PFD report

Myles Edward SCRIVEN · Prevention of Future Deaths report

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Issued 14 Jul 2025•West Yorkshire (Western)

Report record

Published report and response evidence

This page connects the concerns raised in this report with statements found in recipients’ published responses. A link shows a clear evidence connection; it does not assign responsibility.

View original report
Concerns
6

Raised in this report

Recipients
3

Named on the report

Responses found
3

Of 3 recipients

Stated actions
44

Described in responses

Source document

Full report text

This is the full text from the original published report.

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Concerns and recipient responses

Select any concern, action or position to view the source wording.

Report evidence summary

Concerns raised6

  1. Lack of knowledge of requirements for patients with learning disabilities and autism
  2. Failure to understand and use the Learning Disabilities Register
  3. Failure to liaise with the Learning Disabilities Service to address missing support arrangements
    Part of recurring concern: Unreliable coordination of specialist learning-disability support in healthcare
Responses linked to these concerns

Each statement is shown once, even when linked to more than one concern.

Actions described in response An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.25

  1. Action

    Use the Oliver McGowan Code of Practice when assessing providers’ compliance with learning disability and autism training requirements.

    Stated by Care Quality CommissionStated plannedThe respondent said that this action was planned when they made their response on 17 July 2025.
  2. Action

    Review and update inspection guidance on assessing safe care for people with learning disabilities and autistic people.

    Stated by Care Quality CommissionStated in progressThe respondent said that this action was in progress when they made their response on 17 July 2025.
  3. Action

    Use the Oliver McGowan Code of Practice when assessing providers’ compliance with relevant training regulations.

    Stated by Care Quality CommissionStated plannedThe respondent said that this action was planned when they made their response on 17 July 2025.

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of knowledge of requirements for patients with learning disabilities and autism

Wider context from the report

“While the rider of Neglect does not attach to the actions of the Dalton Surgery, the fact remains that between 16 and 20 March 2023 Myles had several contacts with the Dalton Surgery while he was suffering with an on going Pulmonary Embolism. Non of these resulted in a referral to secondary care. The combined evidence of three expert witnesses was that the manner in which his care was handled at this stage contributed to his death. The following are concerns that I have arising from the evidence in he Inquest. 1. Ignorance of what was required for Myles in the circumstances of his Learning Disability and Autism - the GPs clearly only had a superficial grasp of the regulatory requirements and realities to do with Learning Disabilities. They are clearly well intentioned and caring but their appreciation and approach seems to have been based entirely on professional experience and good intentions rather than real knowledge of what was required and how to implement it. Notably: •They repeatedly used the words learning difficulties and learning disabilities interchangeably and apparently randomly – I am not told that Myles had a personal preference about which to use that they deferred to. Essentially, they seem to have been ignorant as to the distinction. •They made only the most modest adjustments for Myles's Learning Disabilities and Autism. •They clearly had very little grasp of what the Learning Disabilities Register was and how it worked. Neither of the GPs who gave evidence were able to provide a solid, reliable version of how it operated in their practice, when or/if Myles had been entered on to it, whether it was distinct from the psychiatric review - one seemed to conflate the two and the other said that it was something managed by a Nurse in the practice. It is quite evident that correspondence was coming in from Learning Disabilities Psychiatry but nothing at all from Social Services. This is not something that seems to have triggered any particular reaction at the GP level. They seemed to operate on the basis that the Learning Disabilities ’box had been ticked’ and that nothing further was needed. In fact, Myles seems to have been on the Register from 2020 but by the 20 October 2022 when he had been at hospital in relation to his PE he had no Learning Disability Social Worker and concomitantly no VIP passport on admission to hospital . The GPs clearly had no idea of how important all this was. I heard evidence from a secondary care Learning Disabilities Professional that they, in secondary care, rely a great deal on primary care to get these things sorted out. Here, nothing went back from the Practice to the Learning Disabilities Service to chase these things. 2. The failure of the GP to record numeric observations properly on 20 March 2023. 3. The failure of the Dalton Surgery to undertake any rigorous and detailed internal review for learning purposes after this incident. ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to understand and use the Learning Disabilities Register

Wider context from the report

“While the rider of Neglect does not attach to the actions of the Dalton Surgery, the fact remains that between 16 and 20 March 2023 Myles had several contacts with the Dalton Surgery while he was suffering with an on going Pulmonary Embolism. Non of these resulted in a referral to secondary care. The combined evidence of three expert witnesses was that the manner in which his care was handled at this stage contributed to his death. The following are concerns that I have arising from the evidence in he Inquest. 1. Ignorance of what was required for Myles in the circumstances of his Learning Disability and Autism - the GPs clearly only had a superficial grasp of the regulatory requirements and realities to do with Learning Disabilities. They are clearly well intentioned and caring but their appreciation and approach seems to have been based entirely on professional experience and good intentions rather than real knowledge of what was required and how to implement it. Notably: •They repeatedly used the words learning difficulties and learning disabilities interchangeably and apparently randomly – I am not told that Myles had a personal preference about which to use that they deferred to. Essentially, they seem to have been ignorant as to the distinction. •They made only the most modest adjustments for Myles's Learning Disabilities and Autism. •They clearly had very little grasp of what the Learning Disabilities Register was and how it worked. Neither of the GPs who gave evidence were able to provide a solid, reliable version of how it operated in their practice, when or/if Myles had been entered on to it, whether it was distinct from the psychiatric review - one seemed to conflate the two and the other said that it was something managed by a Nurse in the practice. It is quite evident that correspondence was coming in from Learning Disabilities Psychiatry but nothing at all from Social Services. This is not something that seems to have triggered any particular reaction at the GP level. They seemed to operate on the basis that the Learning Disabilities ’box had been ticked’ and that nothing further was needed. In fact, Myles seems to have been on the Register from 2020 but by the 20 October 2022 when he had been at hospital in relation to his PE he had no Learning Disability Social Worker and concomitantly no VIP passport on admission to hospital . The GPs clearly had no idea of how important all this was. I heard evidence from a secondary care Learning Disabilities Professional that they, in secondary care, rely a great deal on primary care to get these things sorted out. Here, nothing went back from the Practice to the Learning Disabilities Service to chase these things. 2. The failure of the GP to record numeric observations properly on 20 March 2023. 3. The failure of the Dalton Surgery to undertake any rigorous and detailed internal review for learning purposes after this incident. ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to liaise with the Learning Disabilities Service to address missing support arrangements

Wider context from the report

“While the rider of Neglect does not attach to the actions of the Dalton Surgery, the fact remains that between 16 and 20 March 2023 Myles had several contacts with the Dalton Surgery while he was suffering with an on going Pulmonary Embolism. Non of these resulted in a referral to secondary care. The combined evidence of three expert witnesses was that the manner in which his care was handled at this stage contributed to his death. The following are concerns that I have arising from the evidence in he Inquest. 1. Ignorance of what was required for Myles in the circumstances of his Learning Disability and Autism - the GPs clearly only had a superficial grasp of the regulatory requirements and realities to do with Learning Disabilities. They are clearly well intentioned and caring but their appreciation and approach seems to have been based entirely on professional experience and good intentions rather than real knowledge of what was required and how to implement it. Notably: •They repeatedly used the words learning difficulties and learning disabilities interchangeably and apparently randomly – I am not told that Myles had a personal preference about which to use that they deferred to. Essentially, they seem to have been ignorant as to the distinction. •They made only the most modest adjustments for Myles's Learning Disabilities and Autism. •They clearly had very little grasp of what the Learning Disabilities Register was and how it worked. Neither of the GPs who gave evidence were able to provide a solid, reliable version of how it operated in their practice, when or/if Myles had been entered on to it, whether it was distinct from the psychiatric review - one seemed to conflate the two and the other said that it was something managed by a Nurse in the practice. It is quite evident that correspondence was coming in from Learning Disabilities Psychiatry but nothing at all from Social Services. This is not something that seems to have triggered any particular reaction at the GP level. They seemed to operate on the basis that the Learning Disabilities ’box had been ticked’ and that nothing further was needed. In fact, Myles seems to have been on the Register from 2020 but by the 20 October 2022 when he had been at hospital in relation to his PE he had no Learning Disability Social Worker and concomitantly no VIP passport on admission to hospital . The GPs clearly had no idea of how important all this was. I heard evidence from a secondary care Learning Disabilities Professional that they, in secondary care, rely a great deal on primary care to get these things sorted out. Here, nothing went back from the Practice to the Learning Disabilities Service to chase these things. 2. The failure of the GP to record numeric observations properly on 20 March 2023. 3. The failure of the Dalton Surgery to undertake any rigorous and detailed internal review for learning purposes after this incident. ”

Is this part of a recurring concern?

Yes — Unreliable coordination of specialist learning-disability support in healthcare.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to undertake rigorous and detailed internal incident review for learning

Wider context from the report

“While the rider of Neglect does not attach to the actions of the Dalton Surgery, the fact remains that between 16 and 20 March 2023 Myles had several contacts with the Dalton Surgery while he was suffering with an on going Pulmonary Embolism. Non of these resulted in a referral to secondary care. The combined evidence of three expert witnesses was that the manner in which his care was handled at this stage contributed to his death. The following are concerns that I have arising from the evidence in he Inquest. 1. Ignorance of what was required for Myles in the circumstances of his Learning Disability and Autism - the GPs clearly only had a superficial grasp of the regulatory requirements and realities to do with Learning Disabilities. They are clearly well intentioned and caring but their appreciation and approach seems to have been based entirely on professional experience and good intentions rather than real knowledge of what was required and how to implement it. Notably: •They repeatedly used the words learning difficulties and learning disabilities interchangeably and apparently randomly – I am not told that Myles had a personal preference about which to use that they deferred to. Essentially, they seem to have been ignorant as to the distinction. •They made only the most modest adjustments for Myles's Learning Disabilities and Autism. •They clearly had very little grasp of what the Learning Disabilities Register was and how it worked. Neither of the GPs who gave evidence were able to provide a solid, reliable version of how it operated in their practice, when or/if Myles had been entered on to it, whether it was distinct from the psychiatric review - one seemed to conflate the two and the other said that it was something managed by a Nurse in the practice. It is quite evident that correspondence was coming in from Learning Disabilities Psychiatry but nothing at all from Social Services. This is not something that seems to have triggered any particular reaction at the GP level. They seemed to operate on the basis that the Learning Disabilities ’box had been ticked’ and that nothing further was needed. In fact, Myles seems to have been on the Register from 2020 but by the 20 October 2022 when he had been at hospital in relation to his PE he had no Learning Disability Social Worker and concomitantly no VIP passport on admission to hospital . The GPs clearly had no idea of how important all this was. I heard evidence from a secondary care Learning Disabilities Professional that they, in secondary care, rely a great deal on primary care to get these things sorted out. Here, nothing went back from the Practice to the Learning Disabilities Service to chase these things. 2. The failure of the GP to record numeric observations properly on 20 March 2023. 3. The failure of the Dalton Surgery to undertake any rigorous and detailed internal review for learning purposes after this incident. ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to record numeric observations properly

Wider context from the report

“While the rider of Neglect does not attach to the actions of the Dalton Surgery, the fact remains that between 16 and 20 March 2023 Myles had several contacts with the Dalton Surgery while he was suffering with an on going Pulmonary Embolism. Non of these resulted in a referral to secondary care. The combined evidence of three expert witnesses was that the manner in which his care was handled at this stage contributed to his death. The following are concerns that I have arising from the evidence in he Inquest. 1. Ignorance of what was required for Myles in the circumstances of his Learning Disability and Autism - the GPs clearly only had a superficial grasp of the regulatory requirements and realities to do with Learning Disabilities. They are clearly well intentioned and caring but their appreciation and approach seems to have been based entirely on professional experience and good intentions rather than real knowledge of what was required and how to implement it. Notably: •They repeatedly used the words learning difficulties and learning disabilities interchangeably and apparently randomly – I am not told that Myles had a personal preference about which to use that they deferred to. Essentially, they seem to have been ignorant as to the distinction. •They made only the most modest adjustments for Myles's Learning Disabilities and Autism. •They clearly had very little grasp of what the Learning Disabilities Register was and how it worked. Neither of the GPs who gave evidence were able to provide a solid, reliable version of how it operated in their practice, when or/if Myles had been entered on to it, whether it was distinct from the psychiatric review - one seemed to conflate the two and the other said that it was something managed by a Nurse in the practice. It is quite evident that correspondence was coming in from Learning Disabilities Psychiatry but nothing at all from Social Services. This is not something that seems to have triggered any particular reaction at the GP level. They seemed to operate on the basis that the Learning Disabilities ’box had been ticked’ and that nothing further was needed. In fact, Myles seems to have been on the Register from 2020 but by the 20 October 2022 when he had been at hospital in relation to his PE he had no Learning Disability Social Worker and concomitantly no VIP passport on admission to hospital . The GPs clearly had no idea of how important all this was. I heard evidence from a secondary care Learning Disabilities Professional that they, in secondary care, rely a great deal on primary care to get these things sorted out. Here, nothing went back from the Practice to the Learning Disabilities Service to chase these things. 2. The failure of the GP to record numeric observations properly on 20 March 2023. 3. The failure of the Dalton Surgery to undertake any rigorous and detailed internal review for learning purposes after this incident. ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to make appropriate adjustments for patients with learning disabilities and autism

Wider context from the report

“While the rider of Neglect does not attach to the actions of the Dalton Surgery, the fact remains that between 16 and 20 March 2023 Myles had several contacts with the Dalton Surgery while he was suffering with an on going Pulmonary Embolism. Non of these resulted in a referral to secondary care. The combined evidence of three expert witnesses was that the manner in which his care was handled at this stage contributed to his death. The following are concerns that I have arising from the evidence in he Inquest. 1. Ignorance of what was required for Myles in the circumstances of his Learning Disability and Autism - the GPs clearly only had a superficial grasp of the regulatory requirements and realities to do with Learning Disabilities. They are clearly well intentioned and caring but their appreciation and approach seems to have been based entirely on professional experience and good intentions rather than real knowledge of what was required and how to implement it. Notably: •They repeatedly used the words learning difficulties and learning disabilities interchangeably and apparently randomly – I am not told that Myles had a personal preference about which to use that they deferred to. Essentially, they seem to have been ignorant as to the distinction. •They made only the most modest adjustments for Myles's Learning Disabilities and Autism. •They clearly had very little grasp of what the Learning Disabilities Register was and how it worked. Neither of the GPs who gave evidence were able to provide a solid, reliable version of how it operated in their practice, when or/if Myles had been entered on to it, whether it was distinct from the psychiatric review - one seemed to conflate the two and the other said that it was something managed by a Nurse in the practice. It is quite evident that correspondence was coming in from Learning Disabilities Psychiatry but nothing at all from Social Services. This is not something that seems to have triggered any particular reaction at the GP level. They seemed to operate on the basis that the Learning Disabilities ’box had been ticked’ and that nothing further was needed. In fact, Myles seems to have been on the Register from 2020 but by the 20 October 2022 when he had been at hospital in relation to his PE he had no Learning Disability Social Worker and concomitantly no VIP passport on admission to hospital . The GPs clearly had no idea of how important all this was. I heard evidence from a secondary care Learning Disabilities Professional that they, in secondary care, rely a great deal on primary care to get these things sorted out. Here, nothing went back from the Practice to the Learning Disabilities Service to chase these things. 2. The failure of the GP to record numeric observations properly on 20 March 2023. 3. The failure of the Dalton Surgery to undertake any rigorous and detailed internal review for learning purposes after this incident. ”

Is this part of a recurring concern?

Yes — Failure to provide required reasonable adjustments for patients with disabilities.

Open source report

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Use the Oliver McGowan Code of Practice when assessing providers’ compliance with learning disability and autism training requirements.

Verbatim wording from the response

“On the 19th June 2025, the Oliver McGowan Code of Practice was published and laid before parliament by the Department of Health and Social Care. The code commenced on 6th September 2025 and is now legal guidance. The purpose of the code is to explain what is meant by training that is ‘appropriate to the person’s role’ and to provide guidance on how to ensure all staff receive such training.”

Source location

Response from Care Quality Commission (1)
Page 3 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Review and update inspection guidance on assessing safe care for people with learning disabilities and autistic people.

Verbatim wording from the response

“In response to the known challenges faced by people with a learning disability and autistic people when they access primary care services, as well as feedback from people with lived experience, CQC had already begun a program of work focusing on the health inequalities faced by this population group. This includes taking action to review how we consider whether a GP practice is providing safe care and treatment for people with a learning disability and autistic people. Specifically, we are reviewing and will update the guidance in respect of this, that we provide for our inspection teams to follow. This aims to prompt inspectors to carry out a more thorough assessment than currently takes place and give them the necessary tools to do so. Our regulatory leadership teams are leading on this.”

Source location

Response from Care Quality Commission (2)
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Use the Oliver McGowan Code of Practice when assessing providers’ compliance with relevant training regulations.

Verbatim wording from the response

“Compliance with the standards set out in the code of practice, is expected to ensure that every person receives high quality learning disability and autism training that meets their learning needs and is appropriate to their role. Importantly, this aims to improve the experiences and outcomes of autistic people and people with a learning disability when they access CQC regulated health and social care services. This means that CQC registered providers must ensure they provide each member of staff with training that meets the standards set out in the Code in order to deliver the best possible outcomes. CQC will use the Oliver McGowan Code of Practice when considering whether providers are meeting the requirements of relevant regulations.”

Source location

Response from Care Quality Commission (2)
Page 3 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Run bespoke sessions for inspection teams on mandatory learning-disability and autism training requirements and the Oliver McGowan Code of Practice.

Verbatim wording from the response

“Throughout September, the CQC’s autistic people and people with a learning disability team will be running bespoke upskilling sessions on the mandatory training requirement and code of practice with the aim of equipping inspection teams with the knowledge and skills they need to regulate this requirement effectively and consistently. Specifically pertinent to the case of Myles Scriven, the code of practice enables both providers and CQC to consider the extent to which learning is put into practice.”

Source location

Response from Care Quality Commission (2)
Page 3 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Provide targeted refresher training and administrative escalation training on documenting vital observations and responding promptly to urgent symptoms.

Verbatim wording from the response

“a) Reiterated the importance of thorough documentation of vital clinical observations during consultations, particularly for acute symptoms such as breathlessness, through targeted clinical safety refresher training where needed.”

Source location

Response from Dalton Surgery
Page 3 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Conduct Practice Protected Time sessions and Significant Event Analyses addressing clinical decision-making, triage, prevention, the case and coroner’s findings.

Verbatim wording from the response

“a) Conducted two Practice Protected Time (PPT) sessions in June and October 2025 focusing on clinical decision-making, triage, and prevention.”

Source location

Response from Dalton Surgery
Page 4 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Implement reasonable adjustments including extended appointments, easy-read correspondence, health passports and proactive recalls for patients with Learning Disabilities and Autism.

Verbatim wording from the response

“d) Implemented standard reasonable adjustments for patients, including extended appointment times, easy-read correspondence, health passports, and proactive recall systems.”

Source location

Response from Dalton Surgery
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Adjust Learning Disability health-check invitations and train staff to manage tailored invitations appropriately.

Verbatim wording from the response

“k) Adjusted invitation scheduling for LD health checks to ensure all patients are invited appropriately, with staff trained on tailored invitation management.”

Source location

Response from Dalton Surgery
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Use consultation templates, digital prompts, Ardens templates and AI-supported dictation or scribing to improve recording accuracy.

Verbatim wording from the response

““I acknowledge that my consultation record was poor and lacking in important details – particularly quantitative values for examination findings. This is not usual for my way of working. I am confident that such observations were in fact undertaken and were satisfactory, but unfortunately, they were not recorded. In light of this, I have changed my practice: I now use internal systems and templates to prompt and facilitate proper capture of these values in every consultation.””

Source location

Response from Dalton Surgery
Page 3 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Enhance incident-review policies and processes with clearer documentation, minutes and explicit learning outcomes.

Verbatim wording from the response

“d) Enhanced policies and processes for incident reviews now include clearer documentation, minutes, and explicit learning outcomes.”

Source location

Response from Dalton Surgery
Page 4 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Align the Practice Significant Event Policy with the NHS England patient-safety frameworks and disseminate it through Microsoft Teams and hard copy with staff acknowledgements.

Verbatim wording from the response

“f) Updated the Practice Significant Event Policy, accessible on Microsoft Teams and in hard copy with signed staff acknowledgements, is being aligned with the NHS England Patient Safety Incident Response Framework (PSIRF) and the Primary Care Patient Safety Strategy for GP practices.”

Source location

Response from Dalton Surgery
Page 4 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Complete Oliver McGowan Level 1 training for all practice staff and schedule Level 2 training for October 2025.

Verbatim wording from the response

“b) All practice staff have completed Oliver McGowan Level 1 training, with Level 2 training scheduled for October 15th and 28th 2025.”

Source location

Response from Dalton Surgery
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Collaborate with the Strategic Health Facilitator to review the Learning Disability register and improve communication aids, recall processes and patient resources.

Verbatim wording from the response

“f) Engaged with Jessica Atkinson (Strategic Health Facilitator for Kirklees Adult Learning Disability) to jointly review the LD register and enhance communication aids, recall processes, and patient resources. A follow-up visit is planned for October 2025.”

Source location

Response from Dalton Surgery
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Provide mandatory Learning Disability training to new administrative staff and awareness packs to locum doctors.

Verbatim wording from the response

“c) New administrative staff receive mandatory LD training before commencing duties; locum doctors are provided with LD awareness packs.”

Source location

Response from Dalton Surgery
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Train the Practice Manager to discuss reasonable adjustments with patients.

Verbatim wording from the response

“e) Practice Manager received bespoke training on discussing reasonable adjustments with patients.”

Source location

Response from Dalton Surgery
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Schedule quarterly Learning from Events meetings to review Significant Event Analyses and share internal and external learning, beginning in January 2026.

Verbatim wording from the response

“Going forward, the Practice will schedule quarterly Learning from Events meetings to review SEAs and share learning from both internal and external cases to promote shared learning. The first quarterly meeting is scheduled for January 2026. This will be in line with the Primary care patient safety strategy and Learning from Patient Safety Events (LFPSE).”

Source location

Response from Dalton Surgery
Page 4 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Hold bimonthly Practice Protected Time meetings incorporating Significant Event Analysis discussions and policy review.

Verbatim wording from the response

“g) Bimonthly PPT meetings regularly incorporate SEA discussions and policy review to reinforce staff understanding.”

Source location

Response from Dalton Surgery
Page 4 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Add Learning Disability and Autism status icons in SystmOne and employ a dedicated coder to maintain accurate records.

Verbatim wording from the response

“i) Added patient icons in SystmOne to flag LD and Autism status; employed a dedicated coder to maintain accurate records.”

Source location

Response from Dalton Surgery
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Conduct bi-monthly audits of the Learning Disability register, backup plans and hospital passports to verify accuracy and updates.

Verbatim wording from the response

“The Practice plans to undertake bi-monthly audits of all patients on the LD Register to confirm its accuracy and updated back-up plans and hospital passports where necessary. The purpose of the audit is to affirm that the LD Register is being used with 100% accuracy and regular audits will continue to be carried out. Please refer to the attached action plan for audit details and scheduling.”

Source location

Response from Dalton Surgery
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Collaborate with the ICB Data Quality team to verify accurate coding of patients with Learning Disabilities and Autism following migration to SystmOne.

Verbatim wording from the response

“c) Following migration to SystmOne, collaborated with the ICB Data Quality team to verify and ensure accurate coding of patients with LD and Autism.”

Source location

Response from Dalton Surgery
Page 4 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Extend Learning Disability and Autism Health Check appointments from 45 minutes to one hour.

Verbatim wording from the response

“g) Extended appointment length for LD and Autism Health Checks from 45 minutes to one hour.”

Source location

Response from Dalton Surgery
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Monitor clinical-observation documentation through audits and peer reviews, including monthly reviews of 20 consultations for three months.

Verbatim wording from the response

“c) Reminded clinical staff of documentation’s role in decision-making and safety-netting; compliance monitored via audits and peer reviews, detailed in the enclosed action plan.”

Source location

Response from Dalton Surgery
Page 3 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Maintain the reasonable adjustment digital flag so services can record, share and view patients’ adjustment needs.

Verbatim wording from the response

“The Equality Act 2010 places a legal duty on health and care services to make changes to their approach or provision to ensure services are as accessible for people with disabilities as they are for everyone else. NHS England has introduced the reasonable adjustment digital flag to enable health and care services to record, share and view details of the reasonable adjustments a person needs to support their care.”

Source location

Response from NHS England
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Roll out staff e-learning supporting recording of reasonable adjustment needs across health and care services.

Verbatim wording from the response

“Organisations are required to use their own systems and processes to record reasonable adjustment needs, and staff e-learning training has been rolled out for all health and care staff to support this.”

Source location

Response from NHS England
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Roll out Oliver McGowan mandatory learning disability and autism training across the health and adult social care workforce.

Verbatim wording from the response

“GPs, receive specific training on learning disability and autism appropriate to their role. On 19 June 2025, NHS England published a Code of Practice which sets out expectations for training content and delivery. This training helps to ensure that staff have the right knowledge and skills to provide safe and informed care.”

Source location

Response from NHS England
Page 2 · response
Published 17 July 2025

Open published response

Other statements in published responses

These actions and other statements could not be clearly connected to one concern in this report.

Recipient-stated actions An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.19

  1. 1

    Share information and build closer working links with the LeDeR programme.

    Stated by Care Quality CommissionStated in progressThe respondent said that this action was in progress when they made their response on 17 July 2025.
  2. 2

    Provide inspection teams with support and training to review trusts’ care and treatment for people with learning disabilities.

    Stated by Care Quality CommissionStated in progressThe respondent said that this action was in progress when they made their response on 17 July 2025.
  3. 3

    Run bespoke upskilling sessions for inspection teams on mandatory learning disability and autism training requirements and the Oliver McGowan Code of Practice.

    Stated by Care Quality CommissionStated plannedThe respondent said that this action was planned when they made their response on 17 July 2025.
  4. 4

    Run bespoke upskilling sessions for secondary-care inspection teams on lived-experience issues and assessing services’ population needs.

    Stated by Care Quality CommissionStated plannedThe respondent said that this action was planned when they made their response on 17 July 2025.
  5. 5

    Review how CQC assesses whether trusts provide safe care and treatment for people with learning disabilities and autistic people.

    Stated by Care Quality CommissionStated in progressThe respondent said that this action was in progress when they made their response on 17 July 2025.
  6. 6

    Update inspection guidance to prompt more thorough assessments of care for people with learning disabilities and autistic people.

    Stated by Care Quality CommissionStated plannedThe respondent said that this action was planned when they made their response on 17 July 2025.
  7. 7

    Arrange bespoke upskilling sessions for primary care inspection teams on lived-experience issues and assessing population needs.

    Stated by Care Quality CommissionStated in progressThe respondent said that this action was in progress when they made their response on 17 July 2025.
  8. 8

    Plan and carry out a full comprehensive inspection of Dalton Surgery.

    Stated by Care Quality CommissionStated in progressThe respondent said that this action was in progress when they made their response on 17 July 2025.
  9. 9

    Strengthen collaboration with the LeDeR programme by sharing information and building closer links.

    Stated by Care Quality CommissionStated in progressThe respondent said that this action was in progress when they made their response on 17 July 2025.
  10. 10

    Designate GP, nursing and administrative Learning Disability and Autism champions to advocate for patients and support engagement.

    Stated by Dalton SurgeryStated completedThe respondent said that this action was complete when they made their response on 17 July 2025.
  11. 11

    Introduce enhanced triage, face-to-face assessment when indicated, and a low threshold for same-day review or A&E referral for breathlessness.

    Stated by Dalton SurgeryStated completedThe respondent said that this action was complete when they made their response on 17 July 2025.
  12. 12

    Schedule Capacity and Consent training for the designated GP in October 2025.

    Stated by Dalton SurgeryStated plannedThe respondent said that this action was planned when they made their response on 17 July 2025.
  13. 13

    Embed safety-netting practices and clinical assessment tools to support systematic assessments and recalls.

    Stated by Dalton SurgeryStated completedThe respondent said that this action was complete when they made their response on 17 July 2025.
  14. 14

    Publish a framework for annual learning disability health checks.

    Stated by NHS EnglandStated plannedThe respondent said that this action was planned when they made their response on 17 July 2025.
  15. 15

    Publish guidance and an assurance framework for ICB contractual reviews of GP practices.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 17 July 2025.
  16. 16

    Engage with NHS West Yorkshire Integrated Care Board on the concerns raised in the Report.

    Stated by NHS EnglandStated in progressThe respondent said that this action was in progress when they made their response on 17 July 2025.
  17. 17

    Discuss Reports to Prevent Future Deaths through the Regulation 28 Working Group and share key learning across national and regional NHS services.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 17 July 2025.
  18. 18

    Work with the Royal College of GPs and stakeholders to improve annual learning disability health checks.

    Stated by NHS EnglandStated in progressThe respondent said that this action was in progress when they made their response on 17 July 2025.
  19. 19

    Produce guidance for general practice on improving identification of people with learning disabilities.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 17 July 2025.

Recipient positions A position is what a recipient says about a concern when they do not describe a specific action.2

  1. 1

    Integrated Care Boards are responsible for commissioning and contract management of GP practices, including contractual reviews addressing practice variation and improvement needs.

    Stated by NHS EnglandRedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.
  2. 2

    Individual organisations are responsible for using their own systems and processes to record people’s reasonable adjustment needs.

    Stated by NHS EnglandRedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Share information and build closer working links with the LeDeR programme.

Verbatim wording from the response

“Additional areas of work in this specific area focus on how CQC can work more closely with the Learning from Lives and Deaths - People with a learning disability and autistic people program (LeDeR) – sharing information and building closer links in order to do so more effectively.”

Source location

Response from Care Quality Commission (1)
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Provide inspection teams with support and training to review trusts’ care and treatment for people with learning disabilities.

Verbatim wording from the response

“We are also taking steps to ensure our inspection teams have the right support and training to review how Trusts provide care and treatment for people with a learning disability.”

Source location

Response from Care Quality Commission (1)
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Run bespoke upskilling sessions for inspection teams on mandatory learning disability and autism training requirements and the Oliver McGowan Code of Practice.

Verbatim wording from the response

“Throughout September, the CQC’s autistic people and people with a learning disability team will be running bespoke upskilling sessions on the mandatory training requirement and code of practice with the aim of equipping inspection teams with the knowledge and skills they need to regulate this requirement effectively and consistently. Specifically pertinent to the case of Myles Scriven, the code of practice enables both providers and CQC to consider the extent to which learning is put into practice.”

Source location

Response from Care Quality Commission (1)
Page 3 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Run bespoke upskilling sessions for secondary-care inspection teams on lived-experience issues and assessing services’ population needs.

Verbatim wording from the response

“We are arranging some bespoke upskilling sessions for our secondary care inspection teams. This will cover pertinent issues including what people with lived experience have told us about issues they have faced when accessing hospital care. Further, it will support inspection teams to consider, understand and analyse how services are meeting the needs of their population.”

Source location

Response from Care Quality Commission (1)
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Review how CQC assesses whether trusts provide safe care and treatment for people with learning disabilities and autistic people.

Verbatim wording from the response

“In response to the known challenges faced by people with a learning disability and autistic people when they access health care services, as well as feedback from people with lived experience, CQC had already begun a program of work focusing on the health inequalities faced by this population group. This includes taking action to review how we consider whether Trusts are providing safe care and treatment for people with a learning disability and autistic people. Specifically, we are reviewing and will update the guidance that we provide for our inspection teams to follow. This aims to prompt inspectors to carry out a more thorough assessment than currently takes place and gives them the necessary tools to do so. Our regulatory leadership teams are leading on this.”

Source location

Response from Care Quality Commission (1)
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Update inspection guidance to prompt more thorough assessments of care for people with learning disabilities and autistic people.

Verbatim wording from the response

“In response to the known challenges faced by people with a learning disability and autistic people when they access health care services, as well as feedback from people with lived experience, CQC had already begun a program of work focusing on the health inequalities faced by this population group. This includes taking action to review how we consider whether Trusts are providing safe care and treatment for people with a learning disability and autistic people. Specifically, we are reviewing and will update the guidance that we provide for our inspection teams to follow. This aims to prompt inspectors to carry out a more thorough assessment than currently takes place and gives them the necessary tools to do so. Our regulatory leadership teams are leading on this.”

Source location

Response from Care Quality Commission (1)
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Arrange bespoke upskilling sessions for primary care inspection teams on lived-experience issues and assessing population needs.

Verbatim wording from the response

“We are also taking steps to ensure our inspection teams have the right support and training to review how GP practices provide care and treatment for people with a learning disability and autistic people.”

Source location

Response from Care Quality Commission (2)
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Plan and carry out a full comprehensive inspection of Dalton Surgery.

Verbatim wording from the response

“Dalton Surgery has been inspected once previously, in October 2016, when it was rated as good overall and for all key lines of enquiry. At the time of that inspection, we specifically reviewed how the service managed the care and treatment of specific population groups, this included ‘people whose circumstances may make them vulnerable’. The inspection report reflected that we were satisfied with the care provided by the practice at that time. This included ensuring that systems were in place to share information with other health care professionals to enable them to deliver safe care and treatment. However, given your report into the death of Myles Scriven, and the length of time since we last inspected the practice, a decision was taken at the DRM to carry out an inspection and we are now in the process of planning a full comprehensive assessment.”

Source location

Response from Care Quality Commission (2)
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Strengthen collaboration with the LeDeR programme by sharing information and building closer links.

Verbatim wording from the response

“Additional areas of work in this specific area focus on how CQC can work more closely with the LeDeR program – sharing information and building closer links in order to do so more effectively.”

Source location

Response from Care Quality Commission (2)
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Designate GP, nursing and administrative Learning Disability and Autism champions to advocate for patients and support engagement.

Verbatim wording from the response

“a) Designated three Learning Disability (LD) and Autism champions: a GP, a nurse, and an administrative team member. The role of the LD Champions will include advocacy and support for patients, improving health outcomes and wider primary care engagement.”

Source location

Response from Dalton Surgery
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Introduce enhanced triage, face-to-face assessment when indicated, and a low threshold for same-day review or A&E referral for breathlessness.

Verbatim wording from the response

“b) Introduced enhanced triage protocols and promoted face-to-face assessments when clinically indicated.”

Source location

Response from Dalton Surgery
Page 3 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Schedule Capacity and Consent training for the designated GP in October 2025.

Verbatim wording from the response

“j) Scheduled Capacity and Consent training for designated GP with DAC Beachcroft on 8th October 2025.”

Source location

Response from Dalton Surgery
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Embed safety-netting practices and clinical assessment tools to support systematic assessments and recalls.

Verbatim wording from the response

“h) Embedded improved safety-netting practices and clinical tools (CURB-65, MEWS, CHA2DS2-VASc) to ensure systematic patient assessments and recalls.”

Source location

Response from Dalton Surgery
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Publish a framework for annual learning disability health checks.

Verbatim wording from the response

“NHS England is working with the Royal College of GPs and other stakeholders to improve the quality of annual health checks for people with a learning disability and will be publishing a framework for annual health checks in coming months.”

Source location

Response from NHS England
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Publish guidance and an assurance framework for ICB contractual reviews of GP practices.

Verbatim wording from the response

“Integrated Care Board (ICBs) are responsible for the commissioning and contract management of GP practices. ICBs will undertake intelligence led and routine contractual reviews based on a combination of national and local data sources, alongside other soft intelligence, and practice visits to identify practice variation and improvement needs. NHS England publishes guidance for ICBs, which includes an assurance framework for contractual reviews.”

Source location

Response from NHS England
Page 3 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Engage with NHS West Yorkshire Integrated Care Board on the concerns raised in the Report.

Verbatim wording from the response

“My regional clinical quality colleagues for the North East and Yorkshire region have also been engaging with NHS West Yorkshire Integrated Care Board on the concerns raised in your Report.”

Source location

Response from NHS England
Page 3 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Discuss Reports to Prevent Future Deaths through the Regulation 28 Working Group and share key learning across national and regional NHS services.

Verbatim wording from the response

“I would also like to provide further assurances on the national NHS England work taking place around the Reports to Prevent Future Deaths. All reports received are discussed by the Regulation 28 Working Group, comprising Regional Medical Directors, and other clinical and quality colleagues from across the regions. This ensures that key learnings and insights around events, such as the sad death of Myles, are shared across the NHS at both a national and regional level and helps us to pay close attention to any emerging trends that may require further review and action.”

Source location

Response from NHS England
Page 4 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Work with the Royal College of GPs and stakeholders to improve annual learning disability health checks.

Verbatim wording from the response

“NHS England is working with the Royal College of GPs and other stakeholders to improve the quality of annual health checks for people with a learning disability and will be publishing a framework for annual health checks in coming months.”

Source location

Response from NHS England
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Produce guidance for general practice on improving identification of people with learning disabilities.

Verbatim wording from the response

“NHS England has also produced guidance for general practice on improving identification of people with a learning disability.”

Source location

Response from NHS England
Page 2 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Integrated Care Boards are responsible for commissioning and contract management of GP practices, including contractual reviews addressing practice variation and improvement needs.

Verbatim wording from the response

“Integrated Care Board (ICBs) are responsible for the commissioning and contract management of GP practices. ICBs will undertake intelligence led and routine contractual reviews based on a combination of national and local data sources, alongside other soft intelligence, and practice visits to identify practice variation and improvement needs. NHS England publishes guidance for ICBs, which includes an assurance framework for contractual reviews.”

Source location

Response from NHS England
Page 3 · response
Published 17 July 2025

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Individual organisations are responsible for using their own systems and processes to record people’s reasonable adjustment needs.

Verbatim wording from the response

“Organisations are required to use their own systems and processes to record reasonable adjustment needs, and staff e-learning training has been rolled out for all health and care staff to support this.”

Source location

Response from NHS England
Page 2 · response
Published 17 July 2025

Open published response
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Information checked against the published report and official responses · Data reviewed 7 Sep 2026 · About data quality and limitations

Official responses located
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Data last updated 7 September 2026