PFD report

Lee Armstrong · Prevention of Future Deaths report

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Issued 29 Oct 2024•Cumbria

Report record

Published report and response evidence

This page connects the concerns raised in this report with statements found in recipients’ published responses. A link shows a clear evidence connection; it does not assign responsibility.

View original report
Concerns
3

Raised in this report

Recipients
2

Named on the report

Responses found
2

Of 2 recipients

Stated actions
4

Described in responses

Source document

Full report text

This is the full text from the original published report.

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Concerns and recipient responses

Select any concern, action or position to view the source wording.

Report evidence summary

Concerns raised3

  1. Lack of ambulance call-handler access to patients' medical records
    Part of recurring concern: Unreliable access to relevant clinical records for safe care
  2. Failure to share information supplied to 111 online with ambulance call handlers
    Part of recurring concern: Unreliable inter-agency information sharing for coordinated care
  3. Failure to elicit callers' existing medical conditions
    Part of recurring concern: Unreliable recording of patients' clinically relevant medical history
Responses linked to these concerns

Each statement is shown once, even when linked to more than one concern.

Respondent positions A position is what a recipient says about a concern when it does not describe a specific action.4

  1. Position

    NHS England will respond to concerns about sharing and accessing information from NHS 111 and patient records.

    Stated by Department of Health and Social CareRedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Lack of ambulance call-handler access to patients' medical records

Wider context from the report

“(3) I note that NWAS call handlers are not provided with access to (even an abridged version) of a patient's medical records. I am concerned that this means that call handlers cannot see relevant details of medical history. ”

Is this part of a recurring concern?

Yes — Unreliable access to relevant clinical records for safe care.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to share information supplied to 111 online with ambulance call handlers

Wider context from the report

“(2) The evidence indicates that information supplied to 111 online is not shared with NWAS. This may mean that a caller expects that their medical history and condition are known by ambulance call handlers when this is not the case. This risks such callers not volunteering details of the medical history. ”

Is this part of a recurring concern?

Yes — Unreliable inter-agency information sharing for coordinated care.

Open source report

Source evidence

How this individual concern was interpreted

PFD Monitor created a concise, searchable interpretation from the report wording shown below. Response links show a clear evidence connection; they do not assign responsibility.

PFD Monitor interpretation

Failure to elicit callers' existing medical conditions

Wider context from the report

“(1) The evidence indicates that knowledge that Mr Armstrong suffered from Addison's Disease would have dramatically altered the response to the call. However, the NHS Pathways system does not ask callers to indicate whether they have any existing conditions. Instead, the onus is placed on patients to identify potentially relevant conditions. However, Mr Armstrong had indicated that he was confused. I am concerned that expecting a patient to volunteer crucial information about their condition, especially where that condition may cause confusion, places similar patients at risk. ”

Is this part of a recurring concern?

Yes — Unreliable recording of patients' clinically relevant medical history.

Open source report

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

NHS England will respond to concerns about sharing and accessing information from NHS 111 and patient records.

Verbatim wording from the response

“reduce unwarranted variation across services, helping ensure appropriate prioritisation, equity of access and uniformity of response across England. In the case of Mr Armstrong, I understand that his pre-existing condition of Addison’s disease would have changed his call categorisation, and that NHS England, as the appropriate body, will be responding to your concerns raised on this matter as well as on the issue of appropriate patient record sharing and access to information gained from NHS 111. However, I would note that interpreting full medical records is outside of the scope and expectations of call handlers.”

Source location

Response from DHSC
Page 2 · response
Published 1 November 2024

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Health advisors are not expected to interpret comprehensive medical records; limited history questions and clinical escalation are considered safer and more effective.

Verbatim wording from the response

“Although comprehensive system training is provided, it is not within the scope or remit of the Health Advisor to understand or interpret the full range of medical elements as would be encountered in summary medical records, or from access to information on current medications. It is not safe or effective to expect this staff group to make sense of such information and it could add confusion or delays and cause harm if incorrect conclusions were drawn. It is for these reasons that questions on past medical history or pharmacology are only asked where it is deemed that a clear understanding can be sought and where it might make a difference to the outcome.”

Source location

Response from NHS England
Page 4 · response
Published 1 November 2024

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

NHS Pathways limits past medical history questions because broader questioning could delay assessment without changing the triage outcome.

Verbatim wording from the response

“Past medical history and triage using NHS Pathways The NHS Pathways system is symptom-based. This means that the presenting clinical picture drives the assessment. Where pre-existing conditions may alter the outcome of symptom assessment, these conditions are enquired about after the initial assessment. Such enquiry is limited to these circumstances because detailed or unnecessary enquiry into past medical history may delay assessment – not only of the caller in question, but globally across the system by affecting average call lengths – without impacting upon the disposition reached.”

Source location

Response from NHS England
Page 2 · response
Published 1 November 2024

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

NHS 111 online does not transfer information when advising users to call 999 because further telephone assessment is deliberately required before ambulance dispatch.

Verbatim wording from the response

“It is correct that where, as in Lee’s case, the disposition is to ring 999 there is no transfer of information from 111 online to the 999 service, and following the advice and dialling 999 is reliant on the user following the instructions. NHS 111 online is a self-service, digital remote triage service for the public and is designed for anonymous use. It is unassisted, meaning there is no health advisor or 111 clinician input to probe and validate the call 999 outcomes. This means there is no automated ambulance dispatch facility. The advice to ‘call 999’ occurs where the triage indicates potential high acuity presenting symptoms, and leads to the user/patient being assessed further over the phone and advised if an ambulance is required.”

Source location

Response from NHS England
Page 3 · response
Published 1 November 2024

Open published response

Other statements in published responses

These actions and other statements could not be clearly connected to one concern in this report.

Recipient-stated actions An action is something a recipient says it has done, is doing, or plans to do in response to a concern raised.4

  1. 1

    Discuss all Prevention of Future Deaths reports through the Regulation 28 Working Group and share relevant learning across national and regional NHS levels.

    Stated by NHS EnglandStated in progressThe respondent said that this action was in progress when they made their response on 1 November 2024.
  2. 2

    Train and assess Health Advisors on recognising and managing complex calls before live call-taking, with reinforcement through quality improvement and mandatory audits.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 1 November 2024.
  3. 3

    Use the Complex Call process and the “If in doubt, shout” escalation motto to obtain clinical support for calls involving complex medical information.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 1 November 2024.
  4. 4

    Provide a Hot Topic learning resource explaining how Addison’s disease may present in extremis.

    Stated by NHS EnglandStated completedThe respondent said that this action was complete when they made their response on 1 November 2024.

Recipient positions A position is what a recipient says about a concern when they do not describe a specific action.2

  1. 1

    Interpreting full medical records is outside call handlers’ scope and expectations.

    Stated by Department of Health and Social CareOutside remitThe respondent said that this matter was outside its role or authority.
  2. 2

    NHS England is responsible for reviewing triage categorisation and will respond to concerns about how pre-existing conditions affect call prioritisation.

    Stated by Department of Health and Social CareRedirects responsibilityThe respondent said that another organisation was responsible for deciding or taking action.

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Discuss all Prevention of Future Deaths reports through the Regulation 28 Working Group and share relevant learning across national and regional NHS levels.

Verbatim wording from the response

“I would also like to provide further assurances on the national NHS England work taking place around the Reports to Prevent Future Deaths. All reports received are discussed by the Regulation 28 Working Group, comprising Regional Medical Directors, and other clinical and quality colleagues from across the regions. This ensures that key learnings and insights around events, such as the sad death of Lee, are shared across the NHS at both a national and regional level and helps us to pay close attention to any emerging trends that may require further review and action.”

Source location

Response from NHS England
Page 5 · response
Published 1 November 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Train and assess Health Advisors on recognising and managing complex calls before live call-taking, with reinforcement through quality improvement and mandatory audits.

Verbatim wording from the response

“The Complex Call process provides Heath Advisors with a clear process to ask for help or transfer the call to a clinician. This process is engaged when the call relates to medication, medical procedures or medical language that complicates the triage process, or when Health Advisors recognise that they are at the limit of their knowledge or understanding. It is supported through the recently introduced motto, “If in doubt, shout”.”

Source location

Response from NHS England
Page 4 · response
Published 1 November 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Use the Complex Call process and the “If in doubt, shout” escalation motto to obtain clinical support for calls involving complex medical information.

Verbatim wording from the response

“Complex Calls and Clinical oversight The NHS Pathways Licence Agreement with provider services mandates that Health Advisors are supported by round the clock ready access to clinical support. This means that clinicians may provide in-call support or take over an assessment. Where patients, or their representatives, volunteer complex or complicated clinical information is one such scenario where it is expected that Health Advisors request clinical input. This is described as the “Complex Call” process.”

Source location

Response from NHS England
Page 4 · response
Published 1 November 2024

Open published response

Source evidence

How this respondent action was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Provide a Hot Topic learning resource explaining how Addison’s disease may present in extremis.

Verbatim wording from the response

“Hot Topics NHS Pathways produces learning materials called ‘Hot Topics’ which can be reviewed at any time. There is a Hot Topic that touches on Addison’s disease. This Hot Topic gives an overview of how this condition presents in extremis, though health advisors are not expected to act independently of the system based on this.”

Source location

Response from NHS England
Page 5 · response
Published 1 November 2024

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

Interpreting full medical records is outside call handlers’ scope and expectations.

Verbatim wording from the response

“reduce unwarranted variation across services, helping ensure appropriate prioritisation, equity of access and uniformity of response across England. In the case of Mr Armstrong, I understand that his pre-existing condition of Addison’s disease would have changed his call categorisation, and that NHS England, as the appropriate body, will be responding to your concerns raised on this matter as well as on the issue of appropriate patient record sharing and access to information gained from NHS 111. However, I would note that interpreting full medical records is outside of the scope and expectations of call handlers.”

Source location

Response from DHSC
Page 2 · response
Published 1 November 2024

Open published response

Source evidence

How this respondent position was interpreted

PFD Monitor created a concise, searchable interpretation from the published response wording shown below.

PFD Monitor interpretation

NHS England is responsible for reviewing triage categorisation and will respond to concerns about how pre-existing conditions affect call prioritisation.

Verbatim wording from the response

“NHSE has advised the Department that it has in place a process to appropriately map the outcomes of 999 call triage systems against ambulance response time categories. NHSE has responsibility for the production, maintenance, review and revision of the dataset used in these systems, which is managed by the NHSE-chaired Emergency Call Prioritisation Advisory Group (ECPAG). ECPAG keeps the categorisation of calls under continual review, and ambulance services support this process through providing evidence and expertise to”

Source location

Response from DHSC
Page 1 · response
Published 1 November 2024

Open published response
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Information checked against the published report and official responses · Data reviewed 7 Sep 2026 · About data quality and limitations

Official responses located
2/2

Data last updated 7 September 2026