PFD report

Luke Richard WILDEN · Prevention of Future Deaths report

Pin Get email alerts Request correction

Issued 16 Jan 2022•Bedfordshire and Luton

Report record

Published report and response evidence

This page connects the concerns raised in this report with statements found in recipients’ published responses. A link shows a clear evidence connection; it does not assign responsibility.

View original report
Concerns
2

Raised in this report

Recipients
2

Named on the report

Responses found
2

Of 2 recipients

Stated actions
17

Described in responses

Source document

Full report text

This is the full text from the original published report.

Open published report

Concerns and recipient responses

Select any concern, action or position to view the source wording.

Report evidence summary

Concerns raised2

  1. Inadequate transition arrangements for individuals with high functioning autism reaching adulthood
    Part of recurring concern: Unsafe transition and continuity of care from child to adult healthcare
  2. National gap in transition services for individuals with high functioning autism
    Part of recurring concern: Unreliable implementation of autism care and support servicesPart of recurring concern: Unsafe transition and continuity of care from child to adult healthcare
Responses linked to these concerns

Each statement is shown once, even when linked to more than one concern.

Actions described in response An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.12

  1. Action

    Participate in the multi-agency task group identifying transition gaps across local authority and health services.

    Stated by East London NHS Foundation TrustStated in progressThe respondent said that this action was in progress when they made their response on 24 January 2022.
  2. Action

    Outline a proposal to establish a strategic multi-agency transitions forum to the three named local authorities by 31 March.

    Stated by East London NHS Foundation TrustStated plannedThe respondent said that this action was planned when they made their response on 24 January 2022.
  3. Action

    Review the serious incident report and transition policy and protocols with relevant CAMHS staff.

    Stated by East London NHS Foundation TrustStated completedThe respondent said that this action was complete when they made their response on 24 January 2022.

Respondent positions A position is what a recipient says about a concern when it does not describe a specific action.1

  1. Position

    ELFT is responsible for responding directly regarding Luke’s transition arrangements to adult mental health services.

    Stated by NHS EnglandRedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Inadequate transition arrangements for individuals with high functioning autism reaching adulthood

Wider context from the report

“Transition arrangements within ELFT for individuals with high functioning autism were inadequate when Luke turned 18 and, as a result, he was not transferred to the appropriate adult mental health team for continued treatment and to enable provision of an appropriate adult social care package, including suitable accommodation for him. Whilst I understand that changes have been made within ELFT in order to address this gap in services, I am concerned that these may still not be sufficient. Furthermore, I am concerned that this gap in services may also exist on a national level. ”

Is this part of a recurring concern?

Yes — Unsafe transition and continuity of care from child to adult healthcare.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

National gap in transition services for individuals with high functioning autism

Wider context from the report

“Transition arrangements within ELFT for individuals with high functioning autism were inadequate when Luke turned 18 and, as a result, he was not transferred to the appropriate adult mental health team for continued treatment and to enable provision of an appropriate adult social care package, including suitable accommodation for him. Whilst I understand that changes have been made within ELFT in order to address this gap in services, I am concerned that these may still not be sufficient. Furthermore, I am concerned that this gap in services may also exist on a national level. ”

Is this part of a recurring concern?

Yes — Unreliable implementation of autism care and support services; Unsafe transition and continuity of care from child to adult healthcare.

Open source report

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Participate in the multi-agency task group identifying transition gaps across local authority and health services.

Verbatim wording from the response

“There is currently a safeguarding adults review (SAR) taking place in relation to Mr Wilden’s case. Bedford Borough Council safeguarding has requested a specific joint multi-agency, task and finish group (Task Group) to identify gaps in transitions across local authority and health. The findings will be fed back to the safeguarding board. The Trust is taking an active role in the SAR and the Task Group. Any significant findings will be fed into Trust Policy.”

Source location

2022-0015-Response-from-NHS-East-London-NHS-Foundation-Trust_Published
Page 3 · response
Published 24 January 2022

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Outline a proposal to establish a strategic multi-agency transitions forum to the three named local authorities by 31 March.

Verbatim wording from the response

“As part of the newly appointed Strategic Transitions Lead’s role, ELFT will propose a strategic multi-agency forum be established with all key partners, particularly its local authority partners, to ensure that transitions retains a system wide focus and that leadership can be provided on a collaborative basis, to the many teams and services that have the potential to interface with a young person and their family carers during their journey to adulthood.”

Source location

2022-0015-Response-from-NHS-East-London-NHS-Foundation-Trust_Published
Page 3 · response
Published 24 January 2022

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Review the serious incident report and transition policy and protocols with relevant CAMHS staff.

Verbatim wording from the response

“I understand that you heard oral evidence at the inquest into Mr Wilden’s death that the Trust’s Bedford and Luton Directorate have already taken measures to reinforce its transition policy and protocols.”

Source location

2022-0015-Response-from-NHS-East-London-NHS-Foundation-Trust_Published
Page 1 · response
Published 24 January 2022

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Increase transition-support staffing for autistic young people through a dedicated worker, an additional worker and two further support workers.

Verbatim wording from the response

“To assist staff in reinforcing the transition policies and protocols outlined above, the Trust has also increased its capacity for supporting transitions from CAMHS to adult mental health and social care services. I understand that at the inquest you received submissions outlining various changes that the Trust had already undertaken specifically in relation to transition arrangements for individuals with high-functioning autism.”

Source location

2022-0015-Response-from-NHS-East-London-NHS-Foundation-Trust_Published
Page 2 · response
Published 24 January 2022

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Revamp the Bedford and Luton Transition Policy with current protocols and joint CAMHS and adult mental health input, then review and reinforce it after completion.

Verbatim wording from the response

“Additionally, Bedford and Luton’s Transition Policy has come up for review. A decision has been made that the policy be revamped to include the latest transition protocols with both CAMHS and Adult Mental Health services feeding into the final document. It is anticipated that this will be complete on 14 April 2022. The new policy will be reviewed at the first CAMHS away day following completion and reinforced through supervisors via monthly supervision.”

Source location

2022-0015-Response-from-NHS-East-London-NHS-Foundation-Trust_Published
Page 2 · response
Published 24 January 2022

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Identify CAMHS service users approaching adulthood monthly and discuss their transition planning at multidisciplinary team meetings.

Verbatim wording from the response

“Additionally, since 31 December 2020, the administrator within each CAMHS team, pulls a list of all existing service users on a monthly basis. Those age 17.5 (6 months from their”

Source location

2022-0015-Response-from-NHS-East-London-NHS-Foundation-Trust_Published
Page 1 · response
Published 24 January 2022

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Conduct quarterly transition audits, including cross-team audits, to identify improvements, share learning and promote better transitions.

Verbatim wording from the response

“An audit was also undertaken. A sample of 5 patients were reviewed over a period of 3 months to assess services’ compliance with the protocols. All cases reviewed met the required targets.”

Source location

2022-0015-Response-from-NHS-East-London-NHS-Foundation-Trust_Published
Page 2 · response
Published 24 January 2022

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Appoint a Strategic Transitions Lead to provide cross-agency leadership and maintain robust transition pathways.

Verbatim wording from the response

“The Trust has just appointed a Strategic Transitions Lead. This role will provide system leadership across all agencies, including ensuring that robust transitions systems between children’s (CAMHS) and Adult Mental Health Care are maintained. They will also work with the relevant local authorities to ensure that robust transition pathways are in place across mental health services. They will ensure that the experience of the young person is at the heart of how the systems and processes develop and operate.”

Source location

2022-0015-Response-from-NHS-East-London-NHS-Foundation-Trust_Published
Page 3 · response
Published 24 January 2022

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Include transition-policy performance monitoring in CAMHS supervisors’ monthly clinical supervision.

Verbatim wording from the response

“CAMHS supervisors were also reminded of the importance of the transition policy and protocols and their monthly clinical supervision with staff members now includes performance monitoring of the transition policy and protocols.”

Source location

2022-0015-Response-from-NHS-East-London-NHS-Foundation-Trust_Published
Page 2 · response
Published 24 January 2022

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Prioritise transition within the Learning Disability and Autism Programme and work with partner agencies on an effective cross-system response to young people experiencing difficulty or crisis.

Verbatim wording from the response

“It is for this reason that we have made transition one of the key priorities for the Learning Disability and Autism Programme and are working with partners in other agencies to ensure there is an effective cross system response to young people experiencing difficulty and crisis.”

Source location

2022-0015-Response-from-NHS-Improvement_Published
Page 2 · response
Published 24 January 2022

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Establish a comprehensive mental health support offer for people aged 0–25 in every area, without age-based thresholds and adapted to young adults’ needs.

Verbatim wording from the response

“Improving transitions between Children and Young People’s Mental Health Services and Adult Mental Health Services is a key priority within NHSE/I’s LTP commitments regarding mental health. The LTP sets out a commitment that a comprehensive support offer for children and young people, between the ages of 0 to 25 years, would be in place in all areas of the country by March 2024. Critical to this ambition is improving support and care for young adults (18 to 25 years) with the expectation that by March 2024 no age-based threshold will be in place and that all services are adapted to meet the needs of young adults.”

Source location

2022-0015-Response-from-NHS-Improvement_Published
Page 2 · response
Published 24 January 2022

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Ensure NHS services make reasonable adjustments to better meet autistic people’s needs.

Verbatim wording from the response

“NHSE/I are committed to improving care and support for autistic people. The LTP recognised the need to ensure all NHS services are reasonably adjusted to ensure they are better able to meet the needs of autistic people. We know that the transition to adult services does not always work well for children and young people and their families, acknowledging that this was the case here. It is so important that there are good multi-agency planning/actions, before young people turn 18, to ensure that they get the support they need as they move to adulthood services. It is even more important that there is effective support for young people, such as Luke, who experience multiple additional challenges.”

Source location

2022-0015-Response-from-NHS-Improvement_Published
Page 2 · response
Published 24 January 2022

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

ELFT is responsible for responding directly regarding Luke’s transition arrangements to adult mental health services.

Verbatim wording from the response

“Following the inquest, you raised concerns in your Report regarding the adequacy of transition arrangements within East London Foundation Trust (ELFT) for individuals with high functioning autism, stating that when Luke turned 18, he was not transferred to the appropriate adult mental health team for continued treatment and to enable provision of an appropriate adult social care package, including suitable accommodation for him. You raised a second concern that this gap in services may also exist on a national level.”

Source location

2022-0015-Response-from-NHS-Improvement_Published
Page 1 · response
Published 24 January 2022

Open published response

Other statements in published responses

These actions and other statements could not be clearly connected to one concern in this report.

Recipient-stated actions An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.5

  1. 1

    Provide additional funding to improve inpatient mental health support and alternatives to admission for children and young people.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 24 January 2022.
  2. 2

    Provide age-appropriate 24/7 crisis care for children, young people and adults through NHS 111, including crisis assessment, brief response and intensive home treatment.

    Stated by NHS EnglandStated plannedThe respondent said that this action was planned when they made their response on 24 January 2022.
  3. 3

    Implement integrated local planning across health, social care, education and voluntary-sector services through Integrated Care Systems and Provider Collaboratives.

    Stated by NHS EnglandStated in progressThe respondent said that this action was in progress when they made their response on 24 January 2022.
  4. 4

    Highlight the needs of high-risk young adults, including those with substance use, physical health conditions or neurodevelopmental disorders, in local-system planning guidance.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 24 January 2022.
  5. 5

    Provide dedicated 24/7 urgent mental health helplines and publish local service details through an NHS website service finder.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 24 January 2022.

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Provide additional funding to improve inpatient mental health support and alternatives to admission for children and young people.

Verbatim wording from the response

“NHSE/I has announced additional funding in 2021-22 to improve the quality and availability of inpatient mental health support and alternatives to admission for Children and Young People.”

Source location

2022-0015-Response-from-NHS-Improvement_Published
Page 2 · response
Published 24 January 2022

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Provide age-appropriate 24/7 crisis care for children, young people and adults through NHS 111, including crisis assessment, brief response and intensive home treatment.

Verbatim wording from the response

“The LTP sets out that by 2023/24 all children and young people experiencing a mental health crisis will be able to access age appropriate crisis care 24 hours a day, 7 days a week, via NHS 111, combining crisis assessment, brief response and intensive home treatment functions. This will not end when young people turn 18, with a commitment to connect urgent mental health services to Integrated Urgent Care services to allow access to crisis care 24/7 via NHS111 by 2023/24 for all adults.”

Source location

2022-0015-Response-from-NHS-Improvement_Published
Page 3 · response
Published 24 January 2022

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Implement integrated local planning across health, social care, education and voluntary-sector services through Integrated Care Systems and Provider Collaboratives.

Verbatim wording from the response

“Further the planned Integrated Care Systems (ICS) are a vehicle for integrated planning to ensure those who need it have access to comprehensive mental health support which is integrated across health, social care, education, and the voluntary sector. The vision for greater local system integration and autonomy is being implemented for specialised mental health, learning disability and autism services, by giving responsibility for a given population to Provider Collaboratives. Provider Collaboratives will improve links to other care settings, to improve the entire pathway and reduce reliance on the most specialised services by reinvesting in community provision.”

Source location

2022-0015-Response-from-NHS-Improvement_Published
Page 2 · response
Published 24 January 2022

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Highlight the needs of high-risk young adults, including those with substance use, physical health conditions or neurodevelopmental disorders, in local-system planning guidance.

Verbatim wording from the response

“In planning guidance to local systems for 2022/23, NHSE/I has highlighted the importance of services having particular regard for the needs of high risk groups, including those young adults with co-existing substance use, co-existing physical health conditions or disabilities (including neurodevelopmental disorders).”

Source location

2022-0015-Response-from-NHS-Improvement_Published
Page 2 · response
Published 24 January 2022

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Provide dedicated 24/7 urgent mental health helplines and publish local service details through an NHS website service finder.

Verbatim wording from the response

“Across the country, people now have access to dedicated 24/7 NHS urgent mental health helplines to ensure everyone, including children, young people and young adults, can get the urgent care they need without going to A&E. Details of which local helpline to call, can be found on an easy to use service finder on the NHS website: https://www.nhs.uk/service-search/mental-health/find-an-urgent-mental-health-helpline”

Source location

2022-0015-Response-from-NHS-Improvement_Published
Page 3 · response
Published 24 January 2022

Open published response
Back to top

Information checked against the published report and official responses · Data reviewed 7 Sep 2026 · About data quality and limitations

Official responses located
2/2

Data last updated 7 September 2026