrillator network, The Circuit, is installed within our CAD system. When it is recognised that a patient is in cardiac arrest and there is more than one person on scene with the patient, our ECTs will be prompted to direct a caller to obtain a defibrillator which is close to the location of the incident. The ECT will then provide verbal support to the caller instructing them to apply the device and follow the instructions contained within the AED prior to the arrival of an ambulance resource.” Source location Response from South Central Ambulance Service NHS Foundation Trust
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Disseminate CPR and defibrillation education through social-media posts reaching community audiences.
Verbatim wording from the response “In addition to the face-to-face practical sessions, the Trust also engages with communities over social media platforms. Since April 2025, the Trust has shared 26 posts on our Facebook page related to cardiopulmonary resuscitation (CPR) and defibrillation, which reached an online audience of just under 1.2 million people. This included a video of a SCAS staff member carrying out CPR to the tune of ‘Golden’ from KPop Demon Hunters to capture the attention of the younger members of our community; this post alone had over 558,000 views.” Source location Response from South Central Ambulance Service NHS Foundation Trust
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Strengthen emergency call-taker training with audible agonal-breathing examples, listening-skills guidance and clinical-escalation emphasis.
Verbatim wording from the response “In response to the learning from the inquest hearing into Adam’s death and the concerns that you have raised, the Trust has strengthened the core training currently provided to our ECTs, in addition to the mandated NHS Pathways training. Additional audible examples of different types of agonal (abnormal) breathing that may be displayed have now been included as it was recognised that in this case, Adam’s presentation of agonal breathing was atypical. The importance of using effective listening skills and seeking clinical advice when there is uncertainty has also been emphasised within our core training.” Source location Response from South Central Ambulance Service NHS Foundation Trust
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Use a less-than-one-breath-per-ten-seconds threshold in NHS Pathways to support recognition of agonal breathing.
Verbatim wording from the response “• A breathing rate of less than one breath every 10 seconds is used as a measure of inadequate breathing as this is a more identifiable and objective marker in remote telephony triage than clinical descriptions of agonal breathing for assessment between a non-clinical health advisor and a member of the public. NHS Pathways introduced this measure in 2020 to support the identification of agonal breathing which was agreed in conjunction with the Resuscitation Council UK.” Source location Response from NHS England
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Presume collapse with unconsciousness during exercise or sport, including reported fitting, to be cardiac arrest regardless of apparent regular breathing.
Verbatim wording from the response “Additional measures have also been taken following learning from this case. In January 2025, NHS Pathways updated the triage so now anyone who collapses and becomes unconscious during exercise or sport, including those reported to be fitting,” Source location Response from NHS England
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Continue working with health-system and community partners to support defibrillator awareness, accessibility and appropriate use.
Verbatim wording from the response “NHS England works with system partners, including ambulance services and the British Heart Foundation (BHF) particularly through support for The Circuit: the national defibrillator network (which NHS England part-funds in partnership with the BHF). This enables ambulance services to direct bystanders to the nearest registered defibrillator where available.” Source location Response from NHS England
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Work with MPDS and NHS Pathways coding sub-groups to consider further measures helping the public recognise agonal breathing or cardiac arrest.
Verbatim wording from the response “NHS England will work with the MPDS and NHS Pathways coding sub-groups to consider whether further measures should be taken to help members of the public recognise the signs of agonal breathing or cardiac arrest.” Source location Response from NHS England
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Revise the Clinical Genetics service specification and consider ways to increase capacity and infrastructure for proactive family contact.
Verbatim wording from the response “Currently, there is insufficient capacity and infrastructure for Clinical Genetics and/or specialist clinical services (e.g. Cardiology/Inherited Cardiac Conditions services) to actively contact family members outside of situations where a particularly high risk has been identified (e.g. individual potentially displaying symptoms and/or athlete undertaking intensive sporting activities at risk of ARVC). The Clinical Genetics service specification is currently being revised, and this will be considered as part of this work. This is an aspect of the clinical service where additional capacity and infrastructure may have the potential to reduce preventable morbidity and mortality. The “Clinical Genetics Transformation Programme”, who are the group working on the new service specification and its implementation, will consider the ways in which this may be achieved.” Source location Response from NHS England
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Launch a dedicated referee learning-management system to track completion and communicate directly with referees.
Verbatim wording from the response “19. The FA intends to launch a new Learning Management System for referees in August 2026. The use of a dedicated platform will enable greater tracking of training completion statistics for referees (as distinct from other participants) and this will also provide a platform by which The FA will be able to communicate directly with referees and therefore provides an additional opportunity to promote completion of the SCA module.” Source location Response from The FA
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Amend downloadable club and venue resources to improve AED location awareness, preparedness, maintenance and access.
Verbatim wording from the response “27. In addition to the information about use of a defibrillator in the SCA module, The FA has a separate Emergency Action Planning Module which is available online free of charge. This contains information about the location and use of AEDs at football grounds. Following the issuance of the Report, the FA has amended its downloadable resources to support preparedness and familiarity with defibrillators across each club and venue. The amended resources (such as “How To Use An AED” and “Your Club’s Nearest AED”) support club staff in identifying the location of each defibrillator and prompt thinking about maintenance and access. The resources emphasise that no harm can be caused by the application of an AED and that it will not shock unless required.” Source location Response from The FA
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Undertake a feasibility study on phased requirements for SCA-trained coverage at football games and use its findings to inform long-term proposals.
Verbatim wording from the response “21. The FA has committed to undertaking a feasibility study in the coming season to examine strategies that could lead to every game being attended by at least one individual who has completed the SCA module. The feasibility study will consider the practicability and efficacy of a phased approach to the introduction of mandating training for certain categories of participants.” Source location Response from The FA
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Promote the SCA module through websites, social media, newsletters, referee communications and County Football Association asset packs.
Verbatim wording from the response “The FA will actively promote the SCA module on The FA and England Football websites and across its social media platforms before the start of the 2026/2027 grassroots season to encourage engagement. The FA has 262,000 social media followers and England Football has 2.3 million social media followers. There are an average of 542,000 monthly active users on thefa.com and 583,000 monthly active users on EnglandFootball.com.
iv. The FA will include information about the SCA module and risks of SCA in its Clubs and Leagues newsletter, to be sent on Friday 26th June, asking recipients to encourage everyone involved in their respective clubs and leagues to complete the free SCA module. The Clubs and Leagues newsletter is sent to an audience of 132,700 contacts at affiliated clubs and leagues;” Source location Response from The FA
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Add the SCA module to Advanced Trauma Medical Management in Football training.
Verbatim wording from the response “10. The SCA module is mandated across the medical pathway from Level 1 to Level 4. While it is difficult to ascertain precise statistics, there have been more than 430,000 completions of FA medical courses since 2021 (more than 300,000 are completion of IFAiF). From 19 May 2026,” Source location Response from The FA
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Revise SCA, first-aid and defibrillator training content to incorporate current guidance, case learning and clearer emergency-response instructions.
Verbatim wording from the response “13. Following the Inquest, the FA has undertaken a review of its IFAIF course and the SCA module to ensure learning from best practice guidelines and this case are fully reflected in the content delivered. A member of the FA’s Medical Team was a contributor to the Resuscitation Council UK ‘Resuscitation on the Field of Play’ Guidelines and the new ‘Resuscitation in Community Sports: A National Best Practice Guide’ (dated April 2026).” Source location Response from The FA
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Increase football-match AED availability and provide free AED training covering use, storage, registration and checking.
Verbatim wording from the response “26. While the Resuscitation Council UK do not recommend formal training for the use of a defibrillator and the HSE removed approval for formal training in October 2013, the FA took proactive steps to increase the presence of defibrillators (or “AEDs”) at football matches and to ensure participants were appropriately trained in how to use an AED, how to store it, register it and check it. For example, The FA participated in three AED roll-outs and provided free AED training courses, delivered by The FA’s IFAiF and EFAiF tutors, to all those in receipt of an AED (paid for by FA Education).” Source location Response from The FA
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Require tutors to reinforce key SCA-response messages and show abnormal-breathing videos at every face-to-face course.
Verbatim wording from the response “18. The FA has also taken steps to ensure that learning from this case is incorporated into delivery of training by tutors across all in-person courses. Tutors have been advised to promote the relevant points and asked to show a video distinguishing normal breathing from abnormal breathing/agonal breathing at every face-to-face course.” Source location Response from The FA
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Reintegrate the SCA module into EE Playmaker and notify affected learners that completion is required to retain certification.
Verbatim wording from the response “9. The SCA training module is also an essential component of ‘EE Playmaker by England Football’ (“EE Playmaker”). EE Playmaker is a free online entry level football course for those interested in a more active role in grassroots football. Between January 2026 and June 2026, the SCA module was temporarily signposted for completion by participants as part of EE Playmaker rather than being integrated into the module itself. However, the SCA module will be fully integrated back into EE Playmaker from 12 June 2026. Over 12,000 learners who had either completed or enrolled on EE Playmaker between January 2026 and June 2026 have been contacted by The FA and informed that they are required to complete the SCA module in order for their EE Playmaker certificate to remain valid.” Source location Response from The FA
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Raise awareness of the need to share genetic diagnoses and genomic test results within families.
Verbatim wording from the response “BSGM’s role in this situation is to raise awareness of the need to share important information about genetic diagnosis and the results of genomic tests. BSGM will also contribute to documents such as ‘Consent and confidentiality in genomic medicine’ and to help in its dissemination. BSGM through its members can also help to influence service development in both specialist genetic services and also in more mainstreamed genetic medicine. Work is currently ongoing by NHS England to review the service specification for the Clinical Genomics Services and the working group involved in this work includes many BSGM or its contributory groups (Clinical Genetics Society and Association of Genetic Nurses and Counsellors) officers.” Source location Response from British Society for Genetic Medicine
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Publish simplified guidance directing people to suspect cardiac arrest when an unresponsive person has abnormal breathing.
Verbatim wording from the response “Recognition of agonal breathing and cardiac arrest is a well-established challenge. Current UK Resuscitation Guidelines (2025) address this through clear and simplified messaging: cardiac arrest should be suspected in any unresponsive person, and if they are unresponsive with abnormal breathing, cardiac arrest should be assumed. The identification of agonal breathing is challenging, and it is well established that it is often mistaken for adequate breathing. Training, therefore, focusses on identifying someone who is not breathing normally, rather than trying to teach those undertaking first aid the varying and often not obvious appearance of agonal breathing.” Source location Response from Resuscitation Council UK
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Work with NHS England through NHS Pathways to support standardised dispatch algorithms and telephone-assisted CPR instructions.
Verbatim wording from the response “The recognition of cardiac arrest by ambulance service call handlers is also a critical component of the early response. We work closely with NHS England (through NHS Pathways) to support emergency medical dispatch systems to use standardised algorithms which support the prompt identification of cardiac arrest and enable call handlers to provide immediate telephone-assisted CPR instructions. Our systems-level guidance further recommends that ambulance services teach, monitor, and continuously improve cardiac arrest recognition within dispatch centres, recognising this as a key link in the chain of survival⁴. The challenge for an ambulance call taker to correctly recognise cardiac arrest is well established, and a significant amount of work has been undertaken to improve this vital link in the chain of survival.” Source location Response from Resuscitation Council UK
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Work with national partners to support public awareness, training and access to defibrillators, including collaboration with the British Heart Foundation on The Circuit.
Verbatim wording from the response “RCUK is working with national partners to support public awareness, training, and access to defibrillators. This includes collaboration with the British Heart Foundation to support The Circuit, the national defibrillator network, which enables ambulance services to direct bystanders to nearby devices⁵. RCUK also continues to promote education and develop guidance for specific settings, including sport and community settings, to support a timely and effective response.” Source location Response from Resuscitation Council UK
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Campaign for basic life-support training to be included in national school curricula across the four nations.
Verbatim wording from the response “through each step and will only deliver a shock if it is clinically indicated⁵. The guidelines emphasise that anyone can use an AED and that it should be applied as soon as it becomes available¹. Of course, training in first aid is encouraged so that bystanders who find themselves presented with someone who has collapsed have the confidence and skills to deliver basic life support and defibrillation. RCUK and partner organisations have successfully campaigned to include basic life support training in the national curriculum across the four nations. However, it is not currently mandatory, and we continue to campaign to ensure that every child leaves school with the skills to save a life. In addition, RCUK and partners have successfully secured the inclusion of resuscitation-related questions in the driving licence theory test.” Source location Response from Resuscitation Council UK
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Promote education and develop setting-specific resuscitation guidance for sport and community environments.
Verbatim wording from the response “RCUK is working with national partners to support public awareness, training, and access to defibrillators. This includes collaboration with the British Heart Foundation to support The Circuit, the national defibrillator network, which enables ambulance services to direct bystanders to nearby devices⁵. RCUK also continues to promote education and develop guidance for specific settings, including sport and community settings, to support a timely and effective response.” Source location Response from Resuscitation Council UK
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Publish a national best-practice guide supporting early recognition of cardiac arrest and prompt CPR and defibrillation in community sport.
Verbatim wording from the response “RCUK has reinforced this approach through its ‘Resuscitation on the Field of Play: Best Practice Guidelines’², which aim to improve the recognition and response to sudden cardiac arrest in sporting environments. These guidelines are designed for medical teams responding to a person who collapses during or shortly after sporting activity within professional sport, including football. RCUK has also recently published ‘Resuscitation in community sports: a national best practice guide’³, aimed at grassroots sport to improve early recognition of cardiac arrest and prompt use of CPR and defibrillation.” Source location Response from Resuscitation Council UK
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Strengthen public education campaigns, including an annual Restart a Heart focus on recognising and raising awareness of agonal breathing.
Verbatim wording from the response “RCUK recognises that, despite clear guidance, the recognition of cardiac arrest in real-world settings can remain challenging, particularly in environments such as grassroots sport. In response, RCUK will continue to strengthen its public-facing education campaigns. For example, as part of RCUK’s annual Restart a Heart campaign, this year’s programme will include a focus on recognising and raising awareness of agonal breathing.” Source location Response from Resuscitation Council UK
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Training and education of ambulance staff and the public, including defibrillator use, are outside the organisation’s responsibilities.
Verbatim wording from the response “We must emphasise that as a membership organisation, AACE is not responsible for the training or education of ambulance staff, or the public / lay people. We do, however, believe it is everyone’s responsibility to consider the need for first aid training and how to recognise and help someone in cardiac arrest by being able to perform cardio-pulmonary resuscitation (CPR) and use a defibrillator if available, until professional help arrives.” Source location Response from Association of Ambulance Chief Executives
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Medical professionals should lead case-by-case cascade communication of genetic or hereditary disease information.
Verbatim wording from the response “We fully understand that our survivor members may have concerns surrounding potential genetic or hereditary disease, however, feel that the cascade of this information should be led by medical professionals at source on a case to case basis.” Source location Response from Sudden Cardiac Arrest
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Lack of medical qualifications prevents commenting on initiatives concerning genetic or hereditary disease cascade communication.
Verbatim wording from the response “If required, we could consider any initiative to support POINT E, however do not feel that we are either qualified to comment on such matters, or that it is within our remit as a peer to peer support charity.” Source location Response from Sudden Cardiac Arrest
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Genetic or hereditary disease cascade communication falls outside the peer-support charity’s remit.
Verbatim wording from the response “Our group aim focusses on the consequence and recovery from a sudden cardiac arrest and not the cause. Whilst discussions do take place surrounding cause, this is minimal and not the focus or remit off our group.” Source location Response from Sudden Cardiac Arrest
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation The claimed evidence that cascade genetic-risk communication fails to reach more than half of affected family members could not be located.
Verbatim wording from the response “NHS England have reviewed your concern that cascade communication of genetic/hereditary disease “does not reach more than half of those in families that need to know about it” but have been unable to locate the literature or evidence where this originated. Information sharing between family members of a particular genetic risk of a condition will be different for different conditions.” Source location Response from NHS England 2
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Directly mandating or delivering public first-aid training is outside the respondent’s functions.
Verbatim wording from the response “NHS England does not directly mandate or deliver public first aid training. However, we recognise the importance of ensuring that NHS staff have appropriate resuscitation skills. As part of wider statutory and mandatory training reforms, consideration is being given to strengthening BLS and AED training requirements across NHS staff groups, including those in non-patient facing roles (subject to final policy confirmation).” Source location Response from NHS England 2
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Clinical services lack sufficient capacity and infrastructure to proactively contact lower-risk relatives outside specified high-risk situations.
Verbatim wording from the response “Currently, there is insufficient capacity and infrastructure for Clinical Genetics and/or specialist clinical services (e.g. Cardiology/Inherited Cardiac Conditions services) to actively contact family members outside of situations where a particularly high risk has been identified (e.g. individual potentially displaying symptoms and/or athlete undertaking intensive sporting activities at risk of ARVC). The Clinical Genetics service specification is currently being revised, and this will be considered as part of this work. This is an aspect of the clinical service where additional capacity and infrastructure may have the potential to reduce preventable morbidity and mortality. The "Clinical Genetics Transformation Programme", who are the group working on the new service specification and its implementation, will consider the ways in which this may be achieved.” Source location Response from NHS England 2
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation The National Screening Committee decides cardiac screening policy, with no UK consensus and review scheduled for 2026/27.
Verbatim wording from the response “There has been no clear UK consensus on the benefits of screening of young people for participation in sport.” Source location Response from NHS England 2
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Implementing service change is outside the organisation’s remit; it can only influence how genetic services are delivered.
Verbatim wording from the response “While many members of BSGM sit in positions of leadership within clinical genetics services and work within cardiac genetic services, it has no remit to implement service change but rather to influence how services are delivered.” Source location Response from British Society for Genetic Medicine
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Pre-sieve questions cannot be integrated into the current computer-aided dispatch system because of its technological limitations.
Verbatim wording from the response “The significance of using the ‘no, no, go’ approach is discussed throughout the training that we provide. This will be further supported by our ‘Pre-Sieve Questions Project’ which is being trialled in June 2026. This project will concentrate on reducing the number of pre-sieve questions asked by an ECT regarding a patient’s consciousness level and breathing rate before a Nature of Call (NOC) is selected. The aim of the project is to reduce the time that is taken to select a NOC to a maximum of 15 seconds after a 999 call is answered.” Source location Response from South Central Ambulance Service NHS Foundation Trust
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Universal instructions on AED operation cannot be cascaded because AEDs have different makes and models.
Verbatim wording from the response “To promote knowledge of life saving skills outside of an emergency, our Community Engagement Team regularly deliver basic life support training sessions within our local communities, which includes the benefits of using an automated external defibrillator (AED), when they should be used and emphasising that the devices will not deliver defibrillation to a patient unless they are in a shockable cardiac rhythm. Enclosed with this response is a document which includes links to publications of the training sessions we have provided as examples of the types of sessions that we provide.” Source location Response from South Central Ambulance Service NHS Foundation Trust
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Clinical services lack sufficient capacity and infrastructure to contact lower-risk family members proactively.
Verbatim wording from the response “Currently, there is insufficient capacity and infrastructure for Clinical Genetics and/or specialist clinical services (e.g. Cardiology/Inherited Cardiac Conditions services) to actively contact family members outside of situations where a particularly high risk has been identified (e.g. individual potentially displaying symptoms and/or athlete undertaking intensive sporting activities at risk of ARVC). The Clinical Genetics service specification is currently being revised, and this will be considered as part of this work. This is an aspect of the clinical service where additional capacity and infrastructure may have the potential to reduce preventable morbidity and mortality. The “Clinical Genetics Transformation Programme”, who are the group working on the new service specification and its implementation, will consider the ways in which this may be achieved.” Source location Response from NHS England
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Decisions on screening young people for sports participation are made by the National Screening Committee.
Verbatim wording from the response “This topic is governed/decided by the National Screening Committee (NSC) and was last considered in 2019, at which point there was no UK consensus. It is due to be reviewed in 2026/27.” Source location Response from NHS England
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation The evidence supporting the claim that cascade communication fails to reach more than half of affected family members could not be located.
Verbatim wording from the response “NHS England have reviewed your concern that cascade communication of genetic/hereditary disease “does not reach more than half of those in families that need to know about it” but have been unable to locate the literature or evidence where this originated. Information sharing between family members of a particular genetic risk of a condition will be different for different conditions.” Source location Response from NHS England
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Public first-aid training is outside NHS England’s direct mandate and delivery responsibilities.
Verbatim wording from the response “NHS England does not directly mandate or deliver public first aid training. However, we recognise the importance of ensuring that NHS staff have appropriate resuscitation skills. As part of wider statutory and mandatory training reforms, consideration is being given to strengthening BLS and AED training requirements across NHS staff groups, including those in non-patient facing roles (subject to final policy confirmation).” Source location Response from NHS England
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Population screening for sudden cardiac death should not currently be offered because tests are insufficiently accurate and may cause harm.
Verbatim wording from the response “The UK NSC last reviewed screening for the conditions associated with sudden cardiac death in people under the age of 39 years old in 2019. The conclusion of that review was that population screening should not be offered, as research showed that current tests are not accurate enough to use on young people with no symptoms.” Source location Response from Department of Health and Social Care
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation NHS England will respond on concerns about recognising agonal breathing or cardiac arrest, defibrillator use, and cascade communication of hereditary conditions.
Verbatim wording from the response “In preparing this response, my officials have made enquiries with NHS England officials. They have confirmed that NHS England will respond to you directly on POINT A, POINT C and POINT E.” Source location Response from Department of Health and Social Care
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation The FA cannot appropriately train participants to override or disregard emergency call handlers’ instructions about using defibrillators.
Verbatim wording from the response “24. In Adam’s case, the 999 call handler advised those administering first aid not to utilise the defibrillator which was present at the scene. This is a challenging factor for The FA to address, as it would not be appropriate for The FA to train participants to override or disregard the instructions of call handlers. On 31 January 2024 there was a defibrillator available at the pitch, staff were aware of the location of the defibrillator and there was no delay in obtaining it. The witnesses present at the hearing explained that they would have used the device as and when instructed by the call handler.” Source location Response from The FA
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Limited capacity, variable infrastructure and regulatory restrictions can prevent clinical teams from contacting or testing at-risk relatives directly.
Verbatim wording from the response “Despite this, we acknowledge that the sharing and dissemination of genetic information within families may not be easy and is influenced by the complexities of family structures and dynamics as well as systemic constraints. Efforts are made to encourage and facilitate timely sharing of information and cascade testing in families. Barriers to this include limited service capacity, variable infrastructure and jurisdictional or cross border regulatory frameworks that restrict if, how and when clinical teams can contact or offer testing to at risk relatives directly.” Source location Response from British Society for Genetic Medicine
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Cardiac screening concerns should be addressed by the UK National Screening Committee and relevant specialist cardiology and genomics organisations.
Verbatim wording from the response “In relation to Point D, concerning cardiac screening in young people, RCUK acknowledges the importance of this issue. However, cardiac screening programmes and population-level screening policy fall outside the remit of RCUK, and we do not produce guidance or training in this area. We consider that this matter is more appropriately addressed by the UK National Screening Committee and relevant specialist organisations in cardiology and genomics.” Source location Response from Resuscitation Council UK
Open published response
×
Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Population-level cardiac screening policy falls outside RCUK’s remit, so RCUK does not produce guidance or training in this area.
Verbatim wording from the response “In relation to Point D, concerning cardiac screening in young people, RCUK acknowledges the importance of this issue. However, cardiac screening programmes and population-level screening policy fall outside the remit of RCUK, and we do not produce guidance or training in this area. We consider that this matter is more appropriately addressed by the UK National Screening Committee and relevant specialist organisations in cardiology and genomics.” Source location Response from Resuscitation Council UK
Open published response
Recipient-stated actions An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised. 17 1 Maintain a cardiac arrest lead role within the team.
Stated by Association of Ambulance Chief Executives Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source 2 Continue working with partners to improve cardiac-arrest management and patient outcomes.
Stated by Association of Ambulance Chief Executives Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source 3 Improve defibrillator placement using strategic optimisation tools to identify high-risk, low-access areas.
Stated by Association of Ambulance Chief Executives Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source 4 Develop a cardiac arrest strategy covering triage, CPR timing, video CPR and defibrillator access.
Stated by Association of Ambulance Chief Executives Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source 5 Co-produce national recommendations for storing defibrillators in unlocked, continuously accessible boxes.
Stated by Association of Ambulance Chief Executives Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source 6 Add learning from Adam’s death to mandatory release training and the CPR toolkit for existing and future staff.
Stated by NHS England Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source 7 Discuss Prevention of Future Deaths reports through the Regulation 28 Working Group and share key learning across NHS national and regional levels.
Stated by NHS England Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source 8 Contribute to guidance documents on consent and confidentiality in genomic medicine.
Stated by British Society For Genetic Medicine Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source 9 Engage Parliamentarians to seek funding for expert cardiac pathology and specialist commissioning of inherited cardiac conditions services across the UK.
Stated by Cardiac Risk in the Young Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source 10 Add learning from Adam’s death to mandatory Release Training and the CPR toolkit for current and future staff.
Stated by NHS England Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source 11 Consider strengthening basic life-support and AED training requirements across NHS staff groups, including non-patient-facing roles.
Stated by NHS England Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source 12 Advertise the SCA module at high-profile football events and on the England Football Learning website.
Stated by The Football Association Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source 13 Continue updating training and delivery as first-aid best practice evolves.
Stated by The Football Association Stated in progressThe respondent said that this action was in progress when they made their response on 27 April 2026. View source 14 Support dissemination of guidance on consent and confidentiality in genomic medicine.
Stated by British Society For Genetic Medicine Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source 15 Contribute to guidance documents on consent and confidentiality in genomic medicine.
Stated by British Society For Genetic Medicine Stated plannedThe respondent said that this action was planned when they made their response on 27 April 2026. View source 16 Secure inclusion of resuscitation-related questions in the driving-licence theory test.
Stated by Resuscitation Council UK Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source 17 Publish best-practice guidance to improve recognition and response to cardiac arrest in professional sporting environments.
Stated by Resuscitation Council UK Stated completedThe respondent said that this action was complete when they made their response on 27 April 2026. View source Recipient positions A position is what a recipient says about a concern when they do not describe a specific action. 1 1 Implementing service change is outside the organisation’s remit; it can only influence how genetic services are delivered.
Stated by British Society For Genetic Medicine Outside remitThe respondent said that this matter was outside its role or authority. View source
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Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Maintain a cardiac arrest lead role within the team.
Verbatim wording from the response “We currently have a cardiac arrest lead working within our team. A cardiac arrest strategy is under development, of which a key focus will include improving triage, reducing time to start CPR, adoption of video CPR, and improving access to defibrillators. All UK ambulance services are currently undertaking targeted and focused programmes seeking to improve community readiness and reduce inequalities in resuscitation.” Source location Response from Association of Ambulance Chief Executives
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Continue working with partners to improve cardiac-arrest management and patient outcomes.
Verbatim wording from the response “I can assure you we will continue our work with partners to improve all aspects of cardiac arrest management with the aim of improving patient outcomes.” Source location Response from Association of Ambulance Chief Executives
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Improve defibrillator placement using strategic optimisation tools to identify high-risk, low-access areas.
Verbatim wording from the response “AACE has supported a number of nationwide initiatives to improve access to defibrillators. We co-produced a consensus statement in 2024 recommending that all defibrillators are stored in unlocked boxes and available 24/7. In conjunction with ambulance services, AACE regularly collaborates with partners to deliver and disseminate public-facing communications about the use of defibrillators. There is ongoing work to improve the placement of defibrillators through strategic optimisation tools, to identify areas of highest risk, and lowest access to defibrillators.” Source location Response from Association of Ambulance Chief Executives
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Develop a cardiac arrest strategy covering triage, CPR timing, video CPR and defibrillator access.
Verbatim wording from the response “We currently have a cardiac arrest lead working within our team. A cardiac arrest strategy is under development, of which a key focus will include improving triage, reducing time to start CPR, adoption of video CPR, and improving access to defibrillators. All UK ambulance services are currently undertaking targeted and focused programmes seeking to improve community readiness and reduce inequalities in resuscitation.” Source location Response from Association of Ambulance Chief Executives
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Co-produce national recommendations for storing defibrillators in unlocked, continuously accessible boxes.
Verbatim wording from the response “AACE has supported a number of nationwide initiatives to improve access to defibrillators. We co-produced a consensus statement in 2024 recommending that all defibrillators are stored in unlocked boxes and available 24/7. In conjunction with ambulance services, AACE regularly collaborates with partners to deliver and disseminate public-facing communications about the use of defibrillators. There is ongoing work to improve the placement of defibrillators through strategic optimisation tools, to identify areas of highest risk, and lowest access to defibrillators.” Source location Response from Association of Ambulance Chief Executives
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Add learning from Adam’s death to mandatory release training and the CPR toolkit for existing and future staff.
Verbatim wording from the response “Following Adam’s death, NHS Pathways will enhance and reinforce the existing training by making specific reference to the circumstances and learning from this tragic event in both the next mandatory Release Training, which reaches all existing staff, and the CPR toolkit thus reaching future staff. Including reference to this case within our learning materials will ensure the lessons resonate as strongly as possible. This will be completed by 30th June 2026.” Source location Response from NHS England 2
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Discuss Prevention of Future Deaths reports through the Regulation 28 Working Group and share key learning across NHS national and regional levels.
Verbatim wording from the response “I would also like to provide further assurances on the national NHS England work taking place around the Reports to Prevent Future Deaths. All reports received are discussed by the Regulation 28 Working Group, comprising Regional Medical Directors, and other clinical and quality colleagues from across the regions. This ensures that key learnings and insights around events, such as the sad death of Adam, are shared across the NHS at both a national and regional level and helps us to pay close attention to any emerging trends that may require further review and action.” Source location Response from NHS England 2
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Contribute to guidance documents on consent and confidentiality in genomic medicine.
Verbatim wording from the response “The Joint Committee on Genomics in Medicine (JCGM) is a joint committee of BSGM, Royal College of Physicians, Royal College of Pathologists. In 2019, JCGM released the 3rd edition of the guidance document ‘Consent and confidentiality in genomic medicine’. This was written by ████████ who has given evidence in this inquest, and ████████. Many of the principles in practice within specialist clinical genetics and genomic practice are supported by the principles of this document. Genetic testing is now more embedded in clinical practice outside of the specialist genetics workforce. There are many educational activities underway to equip non genetics specialists to deliver their specific element of genetic medicine, for example by giving patients information about their genetic risk and by requesting genetic testing, giving the result and explaining the implications to the wider family.” Source location Response from British Society for Genetic Medicine
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Engage Parliamentarians to seek funding for expert cardiac pathology and specialist commissioning of inherited cardiac conditions services across the UK.
Verbatim wording from the response “CRY is also engaging with Parliamentarians to highlight the need for funding to ensure expert cardiac pathology is available whenever required and is not dependent upon the charitable fundraising efforts of other bereaved families, and to secure specialist commissioning of inherited cardiac conditions services across the UK, providing essential support for families following a young sudden cardiac death and for those diagnosed with an inherited cardiac condition.” Source location Response from Cardiac Risk in the Young
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Add learning from Adam’s death to mandatory Release Training and the CPR toolkit for current and future staff.
Verbatim wording from the response “Following Adam’s death, NHS Pathways will enhance and reinforce the existing training by making specific reference to the circumstances and learning from this tragic event in both the next mandatory Release Training, which reaches all existing staff, and the CPR toolkit thus reaching future staff. Including reference to this case within our learning materials will ensure the lessons resonate as strongly as possible. This will be completed by 30th June 2026.” Source location Response from NHS England
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Consider strengthening basic life-support and AED training requirements across NHS staff groups, including non-patient-facing roles.
Verbatim wording from the response “NHS England does not directly mandate or deliver public first aid training. However, we recognise the importance of ensuring that NHS staff have appropriate resuscitation skills. As part of wider statutory and mandatory training reforms, consideration is being given to strengthening BLS and AED training requirements across NHS staff groups, including those in non-patient facing roles (subject to final policy confirmation).” Source location Response from NHS England
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Advertise the SCA module at high-profile football events and on the England Football Learning website.
Verbatim wording from the response “i. Advertisements were run on perimeter boards at Wembley Stadium promoting the SCA training module and raising awareness of the risk of SCA at the Women’s FA Cup Final on 31 May 2026. This event had an in person audience at Wembley Stadium of 43,917 and combined average broadcasting figures for the UK of 753,000 and the peak broadcasting figure of 960,000 across Channel 4 and TNT Sports 1. Throughout May 2026 there were an average of 10 daily enrolments on the SCA training module. On 1 June 2026, the day after the Women’s FA Cup Final, there were 240 enrolments;
ii. A banner was added to the England Football Learning website in the week commencing 1 June 2026 to raise awareness of the SCA and concussion modules. There are 1.5m visitors to this website annually;
iii.” Source location Response from The FA
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Continue updating training and delivery as first-aid best practice evolves.
Verbatim wording from the response “29. While there are some limitations on what can be achieved because of the scope of The FA’s powers, the scale and nature of grassroots football and restrictions imposed by statute and national guidance, The FA is confident that it remains at the cutting edge of first aid, with its pioneering training and its support for the development of national guidelines (such as the ‘Resuscitation in Community Sports’ Guide dated April 2026). Work in this field will continue, with ongoing updates to training and delivery as best practice continues to evolve.” Source location Response from The FA
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Support dissemination of guidance on consent and confidentiality in genomic medicine.
Verbatim wording from the response “BSGM’s role in this situation is to raise awareness of the need to share important information about genetic diagnosis and the results of genomic tests. BSGM will also contribute to documents such as ‘Consent and confidentiality in genomic medicine’ and to help in its dissemination. BSGM through its members can also help to influence service development in both specialist genetic services and also in more mainstreamed genetic medicine. Work is currently ongoing by NHS England to review the service specification for the Clinical Genomics Services and the working group involved in this work includes many BSGM or its contributory groups (Clinical Genetics Society and Association of Genetic Nurses and Counsellors) officers.” Source location Response from British Society for Genetic Medicine
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Contribute to guidance documents on consent and confidentiality in genomic medicine.
Verbatim wording from the response “BSGM’s role in this situation is to raise awareness of the need to share important information about genetic diagnosis and the results of genomic tests. BSGM will also contribute to documents such as ‘Consent and confidentiality in genomic medicine’ and to help in its dissemination. BSGM through its members can also help to influence service development in both specialist genetic services and also in more mainstreamed genetic medicine. Work is currently ongoing by NHS England to review the service specification for the Clinical Genomics Services and the working group involved in this work includes many BSGM or its contributory groups (Clinical Genetics Society and Association of Genetic Nurses and Counsellors) officers.” Source location Response from British Society for Genetic Medicine
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Secure inclusion of resuscitation-related questions in the driving-licence theory test.
Verbatim wording from the response “through each step and will only deliver a shock if it is clinically indicated⁵. The guidelines emphasise that anyone can use an AED and that it should be applied as soon as it becomes available¹. Of course, training in first aid is encouraged so that bystanders who find themselves presented with someone who has collapsed have the confidence and skills to deliver basic life support and defibrillation. RCUK and partner organisations have successfully campaigned to include basic life support training in the national curriculum across the four nations. However, it is not currently mandatory, and we continue to campaign to ensure that every child leaves school with the skills to save a life. In addition, RCUK and partners have successfully secured the inclusion of resuscitation-related questions in the driving licence theory test.” Source location Response from Resuscitation Council UK
Open published response
×
Source evidence
How this respondent action was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Publish best-practice guidance to improve recognition and response to cardiac arrest in professional sporting environments.
Verbatim wording from the response “RCUK has reinforced this approach through its ‘Resuscitation on the Field of Play: Best Practice Guidelines’², which aim to improve the recognition and response to sudden cardiac arrest in sporting environments. These guidelines are designed for medical teams responding to a person who collapses during or shortly after sporting activity within professional sport, including football. RCUK has also recently published ‘Resuscitation in community sports: a national best practice guide’³, aimed at grassroots sport to improve early recognition of cardiac arrest and prompt use of CPR and defibrillation.” Source location Response from Resuscitation Council UK
Open published response
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Source evidence
How this respondent position was interpreted
PFD Monitor created a concise, searchable interpretation from the published response wording shown below.
PFD Monitor interpretation Implementing service change is outside the organisation’s remit; it can only influence how genetic services are delivered.
Verbatim wording from the response “While many members of BSGM sit in positions of leadership within clinical genetics services and work within cardiac genetic services, it has no remit to implement service change but rather to influence how services are delivered.” Source location Response from British Society for Genetic Medicine
Open published response
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