PFD report

Megan Davison · Prevention of Future Deaths report

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Issued 15 Jul 2024•Hertfordshire

Report record

Published report and response evidence

This page connects the concerns raised in this report with statements found in recipients’ published responses. A link shows a clear evidence connection; it does not assign responsibility.

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Concerns
5

Raised in this report

Recipients
2

Named on the report

Responses found
2

Of 2 recipients

Stated actions
11

Described in responses

Source document

Full report text

This is the full text from the original published report.

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Concerns and recipient responses

Select any concern, action or position to view the source wording.

Report evidence summary

Concerns raised5

  1. Failure of shared clinical records systems to include private providers
  2. Lack of integrated healthcare system for diabetes and eating disorders
    Part of recurring concern: Inadequate integrated care for people with co-occurring physical and mental health needsPart of recurring concern: Unreliable diabetes care and management
  3. Incomplete treatment pathway for DKA
Responses linked to these concerns

Each statement is shown once, even when linked to more than one concern.

Actions described in response An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.6

  1. Action

    Work with regional partners to learn from national pilots and trial integrated T1DE pathways locally.

    Stated by NHS Hertfordshire and West Essex Integrated Care BoardStated in progressThe respondent said that this action was in progress when they made their response on 30 July 2024.
  2. Action

    Reinforce ICB case-discussion support and establish a clearer provider escalation process, with access details due by November 2024.

    Stated by NHS Hertfordshire and West Essex Integrated Care BoardStated in progressThe respondent said that this action was in progress when they made their response on 30 July 2024.
  3. Action

    Develop an integrated diabetic-care model covering complex cases, multidisciplinary case management and mental-health support.

    Stated by NHS Hertfordshire and West Essex Integrated Care BoardStated in progressThe respondent said that this action was in progress when they made their response on 30 July 2024.

Respondent positions A position is what a recipient says about a concern when it does not describe a specific action.5

  1. Position

    Responses to pressures on mental health services, private-NHS interfaces and information sharing are local matters for the Integrated Care Board.

    Stated by Department of Health and Social CareRedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure of shared clinical records systems to include private providers

Wider context from the report

“(c) Whilst there have been significant advances in developing shared clinical records systems across primary and secondary care since Ms Davison's death in 2017, none of the shared records systems extends to organisations which are deemed to be private providers, such as The Priory. The perception of healthcare providers such The Priory as "private" providers is a fallacy, because a high percentage of patients looked after by such providers are, like Ms Davison, NHS patients. I heard evidence from the Chief Medical Officer of The Priory that record sharing which includes private providers would help to prevent future deaths. ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of integrated healthcare system for diabetes and eating disorders

Wider context from the report

“(b) At a local level in East and North Hertfordshire there is no integrated healthcare system for patients with diabetes and eating disorders as there is in the west of the county. ”

Is this part of a recurring concern?

Yes — Inadequate integrated care for people with co-occurring physical and mental health needs; Unreliable diabetes care and management.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Incomplete treatment pathway for DKA

Wider context from the report

“(a) On a national level there is not a system which is capable of being operated in a way which will ensure proper integrated healthcare for patients with T1DE. Specifically, there is no formal diagnosis for T1DE, no treatment pathway for T1DE and no complete treatment pathway for Diabetic Ketoacidosis (DKA), an acute clinical emergency associated with T1DE caused by deliberate omission of insulin, which should be seen as an act of self harm - there being a physical protocol, but no mental health protocol, for DKA. I heard independent evidence from ████████, Professor of Psychiatry and Medicine at the Institute of Psychiatry, Psychology and Neurosciences at Kings College London that "the lack of a diagnosis for T1DE has an impact because if you don’t know what you are looking for and there aren’t any criteria that you can screen by then it’s very difficult for both patients and clinicians to understand what is wrong with them and this has hampered development of recognition and treatment pathways and building the research evidence". (Copies of ████████'s independent expert reports for the Inquest are attached). ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of treatment pathway for T1DE

Wider context from the report

“(a) On a national level there is not a system which is capable of being operated in a way which will ensure proper integrated healthcare for patients with T1DE. Specifically, there is no formal diagnosis for T1DE, no treatment pathway for T1DE and no complete treatment pathway for Diabetic Ketoacidosis (DKA), an acute clinical emergency associated with T1DE caused by deliberate omission of insulin, which should be seen as an act of self harm - there being a physical protocol, but no mental health protocol, for DKA. I heard independent evidence from ████████, Professor of Psychiatry and Medicine at the Institute of Psychiatry, Psychology and Neurosciences at Kings College London that "the lack of a diagnosis for T1DE has an impact because if you don’t know what you are looking for and there aren’t any criteria that you can screen by then it’s very difficult for both patients and clinicians to understand what is wrong with them and this has hampered development of recognition and treatment pathways and building the research evidence". (Copies of ████████'s independent expert reports for the Inquest are attached). ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of formal diagnosis for T1DE

Wider context from the report

“(a) On a national level there is not a system which is capable of being operated in a way which will ensure proper integrated healthcare for patients with T1DE. Specifically, there is no formal diagnosis for T1DE, no treatment pathway for T1DE and no complete treatment pathway for Diabetic Ketoacidosis (DKA), an acute clinical emergency associated with T1DE caused by deliberate omission of insulin, which should be seen as an act of self harm - there being a physical protocol, but no mental health protocol, for DKA. I heard independent evidence from ████████, Professor of Psychiatry and Medicine at the Institute of Psychiatry, Psychology and Neurosciences at Kings College London that "the lack of a diagnosis for T1DE has an impact because if you don’t know what you are looking for and there aren’t any criteria that you can screen by then it’s very difficult for both patients and clinicians to understand what is wrong with them and this has hampered development of recognition and treatment pathways and building the research evidence". (Copies of ████████'s independent expert reports for the Inquest are attached). ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Work with regional partners to learn from national pilots and trial integrated T1DE pathways locally.

Verbatim wording from the response

“The ICB is working closely with NHS England’s regional mental health and transformation team, to learn from recent national pilots to trial pathways for T1DE patients and apply this within the Integrated Care System (ICS). The regional team have confirmed they are happy to work with the ICB to ensure any learning from the pilots, as well as relevant national guidance, can be incorporated into our local model. Locally, Mental Health commissioners lead an implementation group with membership from all ICB partners including primary care, community commissioning, regional teams, the voluntary sector, service users, and carers to support quality improvement and delivery of eating disorder services and physical health checks. This work will inform further pathway development and improve access to physical health services for people with serious mental health conditions.”

Source location

Response from Hertfordshire and West Essex ICB
Page 2 · response
Published 30 July 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Reinforce ICB case-discussion support and establish a clearer provider escalation process, with access details due by November 2024.

Verbatim wording from the response

“Where necessary, the ICB (via its clinical teams) can help to organise case-based discussions. We are reinforcing the availability of this support and ensuring there is a clearer process for local providers to escalate cases to the ICB. If a patient is assessed as needing joint input from diabetes and mental health services, the ICB can convene a case conference as appropriate, with the relevant teams to develop an agreed management plan. Details on how local providers can access this process will be in place by November 2024, enabling clinicians to make best use of this support.”

Source location

Response from Hertfordshire and West Essex ICB
Page 2 · response
Published 30 July 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Develop an integrated diabetic-care model covering complex cases, multidisciplinary case management and mental-health support.

Verbatim wording from the response

“To address variation in service provision within different parts of the ICS, the ICB is working with local providers to develop a new, integrated model of diabetic care reflecting the needs of all diabetic patients. This includes the management of complex cases involving multi-disciplinary case management, including mental health support.”

Source location

Response from Hertfordshire and West Essex ICB
Page 2 · response
Published 30 July 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Lead a multi-partner implementation group to improve eating-disorder services and physical-health checks.

Verbatim wording from the response

“The ICB is working closely with NHS England’s regional mental health and transformation team, to learn from recent national pilots to trial pathways for T1DE patients and apply this within the Integrated Care System (ICS). The regional team have confirmed they are happy to work with the ICB to ensure any learning from the pilots, as well as relevant national guidance, can be incorporated into our local model. Locally, Mental Health commissioners lead an implementation group with membership from all ICB partners including primary care, community commissioning, regional teams, the voluntary sector, service users, and carers to support quality improvement and delivery of eating disorder services and physical health checks. This work will inform further pathway development and improve access to physical health services for people with serious mental health conditions.”

Source location

Response from Hertfordshire and West Essex ICB
Page 2 · response
Published 30 July 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Maintain a shared care record containing data from connected organisations, including some private providers.

Verbatim wording from the response

“Within the current phase of work, the ICB now has a shared care record with a rich volume of data being shared from a number of organisations connected; this does include some private providers such as local hospices.”

Source location

Response from Hertfordshire and West Essex ICB
Page 3 · response
Published 30 July 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Continue working with local providers to share patient information appropriately on a case-by-case basis.

Verbatim wording from the response

“In the meantime, we continue to work with local providers to ensure that patient information relating to their care is shared appropriately on a case-by-case basis.”

Source location

Response from Hertfordshire and West Essex ICB
Page 3 · response
Published 30 July 2024

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Responses to pressures on mental health services, private-NHS interfaces and information sharing are local matters for the Integrated Care Board.

Verbatim wording from the response

“Thank you for also highlighting your important concerns about the pressures on NHS mental health services, the interface between private practitioners and NHS providers and the sharing of medical information between the two. I note that your report has also been sent to the Hertfordshire and West Essex Integrated Care Board as this is a local matter and I would expect that the ICB will want to ensure the appropriate steps are taken in response.”

Source location

Response from DHSC
Page 3 · response
Published 30 July 2024

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Long-term sustainable provision of T1DE care is the responsibility of Hertfordshire and West Essex Integrated Care Board.

Verbatim wording from the response

“Central to the service model delivered in the eight pilot sites, which are distributed in each region of the country, is delivery of a model treatment and care pathway that integrates various healthcare disciplines, including diabetes and mental health to address the complex nature of T1DE. Funding has been provided on a pump prime basis and the responsibility for the longer-term sustainable provision of care for these patients sits with Hertfordshire and West Essex Integrated Care Board.”

Source location

Response from DHSC
Page 2 · response
Published 30 July 2024

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Future national T1DE plans depend on future NHS spending settlements and the level of NHS England funding allocated to T1DE.

Verbatim wording from the response

“NHS England is drawing on learning from existing T1DE services, other emerging evidence and the findings of the recent ‘Type 1 diabetes and disordered eating’ parliamentary inquiry on the 23 January 2024, to ensure all areas of the country are supported to improve care for those identified as having T1DE. The emergence of these future plans are subject to future spending review settlements for the NHS and level of funding from the NHS England budget allocated to T1DE.”

Source location

Response from DHSC
Page 2 · response
Published 30 July 2024

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

The national T1DE system concern is referred to the Secretary of State for Health, so no further local response is provided.

Verbatim wording from the response

“1. On a national level there is not a system which is capable of being operated in a way which will ensure proper integrated healthcare for patients with Type 1 Diabetes with Disordered Eating (T1DE). Specifically, there is no formal diagnosis for T1DE, no treatment pathway for T1DE and no complete treatment pathway for Diabetic Ketoacidosis.”

Source location

Response from Hertfordshire and West Essex ICB
Page 1 · response
Published 30 July 2024

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Further shared-record rollout to private and other providers is constrained by technical integration costs, reduced national funding and unresolved future funding.

Verbatim wording from the response

“Within Hertfordshire and West Essex Integrated Care System our ambition is to give access to any appropriate person providing care. However, a phased approach to implementation is required to manage this safely as well as due to the significant costs involved. To provide access to the shared care record requires a connection to each care providers system which involves technical integration, information governance process and ongoing revenue funding for that connection.”

Source location

Response from Hertfordshire and West Essex ICB
Page 3 · response
Published 30 July 2024

Open published response

Other statements in published responses

These actions and other statements could not be clearly connected to one concern in this report.

Recipient-stated actions An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.5

  1. 1

    Proactively identify and manage complex patients through Integrated Neighbourhood Teams using joint care plans.

    Stated by NHS Hertfordshire and West Essex Integrated Care BoardStated completedThe respondent said that this action was complete when they made their response on 30 July 2024.
  2. 2

    Share and discuss the prevention-of-future-deaths report with the local System Quality Group to support wider learning.

    Stated by NHS Hertfordshire and West Essex Integrated Care BoardStated plannedThe respondent said that this action was planned when they made their response on 30 July 2024.
  3. 3

    Improve access and care for people with eating disorders or disordered eating through local mental-health-provider work and community transformation funding.

    Stated by NHS Hertfordshire and West Essex Integrated Care BoardStated completedThe respondent said that this action was complete when they made their response on 30 July 2024.
  4. 4

    Invest in improved diabetic care and enhanced physical-health checks for people with mental-health conditions.

    Stated by NHS Hertfordshire and West Essex Integrated Care BoardStated completedThe respondent said that this action was complete when they made their response on 30 July 2024.
  5. 5

    Fund Talking Therapies for people with long-term physical-health conditions, including diabetes.

    Stated by NHS Hertfordshire and West Essex Integrated Care BoardStated completedThe respondent said that this action was complete when they made their response on 30 July 2024.

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Proactively identify and manage complex patients through Integrated Neighbourhood Teams using joint care plans.

Verbatim wording from the response

“Across the ICS, complex patients requiring case management are now proactively identified and managed through local Integrated Neighbourhood Teams. These bring together professionals from across relevant services to understand the holistic needs of individuals and develop joint plans.”

Source location

Response from Hertfordshire and West Essex ICB
Page 2 · response
Published 30 July 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Share and discuss the prevention-of-future-deaths report with the local System Quality Group to support wider learning.

Verbatim wording from the response

“Additionally, the report to prevent future deaths will be shared with the local System Quality Group, and discussed, to ensure wider learning from Megan’s death and the valid matters of concern that you have identified.”

Source location

Response from Hertfordshire and West Essex ICB
Page 3 · response
Published 30 July 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Improve access and care for people with eating disorders or disordered eating through local mental-health-provider work and community transformation funding.

Verbatim wording from the response

“The ICB commissions diabetes services and in East and North Hertfordshire and there is collaborative working between community and acute diabetic teams, with a history of shared clinical posts. In General Practice, the ICB has invested in improvements in diabetic care as well as enhanced physical health checks for people with mental health conditions. Investment has also been made into Talking Therapies for people with long term physical health conditions, including diabetes. The ICB has worked with local mental health providers to improve access and care for people with an eating disorder or disordered eating, with associated additional community service transformation funding.”

Source location

Response from Hertfordshire and West Essex ICB
Page 2 · response
Published 30 July 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Invest in improved diabetic care and enhanced physical-health checks for people with mental-health conditions.

Verbatim wording from the response

“The ICB commissions diabetes services and in East and North Hertfordshire and there is collaborative working between community and acute diabetic teams, with a history of shared clinical posts. In General Practice, the ICB has invested in improvements in diabetic care as well as enhanced physical health checks for people with mental health conditions. Investment has also been made into Talking Therapies for people with long term physical health conditions, including diabetes. The ICB has worked with local mental health providers to improve access and care for people with an eating disorder or disordered eating, with associated additional community service transformation funding.”

Source location

Response from Hertfordshire and West Essex ICB
Page 2 · response
Published 30 July 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Fund Talking Therapies for people with long-term physical-health conditions, including diabetes.

Verbatim wording from the response

“The ICB commissions diabetes services and in East and North Hertfordshire and there is collaborative working between community and acute diabetic teams, with a history of shared clinical posts. In General Practice, the ICB has invested in improvements in diabetic care as well as enhanced physical health checks for people with mental health conditions. Investment has also been made into Talking Therapies for people with long term physical health conditions, including diabetes. The ICB has worked with local mental health providers to improve access and care for people with an eating disorder or disordered eating, with associated additional community service transformation funding.”

Source location

Response from Hertfordshire and West Essex ICB
Page 2 · response
Published 30 July 2024

Open published response
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Information checked against the published report and official responses · Data reviewed 7 Sep 2026 · About data quality and limitations

Official responses located
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Data last updated 7 September 2026