Investigation and inquest
On 17 November 2014 I commenced an investigation into the death of Harry George Mellor a child aged 8 years. The investigation concluded at the end of the inquest on 5th October 2015. The conclusion of the inquest was that Harry had died from pyelonephritis. I recorded a short form conclusion of natural causes.
Circumstances of the death
1. At the age of 13 months Harry’s parents expressed concern about Harry’s lack of developmental progress and infrequent bowel movements. Despite extensive medical investigations between 2007 and 2010, it was not possible to identify the cause of Harry’s hypotonia and hypermobility, and consequently the long term paediatric plan for Harry was to provide support via occupational therapy, physiotherapy, and on-going paediatric review and assessment. Harry made remarkable progress with his mobility but continued to experience problems with toileting and was prone to constipation. He was never continent of urine and faeces and wore nappies throughout life.
2. Although Harry had chronic health needs and remained open to the paediatric team, Harry was not subject to any further paediatric review after 10 March 2011. This was due to a combination of unfortunate circumstances. A partial booking system for paediatric appointments, which was in place in late 2011, required Harry’s mother to contact the hospital to arrange an appointment date. The request was sent to the wrong address and Harry’s mother was not aware of the need to arrange a further appointment. This failure went un-noticed until Harry’s death in October 2014.
3. In December 2012, Harry’s GP de-registered Harry, because his family had moved to a new house outside the practice area. Despite further house moves Harry’s mother did not register Harry with a new GP after his de-registration in December 2012. This failure also went un-noticed until Harry’s death in October 2014.
4. In the autumn of 2014 Harry began to complain of stomach pains. The mother believed that these symptoms were a recurrence of Harry’s usual and long-standing problems with constipation and administered laxative medication.
5. On 28 October 2014 Harry collapsed unexpectedly at his child minder’s home. Despite prompt emergency treatment it was not possible to revive Harry and he was pronounced dead shortly after his arrival at the emergency department.
Coroner’s concerns
1. There is no legal requirement to register or re-register a child with a General Practitioner
2. There is no reliable system in place to identify when a child has been de-registered from a General Practice
3. There are potential safeguarding concerns if a General Practitioner can de-register a child, particularly a child with chronic health needs, before a new General Practitioner has been identified and notified of the proposed de-registration
4. The paediatric team and physiotherapy services were not directly informed that Harry was going to be de-registered or had been de-registered