Maeve Boothby O’Neill, who had severe ME and was bedbound, died at home on 3 October 2021 after three hospital admissions during 2021. The report identified concerns about the lack of specialist care provision for severe ME, limited research funding and medical training, and insufficient guidance on managing severe ME in the home or community, including nutritional support.
Department of Health and Social Care
Medical Research Council
Medical Schools Council
National Institute for Health and Care Excellence
+2 more
National Institute for Health and Care Research
NHS England