PFD report

Jason PULMAN · Prevention of Future Deaths report

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Issued 30 Apr 2024•East Sussex

Report record

Published report and response evidence

This page connects the concerns raised in this report with statements found in recipients’ published responses. A link shows a clear evidence connection; it does not assign responsibility.

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Concerns
8

Raised in this report

Recipients
2

Named on the report

Responses found
2

Of 2 recipients

Stated actions
19

Described in responses

Source document

Full report text

This is the full text from the original published report.

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Concerns and recipient responses

Select any concern, action or position to view the source wording.

Report evidence summary

Concerns raised8

  1. Lack of clarity about national gender-service referral mechanisms and available resources
    Part of recurring concern: Unreliable access to gender-affirming healthcare
  2. Insufficient CAMHS resources causing long waits for treatment
    Part of recurring concern: Excessive waiting times for NHS mental health services
  3. Insufficient specialist workforce capacity within CAMHS and paediatrics for gender identity services
    Part of recurring concern: Insufficient CAMHS staffing capacity and competence for safe care
Responses linked to these concerns

Each statement is shown once, even when linked to more than one concern.

Actions described in response An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.9

  1. Action

    Send referral information for consenting patients to their local children and young people’s mental-health providers.

    Stated by NHS Arden and Greater East Midlands Commissioning Support Unit (AGEM CSUStated plannedThe respondent said that this action was planned when they made their response on 9 May 2024.
  2. Action

    Contact children and young people on the waiting list and offer assessment by their local NHS mental-health services.

    Stated by NHS Arden and Greater East Midlands Commissioning Support Unit (AGEM CSUStated in progressThe respondent said that this action was in progress when they made their response on 9 May 2024.
  3. Action

    Establish new regional Children and Young People’s Gender Incongruence Services under an interim service specification.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 9 May 2024.

Respondent positions A position is what a recipient says about a concern when it does not describe a specific action.4

  1. Position

    Clinical support for waiting-list patients is to be provided by their GPs or other local clinicians, not the administrative referral service.

    Stated by NHS Arden and Greater East Midlands Commissioning Support Unit (AGEM CSURedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of clarity about national gender-service referral mechanisms and available resources

Wider context from the report

“5. I am concerned that if urgent clarity is not provided to CAMHS teams, patients and parents on the appropriate national referral mechanisms for gender services, and the resources available for those services, there is a risk that the circumstances arising prior to Jason’s death could be repeated. ”

Is this part of a recurring concern?

Yes — Unreliable access to gender-affirming healthcare.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Insufficient CAMHS resources causing long waits for treatment

Wider context from the report

“4. During the inquest, I heard evidence from senior management at the CAMHS run by Sussex Partnership Foundation Trust to the effect that (i) they were unaware that enhanced support was being offered via CAMHS and (ii) due to existing pressures on resources the enhanced support would likely have an impact on the already very long wait times for CAMHS treatment, which in turn would give rise to a risk of patients taking their own lives while waiting for treatment. ”

Is this part of a recurring concern?

Yes — Excessive waiting times for NHS mental health services.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Insufficient specialist workforce capacity within CAMHS and paediatrics for gender identity services

Wider context from the report

“2. On 10 April 2024, i.e. during the course of the inquest, ████████ published her report on the independent review of gender identity services for children and young people (the Cass review). Her recommendations included that: “a smaller number of secondary services within CAMHS and paediatrics should be identified initially to act as Designated Local Specialist Services (DLSS) within each area. This would increase the available workforce through a flexible, multi-site staff group working between the DLSS and the regional centre, with the opportunity to provide targeted training and upskilling.” ”

Is this part of a recurring concern?

Yes — Insufficient CAMHS staffing capacity and competence for safe care.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure of CAMHS teams to be aware of enhanced support offered to gender-service patients

Wider context from the report

“4. During the inquest, I heard evidence from senior management at the CAMHS run by Sussex Partnership Foundation Trust to the effect that (i) they were unaware that enhanced support was being offered via CAMHS and (ii) due to existing pressures on resources the enhanced support would likely have an impact on the already very long wait times for CAMHS treatment, which in turn would give rise to a risk of patients taking their own lives while waiting for treatment. ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Unavailability of assured mental wellbeing support for young people waiting for gender services

Wider context from the report

“3. The Arden and GEM has provided an update on its website entitled the “National Referral support Service for the NHS Gender Incongruence Service for Children and Young People”. This states: “The NHS understands it isn’t easy having to wait a long time to be seen by gender services, and young people may need some extra support with their mental wellbeing while they wait. The NHS is offering this support, if needed, through local Children and Young People Mental Health services (CYPMH), also known as Children and Adolescent Mental Health Services (CAMHS). People will be contacted to ask if they are happy for their details to be shared with their local CYPMH / CAMH service so they can speak to a professional about how they are feeling. This support offer is voluntary and the people’s place on the Children and Young People’s Gender Services waiting list will not change. This service will be contacting parents, children and young people on the waiting list by email or post to ask if they wish to access this support between April and May 2024.” ”

Is this part of a recurring concern?

Yes — Inadequate interim care for patients awaiting gender-identity treatment.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Long waits for access to gender services

Wider context from the report

“3. The Arden and GEM has provided an update on its website entitled the “National Referral support Service for the NHS Gender Incongruence Service for Children and Young People”. This states: “The NHS understands it isn’t easy having to wait a long time to be seen by gender services, and young people may need some extra support with their mental wellbeing while they wait. The NHS is offering this support, if needed, through local Children and Young People Mental Health services (CYPMH), also known as Children and Adolescent Mental Health Services (CAMHS). People will be contacted to ask if they are happy for their details to be shared with their local CYPMH / CAMH service so they can speak to a professional about how they are feeling. This support offer is voluntary and the people’s place on the Children and Young People’s Gender Services waiting list will not change. This service will be contacting parents, children and young people on the waiting list by email or post to ask if they wish to access this support between April and May 2024.” ”

Is this part of a recurring concern?

Yes — Unreliable access to gender-affirming healthcare.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to refer young people awaiting gender services for specialist psychiatric support from CAMHS

Wider context from the report

“1. I heard evidence at the inquest that Jason did not receive specialist gender dysphoria treatment because he was on the waiting list for the Gender Identity Development Service (GIDS) at the Tavistock and Portman NHS Trust. There was also evidence that clinicians did not refer Jason for specialist psychiatric support from Child and Adolescent Mental Health Services (CAMHS) in part because the guidance at the time suggested any specialist gender dysphoria treatment should be provided by GIDS. Jason was awaiting a further assessment from CAMHS at the time of his death. ”

Is this part of a recurring concern?

Yes — Inadequate interim care for patients awaiting gender-identity treatment; Unreliable access to gender-affirming healthcare; Unreliable mental health referral pathways.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Delays in access to specialist gender dysphoria treatment while on the GIDS waiting list

Wider context from the report

“1. I heard evidence at the inquest that Jason did not receive specialist gender dysphoria treatment because he was on the waiting list for the Gender Identity Development Service (GIDS) at the Tavistock and Portman NHS Trust. There was also evidence that clinicians did not refer Jason for specialist psychiatric support from Child and Adolescent Mental Health Services (CAMHS) in part because the guidance at the time suggested any specialist gender dysphoria treatment should be provided by GIDS. Jason was awaiting a further assessment from CAMHS at the time of his death. ”

Is this part of a recurring concern?

Yes — Unreliable access to gender-affirming healthcare.

Open source report

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Send referral information for consenting patients to their local children and young people’s mental-health providers.

Verbatim wording from the response

“From April 2024 NHSE have established a process whereby all children and young people who are on the waiting list for CYP gender services are contacted by the CSU on behalf of NHSE and offered an assessment by their local NHS Mental Health Services; NHS England has put additional funding into local mental health systems for this purpose. All children and young people who are identified with mental health needs will receive ongoing support from their local services while they remain on the waiting list for CYP gender services. More than a third of patients on the waiting list have consented to be seen by their local mental health service. For consented patients, the CSU will be sending referral information to each CYP MH provider starting towards the end of June 2024. The website was updated in April 2024 to reflect this new supportive offer.”

Source location

Response from Arden and Greater East Midlands NHS Commissioning Support Unit
Page 2 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Contact children and young people on the waiting list and offer assessment by their local NHS mental-health services.

Verbatim wording from the response

“The Arden and GEM has provided an update on its website entitled the “National Referral Support Service for the NHS Gender Incongruence Service for Children and Young People”. This states “The NHS understands it isn’t easy having to wait a long time to be seen by gender services, and young people may need some extra support with their mental wellbeing while they wait. The NHS is offering this support, if needed, through local Children and Young People Mental Health Services (CAMHS). People will be contacted to ask if they are happy for their details to be shared with their local CYP MH/CAMHS service so they can speak to a professional about how they are feeling. This support offer is voluntary and the peoples place on the Children’s and Young People Gender Service will not change.”

Source location

Response from Arden and Greater East Midlands NHS Commissioning Support Unit
Page 2 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Establish new regional Children and Young People’s Gender Incongruence Services under an interim service specification.

Verbatim wording from the response

“Children and Young People’s Gender Incongruence Services”

Source location

Response from NHS England
Page 1 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Provide additional funding to local mental-health systems to support waiting-list assessments and care.

Verbatim wording from the response

“• From April 2024 we have established a process whereby all children and young people who are on the waiting list for CYP gender services are contacted by the NHS and offered an assessment by local NHS mental health services; NHS England has put additional funding into local mental health systems for this purpose. All children and young people who are identified with mental health needs will receive ongoing support by local services while they remain on the waiting list for CYP gender services.”

Source location

Response from NHS England
Page 3 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Decide whether to strengthen pre-referral relationships between gender services and local secondary-care services after public consultation.

Verbatim wording from the response

“• During the same public consultation, we proposed an enhanced relationship between the Children and Young People’s Gender Service and local secondary care services at the pre-referral stage, so that there is a coordinated approach across the health system in the care of vulnerable children and young people,”

Source location

Response from NHS England
Page 3 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Decide whether to require all Children and Young People’s Gender Service referrals to come through NHS secondary care after public consultation.

Verbatim wording from the response

“• Additionally, in order to ensure that a child / young person’s mental and physical health needs are addressed at the point of referral to the CYP gender service NHS England has proposed that in the future all referrals to the Children and Young People’s Gender Service must be made through NHS secondary care services – mental health services or general paediatric services. This new arrangement will ensure that concomitant health needs are addressed by secondary care clinicians while the child or young person is waiting to be assessed by the specialist CYP gender service. NHS England will make a final decision on this proposal in June 2024 following a public consultation on the proposal.”

Source location

Response from NHS England
Page 3 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Contact all children and young people on the waiting list and offer local NHS mental-health assessment, with ongoing support for identified needs.

Verbatim wording from the response

“• From April 2024 we have established a process whereby all children and young people who are on the waiting list for CYP gender services are contacted by the NHS and offered an assessment by local NHS mental health services; NHS England has put additional funding into local mental health systems for this purpose. All children and young people who are identified with mental health needs will receive ongoing support by local services while they remain on the waiting list for CYP gender services.”

Source location

Response from NHS England
Page 3 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Develop a substantive service specification strengthening infrastructure and regional links between specialist centres and local services.

Verbatim wording from the response

“The two new services that are operational work to an interim service specification pending the outcome of work to build a new substantive service specification in 2024/25, for adoption in April 2025, through a process of stakeholder engagement and public consultation, to reflect the final recommendations of the Cass Report.”

Source location

Response from NHS England
Page 2 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Disseminate the waiting-list support initiative to mental-health providers, Integrated Care Boards and relevant services through notifications, webinars and regional meetings.

Verbatim wording from the response

“We confirm that formal notification of the initiative has been provided to all NHS mental health providers in England and a number of webinars were held between senior clinicians at NHS England and executive and operational leads of the various mental health providers in March 2024. Colleagues in the NHS England South East Regional Team have confirmed subsequent communications have been shared with all Integrated Care Boards and relevant providers and will continue to be shared for the purpose of supporting mental health providers in their readiness to receive these patients. A series of regional meetings have also been convened to further cascade this information and support implementation.”

Source location

Response from NHS England
Page 5 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Clinical support for waiting-list patients is to be provided by their GPs or other local clinicians, not the administrative referral service.

Verbatim wording from the response

“The Children and Young Person’s Gender National Referral Support Service (CYP-GNRSS) provides an administrative referral management and does not see patients. Patients and referrers are advised that should a patient require clinical support, this should be provided via their GP or other local clinician. The AGEM CSU website does contain information related to where help can be sought.”

Source location

Response from Arden and Greater East Midlands NHS Commissioning Support Unit
Page 1 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

NHS England strongly refutes the suggestion that assessing gender-service waiting-list patients will pose a risk to other patients.

Verbatim wording from the response

“NHS England will be contacting senior Trust representatives directly to understand the concerns further, including the suggestion that this initiative will pose a risk to other patients, which we strongly refute. NHS England has put additional funding into local mental health systems for the purpose of seeing children and young people on the waiting list for CYP gender services, and this initiative was established and overseen under the leadership of two senior clinicians: the NHS National Mental Health Director (Claire Murdoch), and the NHS Medical Director for Specialised Services (Professor James Palmer). The initiative was welcomed by the CEOs of the NHS mental health trusts when the proposal was put to them by the NHS National Mental Health Director in January 2024.”

Source location

Response from NHS England
Page 5 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

NHS Arden and Greater East Midlands Commissioning Support Unit will respond separately to concerns within its commissioned waiting-list management role.

Verbatim wording from the response

“Your Report raises five matters of concern. Some of these are better addressed by Sussex Partnership NHS Foundation Trust who we note that you have sent your Report to as an interested party. We are also in the process of seeking further information from the Trust. You have also sent your report to NHS Arden and Greater East Midlands Commissioning Support Unit (the CSU) who will respond separately to you, but there is a common position described in the responses made by NHS England and the CSU given that the CSU is commissioned to manage the national waiting list for Children and Young People’s Gender Services on behalf of NHS England.”

Source location

Response from NHS England
Page 1 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Expanding clinical capacity is constrained by shortages of suitable workforce potential in children’s and adult gender services, rather than funding.

Verbatim wording from the response

“The main constraint in building a new clinical workforce is not funding, it is the shortage of workforce potential for both children’s and adult gender services. NHS England’s overall planned spend on all gender dysphoria services (adults and children) in 2023/24 was £78.17m – up from £33.4m in 2018/19, representing an overall increase in funding of 134% in five years. NHS England’s planning assumption is that the new providers of CYP gender services will begin to draw patients from the waiting list from November 2024, with the priority focus between April and October 2024 being the ongoing care of patients transferred from the Tavistock GIDS.”

Source location

Response from NHS England
Page 2 · response
Published 9 May 2024

Open published response

Other statements in published responses

These actions and other statements could not be clearly connected to one concern in this report.

Recipient-stated actions An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.10

  1. 1

    Update the CSU website to explain the supportive mental-health offer for children and young people awaiting gender services.

    Stated by NHS Arden and Greater East Midlands Commissioning Support Unit (AGEM CSUStated completedThe respondent said that this action was complete when they made their response on 9 May 2024.
  2. 2

    Publish a detailed implementation plan responding to the Cass Review.

    Stated by NHS EnglandStated plannedThe respondent said that this action was planned when they made their response on 9 May 2024.
  3. 3

    Discuss Prevention of Future Deaths reports through the Regulation 28 Working Group and share learning across national and regional NHS services.

    Stated by NHS EnglandStated in progressThe respondent said that this action was in progress when they made their response on 9 May 2024.
  4. 4

    Work with professional stakeholders to consider further education and training for primary and secondary-care services.

    Stated by NHS EnglandStated plannedThe respondent said that this action was planned when they made their response on 9 May 2024.
  5. 5

    Improve the NCMD alert system to notify NHS England when a child or young person with gender distress dies by probable suicide.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 9 May 2024.
  6. 6

    Change NCMD reporting and supplementary suicide forms to identify gender distress and waiting-list or treatment status.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 9 May 2024.
  7. 7

    Complete analysis of reported deaths involving children and young people with gender distress to identify learning themes.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 9 May 2024.
  8. 8

    Adopt a process for Child Death Overview Panels to alert NHS England after every death of a child or young person identified with gender distress.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 9 May 2024.
  9. 9

    Share learning from the mortality analysis with local children and young people’s mental-health teams.

    Stated by NHS EnglandStated plannedThe respondent said that this action was planned when they made their response on 9 May 2024.
  10. 10

    Publish an online education and training resource for local health professionals and parents supporting children and young people with gender distress.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 9 May 2024.

Recipient positions A position is what a recipient says about a concern when they do not describe a specific action.1

  1. 1

    Some concerns are better addressed by Sussex Partnership NHS Foundation Trust, which received the report as an interested party.

    Stated by NHS EnglandRedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Update the CSU website to explain the supportive mental-health offer for children and young people awaiting gender services.

Verbatim wording from the response

“From April 2024 NHSE have established a process whereby all children and young people who are on the waiting list for CYP gender services are contacted by the CSU on behalf of NHSE and offered an assessment by their local NHS Mental Health Services; NHS England has put additional funding into local mental health systems for this purpose. All children and young people who are identified with mental health needs will receive ongoing support from their local services while they remain on the waiting list for CYP gender services. More than a third of patients on the waiting list have consented to be seen by their local mental health service. For consented patients, the CSU will be sending referral information to each CYP MH provider starting towards the end of June 2024. The website was updated in April 2024 to reflect this new supportive offer.”

Source location

Response from Arden and Greater East Midlands NHS Commissioning Support Unit
Page 2 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Publish a detailed implementation plan responding to the Cass Review.

Verbatim wording from the response

“On 10 April NHS England published its initial response to the Cass Report, in which we committed to publishing a detailed implementation plan in due course. In the meantime, we have made the following commitment regarding the recommendation for the development of local services:”

Source location

Response from NHS England
Page 4 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Discuss Prevention of Future Deaths reports through the Regulation 28 Working Group and share learning across national and regional NHS services.

Verbatim wording from the response

“I would also like to provide further assurances on national NHS England work taking place around the Reports to Prevent Future Deaths. All reports received are discussed by the Regulation 28 Working Group, comprising Regional Medical Directors, and other clinical and quality colleagues from across the regions. This ensures that key learnings and insights around preventable deaths are shared across the NHS at both a national and regional level and helps us pay close attention to any emerging trends that may require further review and action.”

Source location

Response from NHS England
Page 6 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Work with professional stakeholders to consider further education and training for primary and secondary-care services.

Verbatim wording from the response

“• In 2023 NHS England published an online education and training resource for local health professionals and parents in supporting children and young people with gender distress. NHS England will work with key stakeholders such as royal colleges of medicine and professional bodies to consider education and training to primary and secondary care services in supporting children and young people on this pathway, with the ambition of this training being in place in 2024.”

Source location

Response from NHS England
Page 4 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Improve the NCMD alert system to notify NHS England when a child or young person with gender distress dies by probable suicide.

Verbatim wording from the response

“• Improvements have been made to the NCMD alert system to NHS England when a child or young person with gender distress dies by probable suicide (whether or not they on the waiting list for Children and Young People’s Gender Services).”

Source location

Response from NHS England
Page 6 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Change NCMD reporting and supplementary suicide forms to identify gender distress and waiting-list or treatment status.

Verbatim wording from the response

“• Changes have been made to the NCMD reporting form and supplementary suicide form to better identify children and young people with gender distress and those waiting/open to NHS/private provider for treatment.”

Source location

Response from NHS England
Page 6 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Complete analysis of reported deaths involving children and young people with gender distress to identify learning themes.

Verbatim wording from the response

“• In March 2024 the NCMD completed an initial analysis of completed reporting forms for children and young people who have died between April 2019 to March 2023 with gender distress; this has helped to identify other factors and themes for learning that will be shared with local CYP mental health teams so that they are aware of increased risk and can consider enhanced suicide prevention strategies.”

Source location

Response from NHS England
Page 6 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Adopt a process for Child Death Overview Panels to alert NHS England after every death of a child or young person identified with gender distress.

Verbatim wording from the response

“It may assist HM Coroner to know that as an outcome of discussions led by NHS England’s National Clinical Director for Children and Young People’s Mental Health and senior representatives of the National Child Mortality Database (NCMD) in 2023:”

Source location

Response from NHS England
Page 6 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Share learning from the mortality analysis with local children and young people’s mental-health teams.

Verbatim wording from the response

“• In March 2024 the NCMD completed an initial analysis of completed reporting forms for children and young people who have died between April 2019 to March 2023 with gender distress; this has helped to identify other factors and themes for learning that will be shared with local CYP mental health teams so that they are aware of increased risk and can consider enhanced suicide prevention strategies.”

Source location

Response from NHS England
Page 6 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Publish an online education and training resource for local health professionals and parents supporting children and young people with gender distress.

Verbatim wording from the response

“• In 2023 NHS England published an online education and training resource for local health professionals and parents in supporting children and young people with gender distress. NHS England will work with key stakeholders such as royal colleges of medicine and professional bodies to consider education and training to primary and secondary care services in supporting children and young people on this pathway, with the ambition of this training being in place in 2024.”

Source location

Response from NHS England
Page 4 · response
Published 9 May 2024

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Some concerns are better addressed by Sussex Partnership NHS Foundation Trust, which received the report as an interested party.

Verbatim wording from the response

“Your Report raises five matters of concern. Some of these are better addressed by Sussex Partnership NHS Foundation Trust who we note that you have sent your Report to as an interested party. We are also in the process of seeking further information from the Trust. You have also sent your report to NHS Arden and Greater East Midlands Commissioning Support Unit (the CSU) who will respond separately to you, but there is a common position described in the responses made by NHS England and the CSU given that the CSU is commissioned to manage the national waiting list for Children and Young People’s Gender Services on behalf of NHS England.”

Source location

Response from NHS England
Page 1 · response
Published 9 May 2024

Open published response
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Information checked against the published report and official responses · Data reviewed 7 Sep 2026 · About data quality and limitations

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Data last updated 7 September 2026