PFD report

Sophie Gwen Williams · Prevention of Future Deaths report

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Issued 27 Feb 2023•North London

Report record

Published report and response evidence

This page connects the concerns raised in this report with statements found in recipients’ published responses. A link shows a clear evidence connection; it does not assign responsibility.

View original report
Concerns
11

Raised in this report

Recipients
2

Named on the report

Responses found
2

Of 2 recipients

Stated actions
18

Described in responses

Source document

Full report text

This is the full text from the original published report.

Open published report

Concerns and recipient responses

Select any concern, action or position to view the source wording.

Report evidence summary

Concerns raised11

  1. Lack of mental health care for patients on waiting lists
    Part of recurring concern: Inadequate interim care for patients awaiting gender-identity treatment
  2. Lack of a single, named point of contact available to patients when needed
  3. Failure of assessment protocols to require consideration of dissociation and psychosis risks and effects
    Part of recurring concern: Inadequate mental health risk assessment
Responses linked to these concerns

Each statement is shown once, even when linked to more than one concern.

Actions described in response An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.13

  1. Action

    Monitor training through monthly management meetings, clinical supervision, case discussions, electronic-record compliance checks and annual appraisals.

    Stated by North London NHS Foundation TrustStated completedThe respondent said that this action was complete when they made their response on 10 March 2023.
  2. Action

    Deliver training on working with trans people and gender-affirming care to Personality Disorder Service staff.

    Stated by North London NHS Foundation TrustStated completedThe respondent said that this action was complete when they made their response on 10 March 2023.
  3. Action

    Seek internal and external records of previous engagements and treatments, and incorporate relevant information from service users and permitted supporters into assessment and treatment planning.

    Stated by North London NHS Foundation TrustStated plannedThe respondent said that this action was planned when they made their response on 10 March 2023.

Respondent positions A position is what a recipient says about a concern when it does not describe a specific action.9

  1. Position

    Mental healthcare for GIC patients is provided through GPs or secondary mental health services, with information sharing as needed.

    Stated by North London NHS Foundation TrustExisting arrangements considered sufficientThe respondent said that existing arrangements were sufficient, so no further action was needed.

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of mental health care for patients on waiting lists

Wider context from the report

“for trans persons on a Personality Disorder Pathway, arise out of the lack of provision of the following: (A) by local NHS Trusts: (1) The assignment of a single, named point of contact, available (aside from holiday and sickness absence) when needed by the patient; (2) The training of staff assigned to provide care and treatment to such persons, both at the time of their appointment, and annually thereafter, with a focus on: (a) the needs of trans persons (b) gender-affirming care (c) dissociation and psychosis (3) Scrutiny of the delivery and implementation of such training, by way of quality assurance. (4) The absence from the assessment protocol of a provision to ensure that the full account is taken of: (a) any previous diagnosis and treatment (b) all other information (including information from those who have previously provided care and treatment to the patient) available to members of the team (c) the risks to (and effects on) patients with (or likely to develop) conditions of dissociation and/or psychosis including, in particular, the risks of self-harm and loss of life (d) the views of those who are close to the patient, including the patient’s carers, family and advocates (both formal and informal), who should be contacted, for that purpose (B) By clinics providing gender-identity treatment (and in relation to both current and prospective patients): (1) a help-line, available when needed by patients (2) the direction of patients to specialist carers (3) provision of mental health care for those patients on waiting-lists (4) liaison (at both local and national levels) among all clinicians concerned (or expected to be concerned) in the care and treatment of such patients (5) the setting and implementation (where practicable) of criteria for deciding whether (and, if so, which) patients (other than those terminally ill) should be given priority for receiving treatment ”

Is this part of a recurring concern?

Yes — Inadequate interim care for patients awaiting gender-identity treatment.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of a single, named point of contact available to patients when needed

Wider context from the report

“for trans persons on a Personality Disorder Pathway, arise out of the lack of provision of the following: (A) by local NHS Trusts: (1) The assignment of a single, named point of contact, available (aside from holiday and sickness absence) when needed by the patient; (2) The training of staff assigned to provide care and treatment to such persons, both at the time of their appointment, and annually thereafter, with a focus on: (a) the needs of trans persons (b) gender-affirming care (c) dissociation and psychosis (3) Scrutiny of the delivery and implementation of such training, by way of quality assurance. (4) The absence from the assessment protocol of a provision to ensure that the full account is taken of: (a) any previous diagnosis and treatment (b) all other information (including information from those who have previously provided care and treatment to the patient) available to members of the team (c) the risks to (and effects on) patients with (or likely to develop) conditions of dissociation and/or psychosis including, in particular, the risks of self-harm and loss of life (d) the views of those who are close to the patient, including the patient’s carers, family and advocates (both formal and informal), who should be contacted, for that purpose (B) By clinics providing gender-identity treatment (and in relation to both current and prospective patients): (1) a help-line, available when needed by patients (2) the direction of patients to specialist carers (3) provision of mental health care for those patients on waiting-lists (4) liaison (at both local and national levels) among all clinicians concerned (or expected to be concerned) in the care and treatment of such patients (5) the setting and implementation (where practicable) of criteria for deciding whether (and, if so, which) patients (other than those terminally ill) should be given priority for receiving treatment ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure of assessment protocols to require consideration of dissociation and psychosis risks and effects

Wider context from the report

“for trans persons on a Personality Disorder Pathway, arise out of the lack of provision of the following: (A) by local NHS Trusts: (1) The assignment of a single, named point of contact, available (aside from holiday and sickness absence) when needed by the patient; (2) The training of staff assigned to provide care and treatment to such persons, both at the time of their appointment, and annually thereafter, with a focus on: (a) the needs of trans persons (b) gender-affirming care (c) dissociation and psychosis (3) Scrutiny of the delivery and implementation of such training, by way of quality assurance. (4) The absence from the assessment protocol of a provision to ensure that the full account is taken of: (a) any previous diagnosis and treatment (b) all other information (including information from those who have previously provided care and treatment to the patient) available to members of the team (c) the risks to (and effects on) patients with (or likely to develop) conditions of dissociation and/or psychosis including, in particular, the risks of self-harm and loss of life (d) the views of those who are close to the patient, including the patient’s carers, family and advocates (both formal and informal), who should be contacted, for that purpose (B) By clinics providing gender-identity treatment (and in relation to both current and prospective patients): (1) a help-line, available when needed by patients (2) the direction of patients to specialist carers (3) provision of mental health care for those patients on waiting-lists (4) liaison (at both local and national levels) among all clinicians concerned (or expected to be concerned) in the care and treatment of such patients (5) the setting and implementation (where practicable) of criteria for deciding whether (and, if so, which) patients (other than those terminally ill) should be given priority for receiving treatment ”

Is this part of a recurring concern?

Yes — Inadequate mental health risk assessment.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to provide initial and annual training for staff caring for trans persons

Wider context from the report

“for trans persons on a Personality Disorder Pathway, arise out of the lack of provision of the following: (A) by local NHS Trusts: (1) The assignment of a single, named point of contact, available (aside from holiday and sickness absence) when needed by the patient; (2) The training of staff assigned to provide care and treatment to such persons, both at the time of their appointment, and annually thereafter, with a focus on: (a) the needs of trans persons (b) gender-affirming care (c) dissociation and psychosis (3) Scrutiny of the delivery and implementation of such training, by way of quality assurance. (4) The absence from the assessment protocol of a provision to ensure that the full account is taken of: (a) any previous diagnosis and treatment (b) all other information (including information from those who have previously provided care and treatment to the patient) available to members of the team (c) the risks to (and effects on) patients with (or likely to develop) conditions of dissociation and/or psychosis including, in particular, the risks of self-harm and loss of life (d) the views of those who are close to the patient, including the patient’s carers, family and advocates (both formal and informal), who should be contacted, for that purpose (B) By clinics providing gender-identity treatment (and in relation to both current and prospective patients): (1) a help-line, available when needed by patients (2) the direction of patients to specialist carers (3) provision of mental health care for those patients on waiting-lists (4) liaison (at both local and national levels) among all clinicians concerned (or expected to be concerned) in the care and treatment of such patients (5) the setting and implementation (where practicable) of criteria for deciding whether (and, if so, which) patients (other than those terminally ill) should be given priority for receiving treatment ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of quality assurance scrutiny of staff training delivery and implementation

Wider context from the report

“for trans persons on a Personality Disorder Pathway, arise out of the lack of provision of the following: (A) by local NHS Trusts: (1) The assignment of a single, named point of contact, available (aside from holiday and sickness absence) when needed by the patient; (2) The training of staff assigned to provide care and treatment to such persons, both at the time of their appointment, and annually thereafter, with a focus on: (a) the needs of trans persons (b) gender-affirming care (c) dissociation and psychosis (3) Scrutiny of the delivery and implementation of such training, by way of quality assurance. (4) The absence from the assessment protocol of a provision to ensure that the full account is taken of: (a) any previous diagnosis and treatment (b) all other information (including information from those who have previously provided care and treatment to the patient) available to members of the team (c) the risks to (and effects on) patients with (or likely to develop) conditions of dissociation and/or psychosis including, in particular, the risks of self-harm and loss of life (d) the views of those who are close to the patient, including the patient’s carers, family and advocates (both formal and informal), who should be contacted, for that purpose (B) By clinics providing gender-identity treatment (and in relation to both current and prospective patients): (1) a help-line, available when needed by patients (2) the direction of patients to specialist carers (3) provision of mental health care for those patients on waiting-lists (4) liaison (at both local and national levels) among all clinicians concerned (or expected to be concerned) in the care and treatment of such patients (5) the setting and implementation (where practicable) of criteria for deciding whether (and, if so, which) patients (other than those terminally ill) should be given priority for receiving treatment ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to set and implement criteria for treatment prioritisation

Wider context from the report

“for trans persons on a Personality Disorder Pathway, arise out of the lack of provision of the following: (A) by local NHS Trusts: (1) The assignment of a single, named point of contact, available (aside from holiday and sickness absence) when needed by the patient; (2) The training of staff assigned to provide care and treatment to such persons, both at the time of their appointment, and annually thereafter, with a focus on: (a) the needs of trans persons (b) gender-affirming care (c) dissociation and psychosis (3) Scrutiny of the delivery and implementation of such training, by way of quality assurance. (4) The absence from the assessment protocol of a provision to ensure that the full account is taken of: (a) any previous diagnosis and treatment (b) all other information (including information from those who have previously provided care and treatment to the patient) available to members of the team (c) the risks to (and effects on) patients with (or likely to develop) conditions of dissociation and/or psychosis including, in particular, the risks of self-harm and loss of life (d) the views of those who are close to the patient, including the patient’s carers, family and advocates (both formal and informal), who should be contacted, for that purpose (B) By clinics providing gender-identity treatment (and in relation to both current and prospective patients): (1) a help-line, available when needed by patients (2) the direction of patients to specialist carers (3) provision of mental health care for those patients on waiting-lists (4) liaison (at both local and national levels) among all clinicians concerned (or expected to be concerned) in the care and treatment of such patients (5) the setting and implementation (where practicable) of criteria for deciding whether (and, if so, which) patients (other than those terminally ill) should be given priority for receiving treatment ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to direct patients to specialist carers

Wider context from the report

“for trans persons on a Personality Disorder Pathway, arise out of the lack of provision of the following: (A) by local NHS Trusts: (1) The assignment of a single, named point of contact, available (aside from holiday and sickness absence) when needed by the patient; (2) The training of staff assigned to provide care and treatment to such persons, both at the time of their appointment, and annually thereafter, with a focus on: (a) the needs of trans persons (b) gender-affirming care (c) dissociation and psychosis (3) Scrutiny of the delivery and implementation of such training, by way of quality assurance. (4) The absence from the assessment protocol of a provision to ensure that the full account is taken of: (a) any previous diagnosis and treatment (b) all other information (including information from those who have previously provided care and treatment to the patient) available to members of the team (c) the risks to (and effects on) patients with (or likely to develop) conditions of dissociation and/or psychosis including, in particular, the risks of self-harm and loss of life (d) the views of those who are close to the patient, including the patient’s carers, family and advocates (both formal and informal), who should be contacted, for that purpose (B) By clinics providing gender-identity treatment (and in relation to both current and prospective patients): (1) a help-line, available when needed by patients (2) the direction of patients to specialist carers (3) provision of mental health care for those patients on waiting-lists (4) liaison (at both local and national levels) among all clinicians concerned (or expected to be concerned) in the care and treatment of such patients (5) the setting and implementation (where practicable) of criteria for deciding whether (and, if so, which) patients (other than those terminally ill) should be given priority for receiving treatment ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure of assessment protocols to require consideration of previous diagnoses, treatment and available care information

Wider context from the report

“for trans persons on a Personality Disorder Pathway, arise out of the lack of provision of the following: (A) by local NHS Trusts: (1) The assignment of a single, named point of contact, available (aside from holiday and sickness absence) when needed by the patient; (2) The training of staff assigned to provide care and treatment to such persons, both at the time of their appointment, and annually thereafter, with a focus on: (a) the needs of trans persons (b) gender-affirming care (c) dissociation and psychosis (3) Scrutiny of the delivery and implementation of such training, by way of quality assurance. (4) The absence from the assessment protocol of a provision to ensure that the full account is taken of: (a) any previous diagnosis and treatment (b) all other information (including information from those who have previously provided care and treatment to the patient) available to members of the team (c) the risks to (and effects on) patients with (or likely to develop) conditions of dissociation and/or psychosis including, in particular, the risks of self-harm and loss of life (d) the views of those who are close to the patient, including the patient’s carers, family and advocates (both formal and informal), who should be contacted, for that purpose (B) By clinics providing gender-identity treatment (and in relation to both current and prospective patients): (1) a help-line, available when needed by patients (2) the direction of patients to specialist carers (3) provision of mental health care for those patients on waiting-lists (4) liaison (at both local and national levels) among all clinicians concerned (or expected to be concerned) in the care and treatment of such patients (5) the setting and implementation (where practicable) of criteria for deciding whether (and, if so, which) patients (other than those terminally ill) should be given priority for receiving treatment ”

Is this part of a recurring concern?

Yes — Failure to incorporate relevant clinical history and diagnoses into care decisions.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure of liaison among clinicians involved in patient care and treatment

Wider context from the report

“for trans persons on a Personality Disorder Pathway, arise out of the lack of provision of the following: (A) by local NHS Trusts: (1) The assignment of a single, named point of contact, available (aside from holiday and sickness absence) when needed by the patient; (2) The training of staff assigned to provide care and treatment to such persons, both at the time of their appointment, and annually thereafter, with a focus on: (a) the needs of trans persons (b) gender-affirming care (c) dissociation and psychosis (3) Scrutiny of the delivery and implementation of such training, by way of quality assurance. (4) The absence from the assessment protocol of a provision to ensure that the full account is taken of: (a) any previous diagnosis and treatment (b) all other information (including information from those who have previously provided care and treatment to the patient) available to members of the team (c) the risks to (and effects on) patients with (or likely to develop) conditions of dissociation and/or psychosis including, in particular, the risks of self-harm and loss of life (d) the views of those who are close to the patient, including the patient’s carers, family and advocates (both formal and informal), who should be contacted, for that purpose (B) By clinics providing gender-identity treatment (and in relation to both current and prospective patients): (1) a help-line, available when needed by patients (2) the direction of patients to specialist carers (3) provision of mental health care for those patients on waiting-lists (4) liaison (at both local and national levels) among all clinicians concerned (or expected to be concerned) in the care and treatment of such patients (5) the setting and implementation (where practicable) of criteria for deciding whether (and, if so, which) patients (other than those terminally ill) should be given priority for receiving treatment ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of a helpline available to patients when needed

Wider context from the report

“for trans persons on a Personality Disorder Pathway, arise out of the lack of provision of the following: (A) by local NHS Trusts: (1) The assignment of a single, named point of contact, available (aside from holiday and sickness absence) when needed by the patient; (2) The training of staff assigned to provide care and treatment to such persons, both at the time of their appointment, and annually thereafter, with a focus on: (a) the needs of trans persons (b) gender-affirming care (c) dissociation and psychosis (3) Scrutiny of the delivery and implementation of such training, by way of quality assurance. (4) The absence from the assessment protocol of a provision to ensure that the full account is taken of: (a) any previous diagnosis and treatment (b) all other information (including information from those who have previously provided care and treatment to the patient) available to members of the team (c) the risks to (and effects on) patients with (or likely to develop) conditions of dissociation and/or psychosis including, in particular, the risks of self-harm and loss of life (d) the views of those who are close to the patient, including the patient’s carers, family and advocates (both formal and informal), who should be contacted, for that purpose (B) By clinics providing gender-identity treatment (and in relation to both current and prospective patients): (1) a help-line, available when needed by patients (2) the direction of patients to specialist carers (3) provision of mental health care for those patients on waiting-lists (4) liaison (at both local and national levels) among all clinicians concerned (or expected to be concerned) in the care and treatment of such patients (5) the setting and implementation (where practicable) of criteria for deciding whether (and, if so, which) patients (other than those terminally ill) should be given priority for receiving treatment ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure of assessment protocols to require obtaining and considering the views of people close to patients

Wider context from the report

“for trans persons on a Personality Disorder Pathway, arise out of the lack of provision of the following: (A) by local NHS Trusts: (1) The assignment of a single, named point of contact, available (aside from holiday and sickness absence) when needed by the patient; (2) The training of staff assigned to provide care and treatment to such persons, both at the time of their appointment, and annually thereafter, with a focus on: (a) the needs of trans persons (b) gender-affirming care (c) dissociation and psychosis (3) Scrutiny of the delivery and implementation of such training, by way of quality assurance. (4) The absence from the assessment protocol of a provision to ensure that the full account is taken of: (a) any previous diagnosis and treatment (b) all other information (including information from those who have previously provided care and treatment to the patient) available to members of the team (c) the risks to (and effects on) patients with (or likely to develop) conditions of dissociation and/or psychosis including, in particular, the risks of self-harm and loss of life (d) the views of those who are close to the patient, including the patient’s carers, family and advocates (both formal and informal), who should be contacted, for that purpose (B) By clinics providing gender-identity treatment (and in relation to both current and prospective patients): (1) a help-line, available when needed by patients (2) the direction of patients to specialist carers (3) provision of mental health care for those patients on waiting-lists (4) liaison (at both local and national levels) among all clinicians concerned (or expected to be concerned) in the care and treatment of such patients (5) the setting and implementation (where practicable) of criteria for deciding whether (and, if so, which) patients (other than those terminally ill) should be given priority for receiving treatment ”

Is this part of a recurring concern?

Yes — Failure to obtain relevant collateral information from family and social supports.

Open source report

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Monitor training through monthly management meetings, clinical supervision, case discussions, electronic-record compliance checks and annual appraisals.

Verbatim wording from the response

“3. Scrutiny of the delivery and implementation of such training, by way of Quality Assurance”

Source location

Response from Barnet, Enfield and Haringey Mental Health Trust
Page 3 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Deliver training on working with trans people and gender-affirming care to Personality Disorder Service staff.

Verbatim wording from the response

“2. the training of staff assigned to provide care and treatment to such persons, both at the time of their appointment, and annually thereafter, with a focus on:”

Source location

Response from Barnet, Enfield and Haringey Mental Health Trust
Page 2 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Seek internal and external records of previous engagements and treatments, and incorporate relevant information from service users and permitted supporters into assessment and treatment planning.

Verbatim wording from the response

“b. all other information (including information from those who have previously provided care and treatment to the patient) available to the member of the team”

Source location

Response from Barnet, Enfield and Haringey Mental Health Trust
Page 3 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Require clinicians to invite family members, carers, supporters and advocates to assessments and record their contact details and involvement in Rio.

Verbatim wording from the response

“d. the views of those who are close to the patient, including the patient’s carers, family, and advocates (both formal and informal), who should be contacted, for that purpose.”

Source location

Response from Barnet, Enfield and Haringey Mental Health Trust
Page 3 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Require initial assessments to examine previous diagnoses and treatments in consultation with the service user.

Verbatim wording from the response

“4. The absence from the assessment protocol of a provision to ensure that a full account is taken of:”

Source location

Response from Barnet, Enfield and Haringey Mental Health Trust
Page 3 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Provide every service user with a named point of contact from referral and identify that person in the referral acknowledgement letter.

Verbatim wording from the response

“1. The assignment of a single, named point of contact, available (aside from holiday and sickness absence) when needed by the patient.”

Source location

Response from Barnet, Enfield and Haringey Mental Health Trust
Page 2 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Deliver scheduled diversity identity training covering diverse identity, micro-affirmation, transgender documentation and inequalities, with attendance follow-up.

Verbatim wording from the response

“2. the training of staff assigned to provide care and treatment to such persons, both at the time of their appointment, and annually thereafter, with a focus on:”

Source location

Response from Barnet, Enfield and Haringey Mental Health Trust
Page 2 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Require assessment of dissociation and psychosis, including consideration of self-harm and suicidality risks.

Verbatim wording from the response

“c. the risks to (and effects on) patients with (or likely to develop) conditions of dissociation”

Source location

Response from Barnet, Enfield and Haringey Mental Health Trust
Page 3 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Discuss with commissioners whether a national protocol can support patients moving between clinics before their first appointment.

Verbatim wording from the response

“Regarding the setting and implementation of criteria for prioritising patients for treatment, it is deeply regrettable that Ms. Williams could not maintain her existing place on the waiting list following a previous referral to a different GIC (as she had not yet been reviewed at the first clinic to which she was referred). Any change in this approach would have to be agreed nationally, not unilaterally by the GIC, to ensure equity and consistency for service users. The Trust will also discuss this arrangement with its commissioners in order to see if there is any scope for a different, national protocol for those patients moving between clinics before they have had their first appointment.”

Source location

Response from The Tavistock and Portman NHS Foundation Trust
Page 2 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Increase financial investment in Gender Dysphoria Clinics to support recruitment of additional clinicians where possible.

Verbatim wording from the response

“the Royal College of Physicians to design and fund the UK’s first Gender Identity Healthcare Credential, which since 2020 has provided a route for clinicians to train in the specialty of gender dysphoria healthcare. In addition, NHS England has significantly increased financial investment in the Gender Dysphoria Clinics in recent years, to recruit additional clinicians where possible.”

Source location

Response from NHS England
Page 4 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Design and fund the Gender Identity Healthcare Credential to provide clinicians with a specialist gender dysphoria healthcare training route.

Verbatim wording from the response

“the Royal College of Physicians to design and fund the UK’s first Gender Identity Healthcare Credential, which since 2020 has provided a route for clinicians to train in the specialty of gender dysphoria healthcare. In addition, NHS England has significantly increased financial investment in the Gender Dysphoria Clinics in recent years, to recruit additional clinicians where possible.”

Source location

Response from NHS England
Page 4 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Disseminate descriptions of existing helplines and NHS-commissioned patient support to all commissioned Gender Dysphoria Clinics for best-practice assessment.

Verbatim wording from the response

“By November 2023, NHS England will have disseminated amongst all NHS commissioned Gender Dysphoria Clinics a description of existing helplines used by Gender Dysphoria Services – and a description of other forms of support commissioned by NHS England - so that an assessment of ‘best practice’ may be made by Gender Dysphoria Clinics in forming their response to HM Coroner’s finding of concern about the lack of this support for the benefit of patients on their waiting lists.”

Source location

Response from NHS England
Page 3 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Establish and commission waiting-list support for gender dysphoria patients, including screening, outreach, peer support, advice lines and pre-assessment workshops.

Verbatim wording from the response

“NHS England has directly supported NHS Gender Dysphoria Clinics in developing and establishing forms of support for patients while they remain on the waiting list. In a recent discretionary investment exercise, NHS England sought proposals from Gender Dysphoria Clinics that would either increase the number of clinical staff in their service or, in recognition of the workforce constraints, would improve the patient experience in other ways, such as support while on the waiting list. While not certain it would have changed the outcome in this case, there is clinical opinion that telephone”

Source location

Response from NHS England
Page 1 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Mental healthcare for GIC patients is provided through GPs or secondary mental health services, with information sharing as needed.

Verbatim wording from the response

“Addressing the specific concerns at 5B of your Report, the condition the GIC is commissioned to treat is Gender Incongruence, coded HA60 in the International Classification of Diseases version 11; this is ‘a condition related to sexual health’ and not a mental health diagnosis. Accordingly, the provision of mental health care for those both on the waiting list, and those who are actively being treated by the GIC, continues to be dealt with either through their GP or secondary mental health services, as was the case for Ms. Williams. The GIC works closely with colleagues from primary care or secondary mental health services, including sharing information to facilitate patient care as required.”

Source location

Response from The Tavistock and Portman NHS Foundation Trust
Page 2 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Any change to waiting-list prioritisation for patients moving between clinics must be agreed nationally rather than by the GIC alone.

Verbatim wording from the response

“Regarding the setting and implementation of criteria for prioritising patients for treatment, it is deeply regrettable that Ms. Williams could not maintain her existing place on the waiting list following a previous referral to a different GIC (as she had not yet been reviewed at the first clinic to which she was referred). Any change in this approach would have to be agreed nationally, not unilaterally by the GIC, to ensure equity and consistency for service users. The Trust will also discuss this arrangement with its commissioners in order to see if there is any scope for a different, national protocol for those patients moving between clinics before they have had their first appointment.”

Source location

Response from The Tavistock and Portman NHS Foundation Trust
Page 2 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

The Trust cannot provide services for patients waiting for GIC assessment because those services are not currently commissioned.

Verbatim wording from the response

“The service specification states that “Gender Dysphoria Clinics assess and diagnose individuals; directly provide some interventions and arrange referrals to other services, including for medical and surgical treatments.” The Trust is inevitably restricted to providing”

Source location

Response from The Tavistock and Portman NHS Foundation Trust
Page 1 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

NHS England commissioners must decide whether waiting-list services should be commissioned and funded.

Verbatim wording from the response

“The Trust however is keen to engage in a dialogue with its commissioners, NHS England, to discuss the provisions proposed in your Report and whether these services should be commissioned and funded in the future, and thus able to be provided by the Trust or other providers.”

Source location

Response from The Tavistock and Portman NHS Foundation Trust
Page 2 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

The GIC treats gender incongruence, which is not classified as a mental health diagnosis.

Verbatim wording from the response

“Addressing the specific concerns at 5B of your Report, the condition the GIC is commissioned to treat is Gender Incongruence, coded HA60 in the International Classification of Diseases version 11; this is ‘a condition related to sexual health’ and not a mental health diagnosis. Accordingly, the provision of mental health care for those both on the waiting list, and those who are actively being treated by the GIC, continues to be dealt with either through their GP or secondary mental health services, as was the case for Ms. Williams. The GIC works closely with colleagues from primary care or secondary mental health services, including sharing information to facilitate patient care as required.”

Source location

Response from The Tavistock and Portman NHS Foundation Trust
Page 2 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Integrated Care Boards, rather than NHS England, are responsible for commissioning local mental health services.

Verbatim wording from the response

“Commissioning responsibility for local mental health services rests with Integrated Care Boards (ICB), rather than NHS England. The make-up of local services will therefore differ according to each ICB’s commissioning strategy. Also, an individual’s GP plays an important role in supporting patients who have physical and mental health support needs, including referral to local NHS services (being mindful that evidence shows that transgender and non-binary people are more likely to experience poor mental health than the general population). The NHS Long Term Plan for Mental Health describes an expansion of local mental health care so that more people can access treatment by increasing funding at a faster rate than the overall NHS budget – and by at least £2.3bn a year by 2023/24.”

Source location

Response from NHS England
Page 3 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Specialist workforce expansion could not keep pace with demand because clinicians were difficult to attract, train and retain.

Verbatim wording from the response

“The number of referrals into NHS gender dysphoria services has increased significantly, and it has not been possible to grow the specialist workforce at the required rate to keep pace with demand. In 2019, NHS England ran a national procurement exercise for both surgical and non-surgical services, in an effort to attract additional providers to start offering gender dysphoria services. Unfortunately, no new providers came forward, which reflects the difficulty in attracting, training, and retaining clinicians to work in this area of healthcare. For that reason, NHS England worked with”

Source location

Response from NHS England
Page 3 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Referral-date ordering is considered appropriate because risk-based triage could disadvantage patients who have waited longest.

Verbatim wording from the response

“Currently, based on recent clinical opinion, patients are seen based on the referral date to a Gender Dysphoria Clinic. This is considered an appropriate process in that if patients are triaged based on risk, this could negatively impact patients who do not exhibit significant risk and who have been waiting longest. In the absence of firm evidence, the solution is likely to be improving access to more timely healthcare for individuals with gender dysphoria.”

Source location

Response from NHS England
Page 3 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Trusts directly involved in care are better placed to address many concerns raised in the report.

Verbatim wording from the response

“The Trusts directly involved in Sophie’s care are better placed to answer many of the concerns raised in your Report, and NHS England have been sighted on the response from The Tavistock and Portman NHS Foundation Trust. NHS England are the commissioner for specialised gender dysphoria services, and we have therefore focused on the Matters of Concern relating to clinics providing gender identity treatment, where we are in a position to address the concerns raised.”

Source location

Response from NHS England
Page 1 · response
Published 10 March 2023

Open published response

Other statements in published responses

These actions and other statements could not be clearly connected to one concern in this report.

Recipient-stated actions An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.5

  1. 1

    Engage NHS England commissioners to discuss commissioning and funding the services proposed in the Report.

    Stated by North London NHS Foundation TrustStated plannedThe respondent said that this action was planned when they made their response on 10 March 2023.
  2. 2

    Investigate why Sophie was told funding was needed for referral and clinic access.

    Stated by NHS EnglandStated plannedThe respondent said that this action was planned when they made their response on 10 March 2023.
  3. 3

    Ensure the Trust understands and follows relevant responsible-commissioner guidance for referrals and funding.

    Stated by NHS EnglandStated plannedThe respondent said that this action was planned when they made their response on 10 March 2023.
  4. 4

    Share learning from Prevention of Future Deaths reports across NHS national and regional levels and review emerging trends requiring action.

    Stated by NHS EnglandStated in progressThe respondent said that this action was in progress when they made their response on 10 March 2023.
  5. 5

    Fund and establish four new adult gender dysphoria services in primary care and sexual health settings.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 10 March 2023.

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Engage NHS England commissioners to discuss commissioning and funding the services proposed in the Report.

Verbatim wording from the response

“The Trust however is keen to engage in a dialogue with its commissioners, NHS England, to discuss the provisions proposed in your Report and whether these services should be commissioned and funded in the future, and thus able to be provided by the Trust or other providers.”

Source location

Response from The Tavistock and Portman NHS Foundation Trust
Page 2 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Investigate why Sophie was told funding was needed for referral and clinic access.

Verbatim wording from the response

““The patient had then contacted us with the hope that our GIC (Gender Identity Clinic) could honour the referral date of the Belfast clinic, thus not wait long for their first appointment at our clinic. They were informed that this wouldn’t be possible, and that funding needed to be raised in order to be seen at our clinic”.”

Source location

Response from NHS England
Page 4 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Ensure the Trust understands and follows relevant responsible-commissioner guidance for referrals and funding.

Verbatim wording from the response

“From the information available, it is unclear to NHS England as to why the Trust informed Sophie that funding would need to be identified in order to be seen at the Trust’s Gender Dysphoria Clinic. The same incident report prepared by the Trust infers that by that time, Sophie had registered with a GP in London. If that is the case, then the Trust should have been aware that NHS England had become the 'Responsible Commissioner' for Sophie’s referral to the Trust and that the referral was funded via the established contract in place between NHS England and the Trust (source: NHS guidance on establishing the responsible commissioner; paras 19.5 and 19.6 that describe arrangements for patients who move across UK borders ). While not certain”

Source location

Response from NHS England
Page 4 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Share learning from Prevention of Future Deaths reports across NHS national and regional levels and review emerging trends requiring action.

Verbatim wording from the response

“I would also like to provide further assurances on national NHSE work taking place around the Reports to Prevent Future Deaths. All reports received are discussed by the Regulation 28 Working Group, comprising Regional Medical Directors, and other clinical and quality colleagues from across the regions. This ensures that key learnings and insights around preventable deaths are shared across the NHS at both a national and regional level and helps us pay close attention to any emerging trends that may require further review and action.”

Source location

Response from NHS England
Page 5 · response
Published 10 March 2023

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Fund and establish four new adult gender dysphoria services in primary care and sexual health settings.

Verbatim wording from the response

“Additionally, NHS England has funded and established four new adult Gender Dysphoria Services in novel settings (primary care and sexual health clinics) as part of piloting activity since 2020, with the ambition of increasing clinical capacity through a newly trained clinical workforce (more detail is provided below). One of the pilot services (in Greater Manchester) is evaluating the role of Care Navigator, which is a non-clinical role that provides direct peer-support to patients from the point of referral including support in accessing local health services.”

Source location

Response from NHS England
Page 2 · response
Published 10 March 2023

Open published response
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Information checked against the published report and official responses · Data reviewed 7 Sep 2026 · About data quality and limitations

Official responses located
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Data last updated 7 September 2026