PFD report

Craig John BURFIELD · Prevention of Future Deaths report

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Issued 26 Mar 2024•South Yorkshire (Western)

Report record

Published report and response evidence

This page connects the concerns raised in this report with statements found in recipients’ published responses. A link shows a clear evidence connection; it does not assign responsibility.

View original report
Concerns
3

Raised in this report

Recipients
2

Named on the report

Responses found
2

Of 2 recipients

Stated actions
5

Described in responses

Source document

Full report text

This is the full text from the original published report.

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Concerns and recipient responses

Select any concern, action or position to view the source wording.

Report evidence summary

Concerns raised3

  1. Lack of a transfer protocol or pathway for transition from childhood to adulthood
    Part of recurring concern: Unreliable healthcare patient transfer processesPart of recurring concern: Unsafe transition and continuity of care from child to adult healthcare
  2. Lack of an effective review process for adults
    Part of recurring concern: Unsafe transition and continuity of care from child to adult healthcare
  3. Failure to provide continuing adult care for patients with hydrocephalus shunts
Responses linked to these concerns

Each statement is shown once, even when linked to more than one concern.

Actions described in response An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.5

  1. Action

    Formalise the transition process in a written pathway clarifying how young people with shunts move from children’s to adult services.

    Stated by Sheffield Children'S NHS Foundation Trust and Sheffield Teaching Hospitals NHS Foundation TrustStated plannedThe respondent said that this action was planned when they made their response on 15 April 2024.
  2. Action

    Participate in the regional innovator project to standardise developmentally appropriate transition care, including defined roles, staff training, personalised plans and patient tracking.

    Stated by Sheffield Children'S NHS Foundation Trust and Sheffield Teaching Hospitals NHS Foundation TrustStated completedThe respondent said that this action was complete when they made their response on 15 April 2024.
  3. Action

    Operate an agreed cross-trust transition pathway covering records, individual plans, transfer information and attendance at the first adult appointment.

    Stated by Sheffield Children'S NHS Foundation Trust and Sheffield Teaching Hospitals NHS Foundation TrustStated completedThe respondent said that this action was complete when they made their response on 15 April 2024.

Respondent positions A position is what a recipient says about a concern when it does not describe a specific action.1

  1. Position

    Routine shunt reviews are not clinically required after transition; patients remain able to seek advice about symptoms or concerns.

    Stated by Sheffield Children'S NHS Foundation Trust and Sheffield Teaching Hospitals NHS Foundation TrustDisputes the concernThe respondent disagreed with part of the concern or the basis for it.

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of a transfer protocol or pathway for transition from childhood to adulthood

Wider context from the report

“During evidence from the family and ████████, author of the internal investigation, it became clear that although Craig had received care for the shunts implanted as a consequence of his hydrocephalus as a young person, this did not continue as an adult. Also, there was no process for review of patients such as Craig. ████████ gave evidence that there remained no transfer protocol or pathway in place as children move into adulthood as at the current date nor an effective review process for adults at the present time. In evidence she stated that it was important that a clear pathway, including for transitions between childhood and adulthood, was in place and a failure to have such clear pathways and protocols such that people who needed care could easily access it could potentially be fatal. ”

Is this part of a recurring concern?

Yes — Unreliable healthcare patient transfer processes; Unsafe transition and continuity of care from child to adult healthcare.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of an effective review process for adults

Wider context from the report

“During evidence from the family and ████████, author of the internal investigation, it became clear that although Craig had received care for the shunts implanted as a consequence of his hydrocephalus as a young person, this did not continue as an adult. Also, there was no process for review of patients such as Craig. ████████ gave evidence that there remained no transfer protocol or pathway in place as children move into adulthood as at the current date nor an effective review process for adults at the present time. In evidence she stated that it was important that a clear pathway, including for transitions between childhood and adulthood, was in place and a failure to have such clear pathways and protocols such that people who needed care could easily access it could potentially be fatal. ”

Is this part of a recurring concern?

Yes — Unsafe transition and continuity of care from child to adult healthcare.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to provide continuing adult care for patients with hydrocephalus shunts

Wider context from the report

“During evidence from the family and ████████, author of the internal investigation, it became clear that although Craig had received care for the shunts implanted as a consequence of his hydrocephalus as a young person, this did not continue as an adult. Also, there was no process for review of patients such as Craig. ████████ gave evidence that there remained no transfer protocol or pathway in place as children move into adulthood as at the current date nor an effective review process for adults at the present time. In evidence she stated that it was important that a clear pathway, including for transitions between childhood and adulthood, was in place and a failure to have such clear pathways and protocols such that people who needed care could easily access it could potentially be fatal. ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Formalise the transition process in a written pathway clarifying how young people with shunts move from children’s to adult services.

Verbatim wording from the response

“Following the concern raised by Craig’s inquest, we will formalise the process with a written pathway so that it is clear to both SCFT and STHFT what process these young people will follow when transitioning to adult services. This will be complete by September 2024.”

Source location

Response from Sheffield Teaching Hospitals
Page 2 · response
Published 15 April 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Participate in the regional innovator project to standardise developmentally appropriate transition care, including defined roles, staff training, personalised plans and patient tracking.

Verbatim wording from the response

“Early in 2023 the South Yorkshire & Bassetlaw Acute Federation Trust Paediatric Innovator Programme was established, which includes a project on standardising developmentally appropriate healthcare for young people with chronic or complex conditions transitioning from paediatric to adult secondary care. This is a provider collaboration between STHFT, SCFT, Barnsley Hospital NHS Foundation Trust, Doncaster and Bassetlaw Teaching Hospitals NHS Foundation Trust and The Rotherham NHS Foundation Trust. It is one of nine national provider collaborative innovators.”

Source location

Response from Sheffield Teaching Hospitals
Page 2 · response
Published 15 April 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Operate an agreed cross-trust transition pathway covering records, individual plans, transfer information and attendance at the first adult appointment.

Verbatim wording from the response

“We acknowledge that the arrangements for transition have not been as robust as they could have been, and we have been working hard to address this. The current transition process is reflected in the SCFT and STHFT Transition Policy and the Cross Trust Transition pathway which have been agreed between the two organisations (enclosed). The Cross Trust Transition pathway details the process followed by both organisations and includes:”

Source location

Response from Sheffield Teaching Hospitals
Page 1 · response
Published 15 April 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Provide specialist transition-team support, including multidisciplinary discussions and assistance with initial adult appointments or inpatient ward visits for young people with complex needs.

Verbatim wording from the response

“To support the transition process there are specialist transition teams at SCFT and STHFT; these teams work closely together to support young people with complex healthcare needs who are transitioning from child to adult healthcare. For patients with complex needs the Transition Teams facilitate a multi-disciplinary team discussion with the receiving specialities to ensure appropriate arrangements are in place. Where appropriate the STH Transition Team would also support with the initial appointment(s) in adult services and where there are likely to be inpatient admissions, arrange visits to the relevant wards.”

Source location

Response from Sheffield Teaching Hospitals
Page 1 · response
Published 15 April 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Run a monthly transition clinic for hydrocephalus patients aged 14 and over, with extended appointments covering clinical review and transition preparation.

Verbatim wording from the response

“For young people with shunts SCFT runs a monthly transition clinic where all hydrocephalus patients 14 years old and over are seen by clinical nurse specialists. The more complex hydrocephalus patients or those with other neurological conditions are followed up in a Consultant Neurosurgeon’s clinic and they will start to discuss transition with them from around 14 years old as per the SCFT and STHFT Transition Policy. These visits require longer appointment times as they cover a hydrocephalus check and discuss preparation for transition. At the last appointment before transition the patient is provided with contact details for the Neurosurgical secretaries so that they know who to contact if they have any concerns about their symptoms between appointments in the adult service.”

Source location

Response from Sheffield Teaching Hospitals
Page 2 · response
Published 15 April 2024

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Routine shunt reviews are not clinically required after transition; patients remain able to seek advice about symptoms or concerns.

Verbatim wording from the response

“There is no clinical requirement for the routine review of shunts, however during appointments both before and after transfer, patients and/or their families are made aware of the signs and symptoms of a blocked shunt and what action they should take. If, following transition, a decision is made that further routine follow-up is not required, the patient will stay active on the neurosurgery pathway. Patients will be provided with contact details, so that the patient and family are aware of who to contact, including the Consultant’s secretary, for non-urgent enquiries or the on-call Neurosurgeon for urgent enquiries.”

Source location

Response from Sheffield Teaching Hospitals
Page 2 · response
Published 15 April 2024

Open published response

Other statements in published responses

These actions and other statements could not be clearly connected to one concern in this report.

Recipient positions A position is what a recipient says about a concern when they do not describe a specific action.1

  1. 1

    An adult neurodevelopmental disorder service cannot currently be developed because funding has not been identified.

    Stated by Sheffield Children'S NHS Foundation Trust and Sheffield Teaching Hospitals NHS Foundation TrustUnable to actThe respondent said that a constraint prevented them from taking the relevant action.

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

An adult neurodevelopmental disorder service cannot currently be developed because funding has not been identified.

Verbatim wording from the response

“At present, STH does not have a designated service for adults with neurodevelopmental disorders equivalent to the paediatric neurodisability service. Subject to funding being identified an adult neurodevelopmental disorder service may be developed in the future.”

Source location

Response from Sheffield Teaching Hospitals
Page 2 · response
Published 15 April 2024

Open published response
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Information checked against the published report and official responses · Data reviewed 7 Sep 2026 · About data quality and limitations

Official responses located
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Data last updated 7 September 2026