Investigation and inquest
On 25 August 2021, one of my assistant coroners, Sarah Bourke, commenced an investigation into the death of Neil Hickman aged 63 years. The investigation concluded at the end of the inquest earlier today. I made a determination at inquest of death by natural causes.
Circumstances of the death
Neil Hickman was treated at Kent and Canterbury Hospital (K&C) for myelodysplastic syndrome and then was referred to University College London Hospital (UCLH) for stem cell transplant. However, he died before the transplant could take place. His medical cause of death was:
1a disseminated angio-invasive mycotic infection
1b immunosuppression
1c myelodysplasia
Coroner’s concerns
Mr Hickman was given frequent platelet transfusions at K&C, but his ferritin levels were not measured. When he was referred to UCLH, his ferritin level was found to be hugely raised. He was then treated with chelation therapy and ultimately his ferritin returned to a safe level, so this did not impact upon the outcome. However, it might for another patient.
I think the reason that K&C does not measure the ferritin levels in such a situation is because K&C does not have funding for chelation therapy to treat iron overload. However, if iron overload is detected, then a referral centre such as UCLH can be called for advice, and the patient and their family can be informed so that they have the option of seeking private treatment.