PFD report

ELLIE MAY CLARK · Prevention of Future Deaths report

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Issued 6 Mar 2018•Gwent

Report record

Published report and response evidence

This page connects the concerns raised in this report with statements found in recipients’ published responses. A link shows a clear evidence connection; it does not assign responsibility.

View original report
Concerns
6

Raised in this report

Recipients
2

Named on the report

Responses found
1

Of 2 recipients

Stated actions
10

Described in responses

Source document

Full report text

This is the full text from the original published report.

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Concerns and recipient responses

Select any concern, action or position to view the source wording.

Report evidence summary

Concerns raised6

  1. Lack of effective and robust long-term care planning and clinical oversight
  2. Delays in triaging emergency appointments resulting in insufficient attendance notice
  3. Failure to prominently record severe or life-threatening asthma on medical notes
    Part of recurring concern: Incomplete, inaccurate or unavailable clinical and care records
Responses linked to these concerns

Each statement is shown once, even when linked to more than one concern.

Actions described in response An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.4

  1. Action

    Provide asthma teaching to peers and junior staff, sharing adverse-outcome learning and reinforcing personal asthma action plan standards.

    Stated by Aneurin Bevan University LHBStated in progressThe respondent said that this action was in progress when they made their response on 16 June 2018.
  2. Action

    Review and update the asthma-related action plan to reflect completed improvements and further assurance requirements.

    Stated by Aneurin Bevan University LHBStated completedThe respondent said that this action was complete when they made their response on 16 June 2018.
  3. Action

    Follow up high-risk children receiving repeated steroids or nebulisers for at least one year and children admitted to intensive care until specified stepdown or transition.

    Stated by Aneurin Bevan University LHBStated in progressThe respondent said that this action was in progress when they made their response on 16 June 2018.

Respondent positions A position is what a recipient says about a concern when it does not describe a specific action.2

  1. Position

    Independent primary care contractors are responsible for safe service delivery, professional standards, regulatory compliance and patient accessibility.

    Stated by Aneurin Bevan University LHBRedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of effective and robust long-term care planning and clinical oversight

Wider context from the report

“(1) The lack of an effective and robust care plan. No one clinician was allocated to oversee the long-term management and care of Ellie's medical condition. She dealt with by three different doctors at the surgery within a period of 5 days leading up to her death. ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Delays in triaging emergency appointments resulting in insufficient attendance notice

Wider context from the report

“(3) A delay in Ellie being triaged for an emergency appointment resulting in insufficient notice being given to ████████ to enable timely attendance at the appointment. ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to prominently record severe or life-threatening asthma on medical notes

Wider context from the report

“(5) A note that Ellie had severe/life threatening asthma was not placed on her medical notes in a prominent position. ”

Is this part of a recurring concern?

Yes — Incomplete, inaccurate or unavailable clinical and care records.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of support for staff who challenge clinical decisions or seek second opinions

Wider context from the report

“(6) Support staff did not feel they would be supported if they challenged a doctor's decision or sought a second opinion. ”

Is this part of a recurring concern?

Yes — Failure to maintain an open and accountable safety culture.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to ensure continuity and availability of triage information for emergency appointment clinicians

Wider context from the report

“(4) The lack of an effective and robust triage system. The receptionist who spoke with ████████ on the telephone and the doctor who triaged Ellie were different to the receptionist ████████ spoke with at the surgery and the doctor with whom the emergency appointment was booked. Furthermore, the triage notes were not made available to the doctor in readiness for the emergency appointment. ”

Is this part of a recurring concern?

Yes — Unreliable transfer of triage information for urgent clinical appointments.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to provide clinical assessment and safeguarding advice when late patients attend emergency appointments

Wider context from the report

“(2) Ellie was turned away from an emergency appointment for being late without any clinical assessment or safeguarding advice being given. ”

Is this part of a recurring concern?

No recurring-concern membership is currently published.

Open source report

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Provide asthma teaching to peers and junior staff, sharing adverse-outcome learning and reinforcing personal asthma action plan standards.

Verbatim wording from the response

“3. As part of the paediatric consultant’s regular commitment to asthma teaching the team provide teaching for peers and juniors around their responsibilities, where adverse outcomes in Gwent are shared in terms of lessons learned, and the need for PAAPs as part of current standards review.”

Source location

2018-0066-Response-by-University-Health-Board
Page 3 · response
Published 16 June 2018

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Review and update the asthma-related action plan to reflect completed improvements and further assurance requirements.

Verbatim wording from the response

“I can confirm that the Health Board has duly noted your recommendations and ensured a formal review of the action plan which was developed and implemented in 2015 immediately following the Health Board’s own investigation undertaken by the former Clinical Director, Primary Care Division was completed. This has been conducted in liaison with the Grange Clinic practice.”

Source location

2018-0066-Response-by-University-Health-Board
Page 1 · response
Published 16 June 2018

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Follow up high-risk children receiving repeated steroids or nebulisers for at least one year and children admitted to intensive care until specified stepdown or transition.

Verbatim wording from the response

“5. The team recommit to following up all children who have received more than steroids and nebulisers for at least one year and any child that has been to Intensive Care Unit to follow up until transition or exacerbation-free stepdown in preventer treatment down to step 2 or less.”

Source location

2018-0066-Response-by-University-Health-Board
Page 3 · response
Published 16 June 2018

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Audit provision of personal asthma action plans in clinics and at discharge.

Verbatim wording from the response

“The Health Board can confirm that those actions and request for assurances outlined in your correspondence have been implemented and continue to be the focus of cross divisional work with primary care and lead consultant paediatricians. I am advised by our Lead Consultant Paediatrician that the consultant leads for asthma have met to discuss Ellie May’s case and the Regulation 28 report. He confirms that the plan for the next 6 months includes:”

Source location

2018-0066-Response-by-University-Health-Board
Page 2 · response
Published 16 June 2018

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Independent primary care contractors are responsible for safe service delivery, professional standards, regulatory compliance and patient accessibility.

Verbatim wording from the response

“It may be helpful to clarify that the Health Board does not directly manage the delivery of services or the oversight of staff employed within independent primary care contractors. Independent contractors are directly responsible for ensuring that the delivery of services is safe and also for ensuring that services conform to the expected professional standards and regulations and are appropriately accessible to patients. Nonetheless, there is a requirement for practices to provide assurance to the Health Board in respect of the adequacy of services provided. The Health Board has established processes to monitor the compliance of practices with contractual requirements and to intervene where it has concerns, contractually or professionally.”

Source location

2018-0066-Response-by-University-Health-Board
Page 1 · response
Published 16 June 2018

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Direct management of service delivery and oversight of independent primary care contractor staff falls outside the Health Board’s functions.

Verbatim wording from the response

“It may be helpful to clarify that the Health Board does not directly manage the delivery of services or the oversight of staff employed within independent primary care contractors. Independent contractors are directly responsible for ensuring that the delivery of services is safe and also for ensuring that services conform to the expected professional standards and regulations and are appropriately accessible to patients. Nonetheless, there is a requirement for practices to provide assurance to the Health Board in respect of the adequacy of services provided. The Health Board has established processes to monitor the compliance of practices with contractual requirements and to intervene where it has concerns, contractually or professionally.”

Source location

2018-0066-Response-by-University-Health-Board
Page 1 · response
Published 16 June 2018

Open published response

Other statements in published responses

These actions and other statements could not be clearly connected to one concern in this report.

Recipient-stated actions An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.6

  1. 1

    Liaise with the Emergency Department to identify children attending for asthma exacerbations more than twice annually.

    Stated by Aneurin Bevan University LHBStated in progressThe respondent said that this action was in progress when they made their response on 16 June 2018.
  2. 2

    Issue learning from the case to GP practices and paediatric consultants across the health board area.

    Stated by Aneurin Bevan University LHBStated completedThe respondent said that this action was complete when they made their response on 16 June 2018.
  3. 3

    Enlist respiratory specialist nursing support to disseminate asthma-related learning.

    Stated by Aneurin Bevan University LHBStated completedThe respondent said that this action was complete when they made their response on 16 June 2018.
  4. 4

    Reappoint children who do not attend follow-up and refer them to safeguarding after a second non-attendance.

    Stated by Aneurin Bevan University LHBStated plannedThe respondent said that this action was planned when they made their response on 16 June 2018.
  5. 5

    Audit documentation of asthma education provided at discharge against the relevant pathway.

    Stated by Aneurin Bevan University LHBStated plannedThe respondent said that this action was planned when they made their response on 16 June 2018.
  6. 6

    Develop a community-pharmacy enhanced service to identify patients with overdue reviews or reliever-medication overuse.

    Stated by Aneurin Bevan University LHBStated completedThe respondent said that this action was complete when they made their response on 16 June 2018.

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Liaise with the Emergency Department to identify children attending for asthma exacerbations more than twice annually.

Verbatim wording from the response

“4. The team acknowledge that the high risk children may not be seeing their GPs nor paediatric services, and the team liaise with our Emergency Department (ED) to identify those children who have attended ED for asthma exacerbation more than twice per year.”

Source location

2018-0066-Response-by-University-Health-Board
Page 3 · response
Published 16 June 2018

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Issue learning from the case to GP practices and paediatric consultants across the health board area.

Verbatim wording from the response

“Since the inquest was held further correspondence has been issued by the ABUHB Medical Director to all GP practices and paediatric consultants to ensure that those lessons learned following this sad case are acknowledged and shared by the GP community.”

Source location

2018-0066-Response-by-University-Health-Board
Page 3 · response
Published 16 June 2018

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Enlist respiratory specialist nursing support to disseminate asthma-related learning.

Verbatim wording from the response

“Within Primary Care a programme of work in response to the national audit of asthma-related deaths has taken place led by respiratory pharmacists within the Neighbourhood Care Network clusters. This has led to the development of a community pharmacy Local Enhanced Service to identify those patients with review outstanding or who were overusing reliever medication. Support has been enlisted from the respiratory specialist nursing team to support promulgation of learning.”

Source location

2018-0066-Response-by-University-Health-Board
Page 3 · response
Published 16 June 2018

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Reappoint children who do not attend follow-up and refer them to safeguarding after a second non-attendance.

Verbatim wording from the response

“6. If these two groups of patients don't attend then the team will reappoint with a highlighting of neglect, with a referral to safeguarding if they do not attend (DNA) a second time.”

Source location

2018-0066-Response-by-University-Health-Board
Page 3 · response
Published 16 June 2018

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Audit documentation of asthma education provided at discharge against the relevant pathway.

Verbatim wording from the response

“The Health Board can confirm that those actions and request for assurances outlined in your correspondence have been implemented and continue to be the focus of cross divisional work with primary care and lead consultant paediatricians. I am advised by our Lead Consultant Paediatrician that the consultant leads for asthma have met to discuss Ellie May’s case and the Regulation 28 report. He confirms that the plan for the next 6 months includes:”

Source location

2018-0066-Response-by-University-Health-Board
Page 2 · response
Published 16 June 2018

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Develop a community-pharmacy enhanced service to identify patients with overdue reviews or reliever-medication overuse.

Verbatim wording from the response

“Within Primary Care a programme of work in response to the national audit of asthma-related deaths has taken place led by respiratory pharmacists within the Neighbourhood Care Network clusters. This has led to the development of a community pharmacy Local Enhanced Service to identify those patients with review outstanding or who were overusing reliever medication. Support has been enlisted from the respiratory specialist nursing team to support promulgation of learning.”

Source location

2018-0066-Response-by-University-Health-Board
Page 3 · response
Published 16 June 2018

Open published response
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Information checked against the published report and official responses · Data reviewed 7 Sep 2026 · About data quality and limitations

Official responses located
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Data last updated 7 September 2026