PFD report

Benjamin Robert Compton · Prevention of Future Deaths report

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Issued 19 Mar 2025•Devon, Plymouth and Torbay

Report record

Published report and response evidence

This page connects the concerns raised in this report with statements found in recipients’ published responses. A link shows a clear evidence connection; it does not assign responsibility.

View original report
Concerns
2

Raised in this report

Recipients
3

Named on the report

Responses found
3

Of 3 recipients

Stated actions
15

Described in responses

Source document

Full report text

This is the full text from the original published report.

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Concerns and recipient responses

Select any concern, action or position to view the source wording.

Report evidence summary

Concerns raised2

  1. Failure of the Special Allocation Scheme to meet the needs of autistic patients
  2. Lack of appropriate care and support for autistic people in crisis without a treatable mental health condition
Responses linked to these concerns

Each statement is shown once, even when linked to more than one concern.

Actions described in response An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.11

  1. Action

    Operate the Devon Adult Autism Intervention Team as a countywide service for autistic adults.

    Stated by Devon Partnership NHS TrustStated completedThe respondent said that this action was complete when they made their response on 18 June 2025.
  2. Action

    Publish national guidance for Integrated Care Boards and providers on accessible, autism-informed mental health care.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 18 June 2025.
  3. Action

    Implement an online SAS referral prompt reminding GP practices to undertake careful consideration before referral.

    Stated by NHS EnglandStated in progressThe respondent said that this action was in progress when they made their response on 18 June 2025.

Respondent positions A position is what a recipient says about a concern when it does not describe a specific action.6

  1. Position

    Primary care and GP-related questions fall outside the Trust’s remit, so it cannot comment on them.

    Stated by Devon Partnership NHS TrustOutside remitThe respondent said that this matter was outside its role or authority.

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure of the Special Allocation Scheme to meet the needs of autistic patients

Wider context from the report

“(2) Benjamin was removed from his GP practice due to violent behaviour and allocated to the Special Allocation Scheme. This scheme was not able to meet the needs of a patient such as Benjamin with a diagnosis of Autism Spectrum disorder. ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of appropriate care and support for autistic people in crisis without a treatable mental health condition

Wider context from the report

“(1) The evidence reveals that there was a gap in the provision of care for individuals suffering with autism and in crisis, that remains the case today both in Devon and nationally. Evidence was heard that a gap exists with autistic people in distress and or dysregulation with no treatable mental health condition and there is a grey area around treatment. This is beyond the skills of social care providers. And unless the individual meets the criteria for treatment under the Mental Health Act there is very little support. ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Operate the Devon Adult Autism Intervention Team as a countywide service for autistic adults.

Verbatim wording from the response

“At the time, as described by ████████ in her testimony in court, the Devon Adult Autism Intervention Team (DAAIT), had recently been commissioned to provide a countywide service for autistic adults with the aim to:”

Source location

Response from Devon Partnership Trust
Page 1 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Publish national guidance for Integrated Care Boards and providers on accessible, autism-informed mental health care.

Verbatim wording from the response

“In December 2023, NHS England published Meeting the Needs of Autistic Adults in Mental Health Services, which provides guidance to Integrated Care Boards and health providers on delivering accessible, autism-informed care. Key areas of relevance to your Report include:”

Source location

Response from NHS England
Page 1 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Implement an online SAS referral prompt reminding GP practices to undertake careful consideration before referral.

Verbatim wording from the response

“b) Implement a prompt to GP practices when completing the online referral on the need for careful consideration (Status: in the process of implementation).”

Source location

Response from NHS England
Page 3 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Update the Primary medical services policy and guidance manual to remind practices to consider protected characteristics, medical history, learning disability and neurodiversity before SAS referrals.

Verbatim wording from the response

“The PGM was updated on 15 July 2024 to include the following key updates in the SAS section:”

Source location

Response from NHS England
Page 3 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Include an action request for commissioners to consider initial appropriateness assessments in commissioned SAS services, subject to commissioning reviews and funding availability.

Verbatim wording from the response

“c) An action request for commissioners to consider establishing and embedding initial appropriateness assessments into all commissioned SAS services. This would be subject to consideration when new services are commissioned or when existing services are reviewed, as well as funding availability.”

Source location

Response from NHS England
Page 3 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Integrate outreach and inreach provision into the care pathway to prevent unnecessary admissions and support timely care.

Verbatim wording from the response

“Alongside this, an outreach and inreach service will be integrated into the pathway to prevent unnecessary admissions and ensure timely, appropriate care.”

Source location

Response from NHS Devon
Page 2 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Implement Oliver McGowan mandatory training to strengthen community skills and reasonable adjustments across services.

Verbatim wording from the response

“Furthermore, the implementation of the Oliver McGowan mandatory training will enhance community skills and promote reasonable adjustments across services, ensuring that autistic individuals in crisis receive appropriate support.”

Source location

Response from NHS Devon
Page 2 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Conduct a comprehensive community delivery review covering primary, secondary, social-care and acute services to improve crisis-support pathways.

Verbatim wording from the response

“To review and improve current processes for crisis support, the Learning Disability and Neurodiversity commissioning team will conduct a comprehensive community delivery review in 2025/2026. This review will cover primary care, secondary care, social care, and acute services to optimise care pathways for this population.”

Source location

Response from NHS Devon
Page 2 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Strengthen Special Allocation Scheme processes by checking practice compliance and adding clear appeal-panel agenda items to verify appropriate allocation procedures.

Verbatim wording from the response

“Response: We have previously made improvements to processes and requirements in this scheme since this case. The changes include reviewing the process the practice has followed to ensure it meets all the requirements for allocation to the Special Allocation Scheme and where an appeal is made, the panel agenda has clear items to check/ensure the practice has followed the appropriate processes for assigning to the scheme.”

Source location

Response from NHS Devon
Page 2 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Raise awareness and implement reasonable adjustments to improve mental-health support for autistic people.

Verbatim wording from the response

“Response: Devon ICB recognises the existing commissioning gap for individuals with autism who experience crisis. In response, significant work has been undertaken in 2023–2024 to”

Source location

Response from NHS Devon
Page 1 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Modify Special Allocation Scheme procedures to require practices to confirm consideration of alternative approaches before placement.

Verbatim wording from the response

“Following receiving this Prevention of Future Deaths notice we have additionally considered what extra action can be taken to additionally strengthen arrangements. We have determined to make a modification to the Special Allocation Scheme Standard Operating Procedures (SOP) that specifically requires written confirmation from Practices that they considered all possible alternative approaches to providing primary medical services prior to making the placement. This change was enacted in May 2025.”

Source location

Response from NHS Devon
Page 2 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Primary care and GP-related questions fall outside the Trust’s remit, so it cannot comment on them.

Verbatim wording from the response

“Benjamin was removed from his GP practice due to violent behaviour and allocated to the Special Allocation Scheme. This scheme was not able to meet the needs of a patient such as Benjamin with a diagnosis of autism spectrum disorder.”

Source location

Response from Devon Partnership Trust
Page 2 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

The Learning Disability/Autism Outreach service is not commissioned to provide crisis support or intervention like mental health crisis teams.

Verbatim wording from the response

“As part of the regional development a Learning Disability/Autism Outreach team has been commissioned to sit alongside each unit as part of what is being seen as regional a Learning Disability/Autism service. The LD/A outreach linked with The Brook, is due to become operational at a similar time to the unit opening.”

Source location

Response from Devon Partnership Trust
Page 2 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

DAAIT is not commissioned to provide urgent, emergency or crisis responses for autistic people in distress.

Verbatim wording from the response

“However, had DAAIT been operational at the time of Mr Compton’s distress there still would not have been a specific dedicated autism crisis pathway that he could access. The DAAIT service operates with a duty worker system 5 days per week, staffed by team members. Because of the low demand on duty in terms of volume of queries, and DAAIT service not commissioned to provide an “urgent response”, there is a time frame for response of 48hrs, predominantly this accessed via email queries. This provision is noted in the service Standard Operating Procedure. If there was a significant concern that there was an immediate threat to life then the staff member dealing with the query would contact the police via 999.”

Source location

Response from Devon Partnership Trust
Page 2 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Establishing initial Special Allocation Scheme appropriateness assessments is subject to funding availability.

Verbatim wording from the response

“c) An action request for commissioners to consider establishing and embedding initial appropriateness assessments into all commissioned SAS services. This would be subject to consideration when new services are commissioned or when existing services are reviewed, as well as funding availability.”

Source location

Response from NHS England
Page 3 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

NHS Devon Integrated Care Board is responsible for responding to concerns about care provision within Devon.

Verbatim wording from the response

“Your Report raises concerns over a gap in the provision of care nationally for individuals suffering with autism and in mental health crisis. It is for NHS Devon Integrated Care Board, who I note you have also sent your Report to, to respond to your concerns regarding provision of care within Devon.”

Source location

Response from NHS England
Page 1 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Commissioners are responsible for considering and establishing initial appropriateness assessments in commissioned Special Allocation Scheme services.

Verbatim wording from the response

“c) An action request for commissioners to consider establishing and embedding initial appropriateness assessments into all commissioned SAS services. This would be subject to consideration when new services are commissioned or when existing services are reviewed, as well as funding availability.”

Source location

Response from NHS England
Page 3 · response
Published 18 June 2025

Open published response

Other statements in published responses

These actions and other statements could not be clearly connected to one concern in this report.

Recipient-stated actions An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.4

  1. 1

    Develop the Brook inpatient unit for autistic adults and people with learning disabilities and co-morbid mental health conditions.

    Stated by Devon Partnership NHS TrustStated in progressThe respondent said that this action was in progress when they made their response on 18 June 2025.
  2. 2

    Discuss received Prevention of Future Deaths reports through the Regulation 28 Working Group and share relevant learning across national and regional NHS services.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 18 June 2025.
  3. 3

    Present a full commissioning review and improvement plan to the Devon ICB executive.

    Stated by NHS Devon Integrated Care BoardStated plannedThe respondent said that this action was planned when they made their response on 18 June 2025.
  4. 4

    Develop a regional community inpatient service for people with learning disabilities and autism requiring mental-health treatment.

    Stated by NHS Devon Integrated Care BoardStated plannedThe respondent said that this action was planned when they made their response on 18 June 2025.

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Develop the Brook inpatient unit for autistic adults and people with learning disabilities and co-morbid mental health conditions.

Verbatim wording from the response

“Regionally the lack of specifically designed inpatient environments to best assesses/treat adults with a learning disability and/or who are autistic with co-morbid mental health issues was acknowledged by NHS England and led to a range of funding to build x2 ten bedded inpatient units for this cohort. Devon Partnership Trust has been the lead provider for one of these (The Brook), which is currently under construction in Dawlish, Devon, and is due to open summer 2025. The other unit (The Kingfisher) is being built in Bristol but is not due to open until later in 2026.”

Source location

Response from Devon Partnership Trust
Page 2 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Discuss received Prevention of Future Deaths reports through the Regulation 28 Working Group and share relevant learning across national and regional NHS services.

Verbatim wording from the response

“I would also like to provide further assurances on the national NHS England work taking place around the Reports to Prevent Future Deaths. All reports received are discussed by the Regulation 28 Working Group, comprising Regional Medical Directors, and other clinical and quality colleagues from across the regions. This”

Source location

Response from NHS England
Page 3 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Present a full commissioning review and improvement plan to the Devon ICB executive.

Verbatim wording from the response

“A full commissioning review and improvement plan will also be presented to the Devon ICB executive in the last quarter of this financial year.”

Source location

Response from NHS Devon
Page 2 · response
Published 18 June 2025

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Develop a regional community inpatient service for people with learning disabilities and autism requiring mental-health treatment.

Verbatim wording from the response

“In 2022, Devon received capital investment to develop a new community inpatient service dedicated to people with learning disabilities and autism requiring mental health treatment. This regional centre, one of two in the Southwest, aims to become a centre of excellence providing specialist expertise, training, and system-wide support. The first inpatient beds are scheduled to open in June 2025.”

Source location

Response from NHS Devon
Page 2 · response
Published 18 June 2025

Open published response
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Information checked against the published report and official responses · Data reviewed 7 Sep 2026 · About data quality and limitations

Official responses located
3/3

Data last updated 7 September 2026