PFD report

Theresa Lydon · Prevention of Future Deaths report

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Issued 21 Apr 2026•Gateshead and South Tyneside

Report record

Published report and response evidence

This page connects the concerns raised in this report with statements found in recipients’ published responses. A link shows a clear evidence connection; it does not assign responsibility.

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Concerns
3

Raised in this report

Recipients
1

Named on the report

Responses found
2

Of 1 recipient

Stated actions
7

Described in responses

Recipients and published responses

Source document

Full report text

This is the full text from the original published report.

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Concerns and recipient responses

Select any concern, action or position to view the source wording.

Report evidence summary

Concerns raised3

  1. Failure to clearly communicate treatment plans and required actions in consultant correspondence
    Part of recurring concern: Failure to communicate clinically important information reliably between care servicesPart of recurring concern: Unreliable recording and confirmation of specialist clinical advice
  2. Failure of secondary-care specialists to issue required prescriptions at diagnosis
    Part of recurring concern: Unreliable doctor-to-doctor coordination of prescribing
  3. Failure to provide prompt access to patient medical records across NHS Trusts
    Part of recurring concern: Unreliable access to relevant clinical records for safe carePart of recurring concern: Unreliable consolidation and access to patients’ cross-service clinical risk information
Responses linked to these concerns

Each statement is shown once, even when linked to more than one concern.

Actions described in response An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.3

  1. Action

    Produce national guidance on clear, concise, structured outpatient clinic letters and required primary-care actions.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 19 June 2026.
  2. Action

    Develop the Red Tape Challenge to improve primary-secondary care communication, interface working, prescribing, records access, interoperability, and process standardisation.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 19 June 2026.
  3. Action

    Introduce a Single Patient Record across England to enable consistent sharing of patient information among relevant health and social care providers from 2028.

    Stated by Department of Health and Social CareStated plannedThe respondent said that this action was planned when they made their response on 19 June 2026.

Respondent positions A position is what a recipient says about a concern when it does not describe a specific action.2

  1. Position

    The concern that specialists cannot prescribe required medicines at diagnosis is based on a misunderstanding; registered secondary-care specialists may prescribe them.

    Stated by NHS EnglandDisputes the concernThe respondent disagreed with part of the concern or the basis for it.

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to clearly communicate treatment plans and required actions in consultant correspondence

Wider context from the report

“(1) During the course of the inquest it was established Mrs Lydon was diagnosed with a condition and treatment was prescribed in the form of a repeat prescription drug in May 2021. The diagnosing consultant set out the treatment plan in a letter to her GP and the format of the letter was such it was difficult for the receiving GP to see what actions were required by him. This is compounded when paper correspondence is routinely scanned and emailed by administrators and the GP is 'drawn' to certain sections of the document by the administrators. It was remarked in evidence by the GP that all consultants seem to format their correspondence differently and there is no uniform format so a GP can see clearly at the outset what the treatment plan is and what action needs to be taken. Evidence from the Hospital Trust in question stated they had changed the format of this type of correspondence to make it easier to identify the actions to be taken. In Mrs Lydon's case, the drug she was prescribed in May 2021 was not identified from the correspondence and was supplied to her in June 2022 when the situation was discovered. Whilst a remedy has been implemented locally I have a concern that nationally there is a risk of future deaths if important correspondence contained treatment plans is not clearly communicated to those responsible for implementing them. ”

Is this part of a recurring concern?

Yes — Failure to communicate clinically important information reliably between care services; Unreliable recording and confirmation of specialist clinical advice.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure of secondary-care specialists to issue required prescriptions at diagnosis

Wider context from the report

“(2) Evidence was given at inquest that when a diagnosis is made by a specialist in a secondary care setting, if drugs are to be prescribed that must be undertaken by the patient's GP. It was confirmed that the current practice does not allow for a specialist to issue a prescription for the required drugs at the point of diagnosis and then instruct the patient's GP to continue the process. In Mrs Lydon's case this would have ensured she received the clinically indicated drugs immediately. ”

Is this part of a recurring concern?

Yes — Unreliable doctor-to-doctor coordination of prescribing.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to provide prompt access to patient medical records across NHS Trusts

Wider context from the report

“(3) On Mrs Lydon's admission to hospital in Gateshead in July 2022 certain investigations, treatment and diagnosis were made. She was then discharged and returned to hospital in South Tyneside, a neighbouring NHS Trust in August for what amounted to a further 3 hospital admissions there before her death. Evidence was heard that the doctors in South Tyneside whilst aware of her recent admission in Gateshead could not access her medical records for that admission. They requested them in August, but they were not supplied until November, after she had died. I understand much work regionally has been undertaken since 2022 with North East England based NHS Trusts to make 'real time' access to patient records possible, but whilst improved it is not complete and this is also a national issue I understand. Given the two hospitals Mrs Lydon was a patient in are only 6 miles apart it raises a concern that doctors attending Mrs Lydon in one location are denied access to another hospital records so close at hand and I understand this is not a position unique to these hospitals. To me, the inability of doctors to promptly access a patient's medical records from other NHS Trusts to provide the best possible care creates a risk of future deaths. ”

Is this part of a recurring concern?

Yes — Unreliable access to relevant clinical records for safe care; Unreliable consolidation and access to patients’ cross-service clinical risk information.

Open source report

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Produce national guidance on clear, concise, structured outpatient clinic letters and required primary-care actions.

Verbatim wording from the response

“As that is not yet universal, nationally, the Getting it Right First Time (GIRFT) Team produced a Clinically Led Speciality Outpatient Guide document in July 2023 highlighting the importance of clear, concise clinic letters and offering guidance on the best ways to do this. This states that outpatient clinic letters have at least three different audiences, each of which will have different requirements for what they need to be able to take from the contents. In view of this, clinic letters must be clear, concise,”

Source location

Response from NHS England
Page 1 · response
Published 19 June 2026

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Develop the Red Tape Challenge to improve primary-secondary care communication, interface working, prescribing, records access, interoperability, and process standardisation.

Verbatim wording from the response

“An initiative called the ‘Red Tape Challenge’ was developed to improve the interface between primary and secondary care, such as how referrals are made and managed, patient discharge and how different parts of the health service communicate with each other. The Red Tape Challenge led to 10 recommendations, which were cascaded through Regional Medical Directors. The focus of the Red Tape Challenge is on reducing unnecessary bureaucracy, improving communication and understanding, strengthening culture and interface working between primary and secondary care, improving digital and estates infrastructure, streamlining healthcare delivery, enhancing patient experience, and freeing up clinical time. Those especially relating to this case include:”

Source location

Response from NHS England
Page 6 · response
Published 19 June 2026

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Introduce a Single Patient Record across England to enable consistent sharing of patient information among relevant health and social care providers from 2028.

Verbatim wording from the response

“I would like to highlight action we are taking at a national level which will radically improve data sharing between NHS service providers, whether they are neighbouring hospitals as was in Mrs Lydon’s case, or at opposite ends of the country.”

Source location

Response from Department of Health and Social Care
Page 3 · response
Published 19 June 2026

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

The concern that specialists cannot prescribe required medicines at diagnosis is based on a misunderstanding; registered secondary-care specialists may prescribe them.

Verbatim wording from the response

“When a diagnosis is made by a specialist in secondary care, the specialist, assuming they are a registered medical practitioner, is permitted to prescribe medicines for the patient without having to ask a GP to do this on their behalf. This has been standard practice in the NHS since its inception, and was confirmed in guidance from NHS England in 2018. The North-East and North Cumbria Area Prescribing Committee formulary, lists balsalazide (the drug prescribed to Mrs Lydon to treat her ulcerative colitis) as a GREEN+ drug. The definition of a GREEN+ drug from the formulary is:”

Source location

Response from NHS England
Page 2 · response
Published 19 June 2026

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Implementation of measures improving primary-secondary care communication and prescribing is driven by integrated care boards, with national oversight.

Verbatim wording from the response

“An initiative called the ‘Red Tape Challenge’ was developed to improve the interface between primary and secondary care, such as how referrals are made and managed, patient discharge and how different parts of the health service communicate with each other. The Red Tape Challenge led to 10 recommendations, which were cascaded through Regional Medical Directors. The focus of the Red Tape Challenge is on reducing unnecessary bureaucracy, improving communication and understanding, strengthening culture and interface working between primary and secondary care, improving digital and estates infrastructure, streamlining healthcare delivery, enhancing patient experience, and freeing up clinical time. Those especially relating to this case include:”

Source location

Response from NHS England
Page 6 · response
Published 19 June 2026

Open published response

Other statements in published responses

These actions and other statements could not be clearly connected to one concern in this report.

Recipient-stated actions An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.4

  1. 1

    Operate the Regulation 28 Working Group to discuss reports and share patient-safety learning across national and regional NHS services.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 19 June 2026.
  2. 2

    Cascade the Red Tape Challenge recommendations through Regional Medical Directors.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 19 June 2026.
  3. 3

    Publish a national inflammatory bowel disease handbook detailing expectations for optimising patient care.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 19 June 2026.
  4. 4

    Review the electronic patient record capability of South Tyneside and Sunderland and Gateshead Health NHS Foundation Trusts against national digital standards.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 19 June 2026.

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Operate the Regulation 28 Working Group to discuss reports and share patient-safety learning across national and regional NHS services.

Verbatim wording from the response

“I would also like to provide further assurances on the national NHS England work taking place around the Reports to Prevent Future Deaths. All reports received are discussed by the Regulation 28 Working Group, comprising Regional Medical Directors, and other clinical and quality colleagues from across the regions. This ensures that key learnings and insights around events, such as the sad death of Mrs Lydon, are shared across the NHS at both a national and regional level and helps us to pay close attention to any emerging trends that may require further review and action.”

Source location

Response from NHS England
Page 6 · response
Published 19 June 2026

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Cascade the Red Tape Challenge recommendations through Regional Medical Directors.

Verbatim wording from the response

“An initiative called the ‘Red Tape Challenge’ was developed to improve the interface between primary and secondary care, such as how referrals are made and managed, patient discharge and how different parts of the health service communicate with each other. The Red Tape Challenge led to 10 recommendations, which were cascaded through Regional Medical Directors. The focus of the Red Tape Challenge is on reducing unnecessary bureaucracy, improving communication and understanding, strengthening culture and interface working between primary and secondary care, improving digital and estates infrastructure, streamlining healthcare delivery, enhancing patient experience, and freeing up clinical time. Those especially relating to this case include:”

Source location

Response from NHS England
Page 6 · response
Published 19 June 2026

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Publish a national inflammatory bowel disease handbook detailing expectations for optimising patient care.

Verbatim wording from the response

“It is not clear from the Report whether or not the patient and GP had been told how to escalate any issues and whether they had been given contact details for any queries or escalation, for example for the local Inflammatory Bowel Disease (IBD) specialist nurse or the IBD helpline. Almost every hospital will or should have an IBD helpline or an IBD specialist nurse. Patients with known Ulcerative Colitis should be given these contact details when they are diagnosed.”

Source location

Response from NHS England
Page 2 · response
Published 19 June 2026

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Review the electronic patient record capability of South Tyneside and Sunderland and Gateshead Health NHS Foundation Trusts against national digital standards.

Verbatim wording from the response

“The Frontline Digitisation (FD) Programme, has reviewed the position at South Tyneside and Sunderland NHS Foundation Trust and Gateshead Health NHS Foundation Trust.”

Source location

Response from NHS England
Page 4 · response
Published 19 June 2026

Open published response
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Information checked against the published report and official responses · Data reviewed 7 Sep 2026 · About data quality and limitations

Official responses located
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Data last updated 7 September 2026